Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Got Gotten

Adalaide

By Adalaide
in Coping with Celiac Disease

Recommended Posts

Adalaide Mentor
Adalaide
Posted

I've been doing really well over the past few months. I've avoided any accidental glutenings and slowly but surely been feeling a little better. Over the weekend I wasn't feeling particularly great, some sort of bug or another. I was just generally nauseous so I stuck to mashed potatoes most of the weekend. Eventually I felt better enough to move on up to chicken soup and had some chicken rice soup in the freezer so I popped it out and had a bowl yesterday. I knew right away it was a mistake. It was something I had made a few months ago, but I guess I did something then to contaminate it.

Now I'm foggy. I keep getting easily distracted, I even just stop what I'm doing in the middle because I forget what I'm doing. Even if it's a conversation. My head is killing me, I'm gassy but I'm too scared to fart. (Which is admittedly mildly amusing to me. :D ) I feel like my stomach has a porcupine in it, which oddly enough the only thing that helps with that is constantly keeping just a little teeny bit of food in me. So I've been just barely grazing all morning. Which is awesome for the heartburn I'm having. <_< Maybe I just just graze on Tums. Everything hurts. I think my hair hurts. I'm too exhausted to be out of bed and have too much life going on this week to be in bed all day. (Thankfully watching a toddler doesn't require more than sitting on my bum.)

This is my first time since I've truly started feeling better. So now I really truly know what it's like to get hit full in the face with this crap. I've smelled pizza before and thought gee that smells good. I'm not sure I'll ever have that thought again. I feel like death today and I know I don't feel half as bad as some of you guys (gals) do when you get got.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GottaSki Mentor
GottaSki
Posted

Bummer - those accidents are hard to avoid completely, but as the reactions become more severe they sure do reinforce the need to stay gluten-free.

You'll still think pizza smells good - but will likely think - how can I replicate it gluten-free instead of wanting to actually eat it.

Hope you feel better quick :)

bartfull Rising Star
bartfull
Posted

I'm so sorry to hear you are sick! I have no advice, but I can offer you a (((HUG))) and my best wishes for a speedy recovery. In the meantime, here is a little song that always cheers me up. There are no giraffes involved, but maybe it'll cheer you up too.

squirmingitch Veteran
squirmingitch
Posted

Awwwwwwwwwwww Adelaide. I'm so sorry you got got. sad.gif

(((HUGS)))

Adalaide Mentor
Adalaide
Posted
  • Author

Thanks guys!

That is a super adorable video Bartfull! I love music about as much as I love giraffes, which is really saying something. B)

kittty Contributor
kittty
Posted

Are you sure it was the chicken soup that glutened you, and not something before you started feeling ill with that bug?

I was glutened for the first time last week, and it started with what I thought was a bug. After a couple of days those buggy symptoms went away and were replaced with more typical gluten stuff, like stomach issues, headache, disconnected feeling, and anxiety. It's taken a few days, but I'm about 75% better now.

At first I thought it was two separate things, but now I'm convinced that the two were related because I'm absolutely sure I ate nothing that could have glutened me while I was ill with the flu-like stuff.

roxieb73 Contributor
roxieb73
Posted

Are you sure it was the chicken soup that glutened you, and not something before you started feeling ill with that bug?

I was glutened for the first time last week, and it started with what I thought was a bug. After a couple of days those buggy symptoms went away and were replaced with more typical gluten stuff, like stomach issues, headache, disconnected feeling, and anxiety. It's taken a few days, but I'm about 75% better now.

At first I thought it was two separate things, but now I'm convinced that the two were related because I'm absolutely sure I ate nothing that could have glutened me while I was ill with the flu-like stuff.

I had a very similar experience. I really thought I had the flu! High fever and all.... then I realized it was a gluten reaction. :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Adalaide Mentor
Adalaide
Posted
  • Author

I'm sure. While it has been a few months, it has always happened swiftly. I've gotten glutened at a pizza restaurant, from not reading ingredients appropriately and from CC in my kitchen. Every time I am in my bathroom in about half an hour or so. I am very aware of how fortunate I am to react so quickly so I can identify the offending item easily. Also, other than I think a handful of Kix and one of what I call my imaginary cookies I think all I ate all weekend was mashed potatoes. And yes, I am beyond 100% certain it wasn't the cookies.

Sometimes people just get sick and it's just being sick. I had no massive explosive D over the weekend so it was certainly not gluten. No way, no how.

JNBunnie1 Community Regular
JNBunnie1
Posted

Kix is safe?

Adalaide Mentor
Adalaide
Posted
  • Author

Not just Kix... when I was lamenting about putting up with my husband's whining about how there are no kid's cereals for him someone turned me onto Trix! For kids my butt... Trix are for celiacs.

roxieb73 Contributor
roxieb73
Posted

Not just Kix... when I was lamenting about putting up with my husband's whining about how there are no kid's cereals for him someone turned me onto Trix! For kids my butt... Trix are for celiacs.

Ohhh good one for when I get the need for a sugar fix. :D Yummy!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Matthias
      - Matthias replied to Matthias's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Unexpected gluten exposure risk from cultivated mushrooms

      Thanks a lot for your response! Can you maybe specify which kind of cheeses I should be cautious about? Camembert/Brie and blue cheeses (the molds of which are nowadays mostly grown on gluten-free media, though, so I've read, right?) or other ones as well? Also, I was under the impression that yeast is generally gluten-free if not declared otherwise...
    2. Scott Adams
      - Scott Adams replied to Matthias's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Unexpected gluten exposure risk from cultivated mushrooms

      I agree with @trents, but thank you for bringing this up here!
    3. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hi @trents, yes I've had my levels checked in Dec 2025 which revealed vit D deficiency. I considered eggs although they only contain about 45 IU vitamin D/egg. I need 2000 IU vitamin D for maintenance as per my doctor. Although now, I likely need way more than that to treat the deficiency. My doctor has yet to advise me on dosing for deficiency. I've also...
    4. trents
      - trents replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Welcome to celiac.com, @Jane02! Have you had your serum D levels checked for deficiency/sufficiency? What about cod liver oil? Egg yolks can also be a good source of vitamin D.
    5. Jane02
      - Jane02 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, I'm very discouraged. I've been trying to find a safe vitamin mineral supplement brand for months and am tired of testing one after the other and experiencing my typical 'glutening' reactions. I'm really feeling the nutritional deficiencies set in. I'm doing the best I can to get these nutrients from my food, although it's impossible for me to...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748
    PattyPagnanelli
    Newest Member
    PattyPagnanelli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Matthias
      Unexpected gluten exposure risk from cultivated mushrooms

      By Matthias · Posted

      Thanks a lot for your response! Can you maybe specify which kind of cheeses I should be cautious about? Camembert/Brie and blue cheeses (the molds of which are nowadays mostly grown on gluten-free media, though, so I've read, right?) or other ones as well? Also, I was under the impression that yeast is generally gluten-free if not declared otherwise. Is that false?
    • Scott Adams
      Unexpected gluten exposure risk from cultivated mushrooms

      By Scott Adams · Posted

      I agree with @trents, but thank you for bringing this up here!
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Hi @trents, yes I've had my levels checked in Dec 2025 which revealed vit D deficiency. I considered eggs although they only contain about 45 IU vitamin D/egg. I need 2000 IU vitamin D for maintenance as per my doctor. Although now, I likely need way more than that to treat the deficiency. My doctor has yet to advise me on dosing for deficiency. I've also considered cod liver oil, although again, if it's processed in a facility that has gluten, especially on flour form, I worried to test it, even if they have protocols in place to mitigate cross-contamination with gluten.
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Welcome to celiac.com, @Jane02! Have you had your serum D levels checked for deficiency/sufficiency? What about cod liver oil? Egg yolks can also be a good source of vitamin D.
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Hello, I'm very discouraged. I've been trying to find a safe vitamin mineral supplement brand for months and am tired of testing one after the other and experiencing my typical 'glutening' reactions. I'm really feeling the nutritional deficiencies set in. I'm doing the best I can to get these nutrients from my food, although it's impossible for me to intake enough vitamin D as I can't have dairy and have insufficient sun exposure in the northern hemisphere. I've tried B Complex from Country Life (certified gluten-free) - horrible reaction. I've tried Metagenics vitamin D tab (certified glute-free) - bad reaction. I've tried liquid vitamin D Thorne and D Drops - reactions were mild since I tried a drop of a drop. I understand there could be other things I'm reacting to in my diet, although my diet/intake is pretty consistent with minimal variables so I do think it's something in these supplements. I understand I could be reacting to the active ingredient vitamin/mineral itself or even the filler ingredients. I tried the vitamin D drops since the only filler ingredient is coconut oil, in some brands, which I know I can tolerate really well on its own - I cook with coconut oil frequently and have no 'glutening' reactions at all. Perhaps I'm reacting to the vitamin D itself, although I eat fatty fish every few days, an entire fillet with no 'glutening' reactions, which contains anywhere between 400-600 IU per fillet so I shouldn't be sensitive to vitamin D. All this to say, I'm desperately looking for at least a safe vitamin D supplement. Does anyone know of a safe vitamin D supplement brand? I'd love to know if there are any supplement brands that have absolutely no gluten (especially in flour form) in their facilities. I've heard of Kirkman having no grains in their facility - I may try this brand. Has anyone reacted to this brand?   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.