Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dealing With Changing Sensitivites?

Ms.frustrated

Recommended Posts

Ms.frustrated Newbie
Ms.frustrated
Posted

I've been eating gluten-free for alomost 3 months. All week I have been watching closly what I've been eating as last weekend I had a terrible time with what I think must have been CC somewhere. Just started feeling well again last night. Today I've been very careful as I have a ball game tonight and am needed to play. I just shared a small bowl of grapes with my daughter and instanly I've had two painful trips to the bathroom. Last time I had grapes, yesterday, I was totally fine, and was happy to find a fruit that didn't upset my stomach. Now what do I do? How often are food sensitivities going to change. How do I know what is safe and not, especially when dealing with fresh fruit??? How do I expect to be able to go on outings with the kids or play a baseball game without flare ups??? I'm so frustrated right now!! I'm too afraid to even go for a walk with the kids, and that is just not fair!

I understand the elimination test, but how can I do that when everyday differs? Does it make a difference when I eat the same fruit two days in a row? Please help!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kittty Contributor
kittty
Posted

It may not have been the grapes, but a continuation of the glutening you got last weekend. I was glutened last week, and the D went away for a couple of days and then came back again yesterday. I wasn't glutened again, so my body is probably doing a rollercoaster recovery. I'm not sure how long the average gluten symptoms can last, but some people have issues for a couple of weeks after accidentally eating gluten.

Lisa Mentor
Lisa
Posted

Until full healing can take place, any kind of food may be problematic gluten free or not. And you may find that your reaction time may vary, which always make it hard to pin point an issue.

Keeping a food diary might be helpful. Have you eliminated dairy? Immodium works for me when I'm in a situation with no rest room. It's also, relieves some of the worry, which makes everything worse. :rolleyes:

Ms.frustrated Newbie
Ms.frustrated
Posted
  • Author

Until full healing can take place, any kind of food may be problematic gluten free or not. And you may find that your reaction time may vary, which always make it hard to pin point an issue.

Keeping a food diary might be helpful. Have you eliminated dairy? Immodium works for me when I'm in a situation with no rest room. It's also, relieves some of the worry, which makes everything worse. :rolleyes:

Yes! Definitely the worrying makes it that much worse! That was my next question. It's like a vicious circle! I don't understand how things can ever get better when things are constantly changing? I've been tempted to try a laxative every morning to clear things out and then immodium through the day to actually be able to have some sort of life.

Yes, I have eliminated dairy other than lactose free milk and lactose free yogurt. I wonder if there is something in those other than lactose that would be causing this?

Lisa Mentor
Lisa
Posted

I wonder if there is something in those other than lactose that would be causing this?

Yes, it's possible. But, first make sure you are 100% gluten free (as much as humanly possible) for some time, before you start to suspect other issues. Revisit your meds, lotions, lipstick, scratched pots and pans, shared toaster, cooking non-gluten free foods, kisses... etc. Gluten can be very sneaky! <_<

ciamarie Rookie
ciamarie
Posted

When you mentioned grapes, the first thing I thought was sulfites, since I've been having to avoid that as well as gluten (and soy and msg). See here: Open Original Shared Link

1desperateladysaved Proficient
1desperateladysaved
Posted

Grapes have yeast naturally in/on them. I learned this picking grapes in an orchard. I won't tolerate grapes. But I see that one time you did.

Well, I am about 3 months in and dealing with the same questions. What did it and why?

Diana

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ms.frustrated Newbie
Ms.frustrated
Posted
  • Author

Yes, it's possible. But, first make sure you are 100% gluten free (as much as humanly possible) for some time, before you start to suspect other issues. Revisit your meds, lotions, lipstick, scratched pots and pans, shared toaster, cooking non-gluten free foods, kisses... etc. Gluten can be very sneaky! <_<

What about BBQ's?

Lisa Mentor
Lisa
Posted

What about BBQ's?

You mean going to BBQ's?

It takes a while to learn what may have gluten or not. And you have to know your environment. Generally, I would eat before you go, bring a dish to share (gluten free) or bring your own food.

LauraB0927 Apprentice
LauraB0927
Posted

I often wonder if my sensitivities are changing too - I never had GI symptoms before my diagnosis and could eat whatever I wanted, keep it mind I was drinking about a gallon of milk every day and a half. But now things are different and I'm either getting CC'd or I'm developing new sensitivities, but I just cant put my finger on it. I'm also trying to keep in mind that it could also be my body's healing process, as I'm only 4 months into being gluten free. Whatever it is, its frustrating. Not that I would EVER do this, but at times I get so frustrated that I almost want to eat something like pizza or bread just to see what a purposeful, real glutening feels like so I can weed out other symptoms/foods. But I wouldn't feed myself anti-freeze or bleach, so I won't eat gluten. Cant do that to my body. I hope you can figure it out soon and start feeling better!!! You'll be in my thoughts...

  • 2 weeks later...
Ms.frustrated Newbie
Ms.frustrated
Posted
  • Author

I often wonder if my sensitivities are changing too - I never had GI symptoms before my diagnosis and could eat whatever I wanted, keep it mind I was drinking about a gallon of milk every day and a half. But now things are different and I'm either getting CC'd or I'm developing new sensitivities, but I just cant put my finger on it. I'm also trying to keep in mind that it could also be my body's healing process, as I'm only 4 months into being gluten free. Whatever it is, its frustrating. Not that I would EVER do this, but at times I get so frustrated that I almost want to eat something like pizza or bread just to see what a purposeful, real glutening feels like so I can weed out other symptoms/foods. But I wouldn't feed myself anti-freeze or bleach, so I won't eat gluten. Cant do that to my body. I hope you can figure it out soon and start feeling better!!! You'll be in my thoughts...

Thank you! It's definitelyl a roller coaster ride. It is also tough when some symptoms happen right away and others take a couple days. How do you know what it actually was that bothered you? I'm just going to keep trying and look forward to the day when things get back to "normal". One day at a time!!!

Ms.frustrated Newbie
Ms.frustrated
Posted
  • Author

You mean going to BBQ's?

It takes a while to learn what may have gluten or not. And you have to know your environment. Generally, I would eat before you go, bring a dish to share (gluten free) or bring your own food.

Those are good tips but I was thinking more about when you said CC can happen while sharing pots and pans while cooking for my family, having my own toaster and pots and pans, etc.. does that go for bbq's too?

Persei V. Enthusiast
Persei V.
Posted

I kind of made a list of safe foods I can eat, no matter what my state is. Before I knew I had GI, I could eat three slices of bread + a handful of cookies before getting sick and now I get glutenated by cross contamination...

So whenever I feel bad, I go back to eating only those foods, that I know for sure that aren't doing any harm and wait for the sunshine to come. I don't stay ill for too long, though. Only three days maximum.

bartfull Rising Star
bartfull
Posted

Those are good tips but I was thinking more about when you said CC can happen while sharing pots and pans while cooking for my family, having my own toaster and pots and pans, etc.. does that go for bbq's too?

You mean is your BBQ grill contaminated? Probably. If you ever toated buns on it, used BBQ sauce, seasonings, or even margerine on whatever you cooked on it in the past. Most people either buy a new grate for their grills or use foil so their food doesn't touch the grate.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will...
    2. Jacki Espo
      - Jacki Espo replied to CDFAMILY's topic in Related Issues & Disorders
      5

      Covid caused reoccurrence of DH without eating gluten

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure.
    3. Mari
      - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      1

      New Celiac Mama in My 30s

      Hi Tiffany. Thank you for writing your dituation and circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines. Way back when I was in my 2...
    4. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      My only proof

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but...
    5. knitty kitty
      - knitty kitty replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

      Fascinating.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,957
    • Most Online (within 30 mins)
      7,748
    Dogdad21
    Newest Member
    Dogdad21
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does anyone here also have Afib

      By Scott Adams · Posted

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.