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shauniscrazy

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shauniscrazy Explorer
shauniscrazy
Posted

Hi I'm Shaun I recently found out I am allergic to gluten and cow dairy. I would like to talk to people about when they found out so i can learn more. I would prefer to talk to people closer to my age lol but i will listen to anyone. :D

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GFinDC Veteran
GFinDC
Posted

Hi Shaun,

I was close to your age at one time, but it has only been a few decades, 3 maybe 4 tops. I stared out having lactose intolerance for 9 years or so, and then found out I had celiac disease. Celiac is not actually an allergy, allergies are IgE immune reactions. Celiac is IgA or IgG or some other immune reactions. IgE reactions are like hayfever type reactions where it affects breathing, skin, eyes etc,. People can take anti-histamines for IgE reactions, but they don't help much for celiac disease reactions. Well, that was pretty boring!

Anyhow, there are some other younger members on the forum, so maybe they will show up with some rad info for you. Do they still say rad? :) And welcome to forum we are glad to have you here!

shauniscrazy Explorer
shauniscrazy
Posted
  • Author

Hi Shaun,

I was close to your age at one time, but it has only been a few decades, 3 maybe 4 tops. I stared out having lactose intolerance for 9 years or so, and then found out I had celiac disease. Celiac is not actually an allergy, allergies are IgE immune reactions. Celiac is IgA or IgG or some other immune reactions. IgE reactions are like hayfever type reactions where it affects breathing, skin, eyes etc,. People can take anti-histamines for IgE reactions, but they don't help much for celiac disease reactions. Well, that was pretty boring!

Anyhow, there are some other younger members on the forum, so maybe they will show up with some rad info for you. Do they still say rad? :) And welcome to forum we are glad to have you here!

Thanks for your help and my doctor thinks i might have celiac disease but we dont know yet.

GFinDC Veteran
GFinDC
Posted

Hi Shaun,

Have you had the blood antibody tests and an endoscopy? If the blood antibodies are positive you may not need an endoscopy. Usually it takes a couple weeks to get the antibody results from a lab. It is helpful to get a paper copy of the resutls for yourself also. You might want to review them with another doctor later or even post them on the forum. There are some medical people on the forum who can help interpret them. It's important to keep eating gluten until all the tests are done.

Eating gluten-free is quite a challenge at first. We end up making a lot of our own food and snacks since some times you can't find things when you are out. Although fruit is often a good choice or nuts and they are widely available.

Take care,

Paul

shauniscrazy Explorer
shauniscrazy
Posted
  • Author

Hi Shaun,

Have you had the blood antibody tests and an endoscopy? If the blood antibodies are positive you may not need an endoscopy. Usually it takes a couple weeks to get the antibody results from a lab. It is helpful to get a paper copy of the resutls for yourself also. You might want to review them with another doctor later or even post them on the forum. There are some medical people on the forum who can help interpret them. It's important to keep eating gluten until all the tests are done.

Eating gluten-free is quite a challenge at first. We end up making a lot of our own food and snacks since some times you can't find things when you are out. Although fruit is often a good choice or nuts and they are widely available.

Take care,

Paul

I just heard from my doctor today and she said that i tested negative and thanks.

eatmeat4good Enthusiast
eatmeat4good
Posted

Are you still going to be gluten free?

I am not your age, I'm 49, but I wondered if this means you will be eating gluten or if you will be gluten free due to allergy to it?

shauniscrazy Explorer
shauniscrazy
Posted
  • Author

Are you still going to be gluten free?

I am not your age, I'm 49, but I wondered if this means you will be eating gluten or if you will be gluten free due to allergy to it?

i am gluten and dairy free still

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justlisa Apprentice
justlisa
Posted

Yes...I'm hijacking your thread (I just wanted to support my fellow geriatrics. I've got a good 3 decades on you, too, kiddo ;) )

But, seriously... I'm curious about how you came to suspect gluten/dairy? Symptoms? Any progress yet?

shauniscrazy Explorer
shauniscrazy
Posted
  • Author

Yes...I'm hijacking your thread (I just wanted to support my fellow geriatrics. I've got a good 3 decades on you, too, kiddo ;) )

But, seriously... I'm curious about how you came to suspect gluten/dairy? Symptoms? Any progress yet?

Well i go to a doctor every now and then for my anxiety and i mentioned i feel sick all the time and she is a celiac so she thought i was and we did some tests that revealed that i have a bunch of allergies i was unaware of lol

justlisa Apprentice
justlisa
Posted

Well i go to a doctor every now and then for my anxiety and i mentioned i feel sick all the time and she is a celiac so she thought i was and we did some tests that revealed that i have a bunch of allergies i was unaware of lol

So...how long have you been gluten/dairy free? Any improvement?

What allergies?

shauniscrazy Explorer
shauniscrazy
Posted
  • Author

So...how long have you been gluten/dairy free? Any improvement?

What allergies?

My main food allergies are gluten and dairy. I have been mostly free of these for about 2 weeks i think. I have noticed a lot of improvement on how i feel.

kaitlynrose Rookie
kaitlynrose
Posted

Hi Shaun,

My name is Kaitlyn and I'm 17. I started eating gluten-free when I was 14. I was not officially diagnosed with celiac, but my cousin has it and her gastrointerologist said I most likely have it as well. Either way, eating gluten-free has changed my life for the better.

shauniscrazy Explorer
shauniscrazy
Posted
  • Author

Hi Shaun,

My name is Kaitlyn and I'm 17. I started eating gluten-free when I was 14. I was not officially diagnosed with celiac, but my cousin has it and her gastrointerologist said I most likely have it as well. Either way, eating gluten-free has changed my life for the better.

Thank you for the reply kaitlyn. I believe it has changed my life for the better too. Is there any foods or resturants you would recommend?

kaitlynrose Rookie
kaitlynrose
Posted

Shaun- Yes, PF Changs is my favorite. It's a little pricey, but they have a menu with a great variety of dishes, and the gluten-free entrees are even served on completely different dishes. I have never had a bad experience there (i.e. cross contamination). The nearest one to my house is like an hour away though, so it's just for special occasions. I eat at a lot of mexican restaurants. I just have them prepare my meal with a corn tortilla in the usual flour one's place. Honestly I do not eat out very often, so I don't have many suggestions...

shauniscrazy Explorer
shauniscrazy
Posted
  • Author

Shaun- Yes, PF Changs is my favorite. It's a little pricey, but they have a menu with a great variety of dishes, and the gluten-free entrees are even served on completely different dishes. I have never had a bad experience there (i.e. cross contamination). The nearest one to my house is like an hour away though, so it's just for special occasions. I eat at a lot of mexican restaurants. I just have them prepare my meal with a corn tortilla in the usual flour one's place. Honestly I do not eat out very often, so I don't have many suggestions...

Thank you lol. The nearest pf changs is about an hour from here too. So since you dont eat out often what do you make to eat?

Guest Runningdream
Guest Runningdream
Posted

I love pf changs!!

shauniscrazy Explorer
shauniscrazy
Posted
  • Author

I love pf changs!!

Ok lol but there arent any near me.

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
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      IBS-D vs Celiac

      By SilkieFairy · Posted

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    • catnapt
      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

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