Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac In A 16 Month Old Baby

Harry's dad

Recommended Posts

Harry's dad Newbie
Harry's dad
Posted

Hi All,

I'm new here looking for some advice!! my son has just got a + result after 2 week in hospital in his blood tests for celiacs now going for a biopsy he has lost a lot of weight and refused food and fluid he deteriorated quickly and now only weighs 21lb should be 30lb if you follow his growth chart and is so lethargic and seems to have no energy at all wont even stand up or crawl about :( how long does it take before he puts weight back on and starts eating and drinking???? also any advice on meals for a baby that are gluten free would be greatfully appriciated! thanks in advance Mike

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Hi All,

I'm new here looking for some advice!! my son has just got a + result after 2 week in hospital in his blood tests for celiacs now going for a biopsy he has lost a lot of weight and refused food and fluid he deteriorated quickly and now only weighs 21lb should be 30lb if you follow his growth chart and is so lethargic and seems to have no energy at all wont even stand up or crawl about :( how long does it take before he puts weight back on and starts eating and drinking???? also any advice on meals for a baby that are gluten free would be greatfully appriciated! thanks in advance Mike

Hi Mike and Welcome!

I expect you're in the overload mode about now. But, it will be okay. You have found a great place here. Read, read and read some more.

I would seek out, through your hospital a dietitian who can help you craft your menu. If they are no help, come back here. Stick to well cooked whole foods and no processed foods. Some gluten free breads and pastas can be added.

I would switch to almond milk, as dairy can be an irritant until healing can happen.

And Dad, Mom...check yourselves, as the tendency for Celiac Disease is inherited.

I'm so glad you have an answer and hopes for a speedy recovery. I think you will find it dramatic. :)

Gemme Rookie
Gemme
Posted

Hi All,

I'm new here looking for some advice!! my son has just got a + result after 2 week in hospital in his blood tests for celiacs now going for a biopsy he has lost a lot of weight and refused food and fluid he deteriorated quickly and now only weighs 21lb should be 30lb if you follow his growth chart and is so lethargic and seems to have no energy at all wont even stand up or crawl about :( how long does it take before he puts weight back on and starts eating and drinking???? also any advice on meals for a baby that are gluten free would be greatfully appriciated! thanks in advance Mike

Welcome

Good Luck and speedy recovery.

mommida Enthusiast
mommida
Posted

There could be an associated pain with eating issue. There are proffessional eating coaches. Patients who have been on feeding tubes sometimes need to learn how to eat again.

My daughter was diagnosed at 16-17 months. She was later diagnosed with Eosinophilic Esophagitus when she was 6. From what I remember she was so sick (hospitalized for dehydration) she didn't want to eat anything. So we started with chicken broth and rice. Then she was just hungry and wanted to eat after she realized she wasn't go to vomit, "D", and stomach cramp and bloat.

Congratulations on diagnoses! Knowing what the problem is, makes it so much easier to fix. :) Keep a food journal. It will help find any mistakes in the gluten free diet and track down any other food sensitivities. (While my son (also put on a gluten free diet) was unable to eat carrots, but his gut healed and now he has no problem with them)

nvsmom Community Regular
nvsmom
Posted

My stomach aches and pain stopped after about a week but my symptoms presented differently than your son's did. From what I've seen in other posts, if your child will eat, they often start putting on a bit of weight within a month or two.

Good luck and best wishes. I hope your little guy feels better soon.

L's Mom Newbie
L's Mom
Posted

Hi Mike, Sorry to hear about your little boy. My daughter was diagnosed at the same age and at the time had fallen off the growth chart (less than 1% percentile) and was not walking. We just assume she was going to be a "late walker" but in retrospect she was just in too much pain. After we got her diagnosed the vomiting and diarrhea subsided within a week and within 2 months she was back on the growth chart (20th percentile) and walking. AS for eating, I am sure once he starts feeling better his appetite an curiosity for food will return. As for foods, we did very mild foods at first: mac and cheese (rice or quinoa noodles), risotto, pancakes, scrambled eggs, homemade meatloaf or meatballs, burrito bowls, gluten-free certified oatmeal, polenta, etc. I am sure right now it seems like there is nothing to eat but really we eat the same meals as everyone else - just gluten-free versions. We also let her snack on raisins and chex mix as her iron levels were low. Feel free to reach out if you'd like. Best, Kristen

  • 3 weeks later...
Celiac Ninja Enthusiast
Celiac Ninja
Posted

Hi All,

I'm new here looking for some advice!! my son has just got a + result after 2 week in hospital in his blood tests for celiacs now going for a biopsy he has lost a lot of weight and refused food and fluid he deteriorated quickly and now only weighs 21lb should be 30lb if you follow his growth chart and is so lethargic and seems to have no energy at all wont even stand up or crawl about :( how long does it take before he puts weight back on and starts eating and drinking???? also any advice on meals for a baby that are gluten free would be greatfully appriciated! thanks in advance Mike

I'll keep your little one in my thoughts, is he eating gluten free in the hospital? I'd ask the hosptial chef directly if he is preparing the gluten free foods on a gluten free cutting board, clean kitchen area and oven. I hope they do know what they are doing. I do hope you can get your little one out of the hospital and home where recovery will be easier on him (home is usually a safe place).

Easy foods may be just vegetables that have been steamed in a pot on the stove top or in the oven and mushed up, also fresh fruits like pears or apple can be mushed up as well as cooked plain chicken or cod fish. The basics and soft is key for a cranky and sore digestive system. There are also childrens vitamins but make sure they are gluten free, call the company number or research them online. Usually health food stores have gluten free vitamins and should have them for kids.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted

My 28mo old daughter isn't celiac, but I am, and she eats gluten free with me. She eats what I eat. So, we do stir fries and soups and grilled meat and veggies.

Tonight I pan-fried chicken tenderloin (a rarity around here) and served a green salad with that. (She's warming up to salad, but slowly. :) )

For lunch the other day we had a bean salad.

Last night we had steak and rice and fruit for dessert.'

Lentil soup is a big hit too.

Earlier this week we had chicken stir fry with carrots, broccoli, bell pepper, garlic and roasted sesame oil.

For breakfast today we had gluten-free oatmeal, but you can try other gluten-free hot cereals before that one.

The other morning she had a smoothie.

Often it's beans and eggs. (She likes eggs!)

And even more often it's muffins. (I make mine out of almond flour. It doesn't help that we also read "If You Give a Moose a Muffin" a lot. ;) )

Lunch varies, but is often leftovers from dinner.

I made a soup of rice noodles (asian style), tiny frozen shrimp and veggies, and broth which she liked.

Sometimes it's just fruit and a rice cake (or rice tortilla) with peanut butter).

Occasionally a gluten-free pizza.

Sometimes veggies and hummus.

And lots and lots of fruit for snacks. :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Son's legs shaking

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine. Legumes (beans) do contain thiamine. Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and Cobalamine B12 are mostly found in meats. Meat, especially organ...
    2. lizzie42
      - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Son's legs shaking

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc. Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food....
    3. Scott Adams
      - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
    4. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Son's legs shaking

      @lizzie42, You're being a good mom, seeking answers for your son. Cheers! Subclinical thiamine deficiency commonly occurs with anemia. An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal. Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps...
    5. Scott Adams
      - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,869
    • Most Online (within 30 mins)
      7,748
    MaryannHall
    Newest Member
    MaryannHall
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      Anti-endomysial Antibody (EMA) Testing

      By Scott Adams · Posted

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      @lizzie42, You're being a good mom, seeking answers for your son.  Cheers! Subclinical thiamine deficiency commonly occurs with anemia.  An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal.   Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps, as well as aggression and irritability, confusion, mood swings and behavior changes.  Thiamine is essential to the production of neurotransmitters like serotonin and dopamine which keep us calm and rational.   @Jsingh, histamine intolerance is also a symptom of Thiamine deficiency.  Thiamine is needed to prevent mast cells from releasing histamine at the slightest provocation as is seen in histamine intolerance.  Thiamine and the other B vitamins and Vitamin C are needed to clear histamine from the body.  Without sufficient thiamine and other B vitamins to clear it, the histamine builds up.  High histamine levels can change behavior, too.  High histamine levels are found in the brains of patients with schizophrenia.  Thiamine deficiency can also cause extreme hunger or conversely anorexia.   High carbohydrate meals can precipitate thiamine deficiency because additional thiamine is required to process carbohydrates for the body to use as fuel.  The more carbohydrates one eats daily, the more one needs additional thiamine above the RDA.  Thiamine is water soluble, safe and nontoxic even in high doses. Keep in mind that gluten-free processed foods like cookies and such are not required to be fortified and enriched with vitamins and minerals like their gluten containing counterparts are.  Limit processed gluten-free foods.  They are often full of empty calories and unhealthy saturated fats and additives, and are high in histamine or histamine release triggers.  It's time you bought your own vitamins to supplement what is not being absorbed due to malabsorption of Celiac disease.  Benfotiamine is a form of Thiamine that has been shown to improve intestinal health as well as brain function. Do talk to your doctors and dieticians about supplementing with the essential vitamins and minerals while your children are growing up gluten free.  Serve nutritionally dense foods.  Meats and liver are great sources of B vitamins and minerals. Hope this helps!  Keep us posted on your progress!
    • Scott Adams
      Bob red mill gluten free oats

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.