Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cc'd With Dh


jlaw

Recommended Posts

jlaw Apprentice

So I'm about a month into the whole gluten-free thing. Actually I think it's a month today! I'm prepared for this to take a good while. But I'm thinking, while my skin is still quite bad and since my gastro symptoms were never very acute, how can I even tell if I'm being cc'ed? For those of you who have been doing this longer, do your gastro symptoms become more obvious, or is it just your skin that will react?

For now my plan is to be as super careful as I can till I can clear my skin, and hopefully it will be more obvious if I'm being cc'ed. Any thoughts? Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

Are you watching your iodine intake?

Read the DH threads about iodine and DH.

If you react to iodine, you can be perfectly gluten-free and still have skin flares if you eat high iodine foods like seaweed.

squirmingitch Veteran

Even low iodine you can still have dh flares until the IgA gets out of your skin. NSAIDS make my dh go gonzo! Stress makes flare ups.

We are eating nothing from a can. No processed foods unless you count frozen veggies & mostly we eat fresh fruits & veggies. We only get stuff that is batch tested, certified gluten free. Most of my flours, nuts, flax seed, chia seed, organic nut butters I order from Nuts.com.

We do NOT eat out. We are doing everything we can to make sure we can not be cc'd. There is no question. I can't tell you what reactions GI or otherwise that either of us get. I did get cc'd back in Jan. from some canned refried beans & I did have some GI stuff from that but it may have been a general fluke as to the GI as I was also eating some stir fry veggies that were partially cooked & have found on several occasions where I get GI reactions if certain veggies are not well cooked --- such as Bok Choy, & sweet red bell peppers so maybe the GI in Jan. was from something like that. I never had much GI symptoms either pre-gluten-free.

squirmingitch Veteran

I wanted to add to be sure & check the frozen veggies bags to make sure they aren't done in a shared facility. Eatmeatforgood found some that said that. I always check to make sure.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748

    ZENken
    Newest Member
    ZENken
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.