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Will My Daughter Be Able To Have Children Of Her Own With This.disease.

for my daughter

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for my daughter Newbie
for my daughter
Posted

I have a daughter who just found out she has Celiac Disease. She is berg upset and is wanting to know if she will be able to have her own children one day, and if the baby will then carry the same Disease? I would love all the in put on this subject please and thank you so much.

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tarnalberry Community Regular
tarnalberry
Posted

As long as she is following the gluten free diet, her fertility will not be impacted by having celiac.

It's genetic, so she can pass the genes on to her children, but that is not a guarantee they will develop celiac disease. It requires both the genes AND a trigger. And even if she does, it's not the end of the world to eat gluten free.

JillianLindsay Enthusiast
JillianLindsay
Posted

I have celiac disease and am currently 29 1/2 weeks pregnant and very healthy, and there are lots of other moms on the board :) your daughter may or may not pass it on, but she can certainly have healthy children in her future if she so desires. There is a leaning curve, but living gluten-free is fairly easy once you get used to it. Good luck to you and your daughter!

BitterGrad Newbie
BitterGrad
Posted

I just posted on another thread but my sister and I have kids and went through pregnancies without being diagnosed! We weren't gluten free while pregnant because we didn't know. Having children with Celiac disease is completely possible. My sister has 3 kids and I have 2. In both our cases, only one child has celiac (both boys).

upwitht21 Rookie
upwitht21
Posted

I have 2 beautiful children and one on the way. They were both born before I was diagnosed and both have celiacs as well.

  • 2 weeks later...
SmileyKylie Rookie
SmileyKylie
Posted

We spent 3 years going thru infertility treatment before we discovered the problem was my celiac's disease. After 30 days 100% gluten free, we conceived our first child NATURALLY! Not only can she get pregnant, many of us find it fixes our infertility :)

  • 1 month later...
megsybeth Enthusiast
megsybeth
Posted

I have two wonderful boys I conceived before being diagnosed, though I believe I've had celiac since I was at least six. I think as long as she stays healthy and on the diet she should have every reason to expect to be able to conceive and have healthy babies. My first born is celiac, which is how I came to my diagnosis, but I am thinking about having a third and the thought of having another child with celiac doesn't really phase me. Maybe I'm too early in my diagnosis to have it hit me very hard but I don't find the diet to be that big of a deal.

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1desperateladysaved Proficient
1desperateladysaved
Posted

I had one misccarriage and after that 5 healthy births when I had undiagnosed celiac. After that I had 12+ years of infertility. I think it is possible to have babies with celiac. You want healthy ones though, so follow the diet. I didn't know I had celiac at the time.

modiddly16 Enthusiast
modiddly16
Posted

I've been a celiac for 9 years and am 39 weeks pregnant today. As long as she follows her diet and stays healthy, she should have no problems having children. Also, there is no way of knowing if the child will have celiac...it's a trial and error process once they start eating solid foods.

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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