Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Follow Up With Doctor


kittty

Recommended Posts

kittty Contributor

After after having blood work done a couple of weeks ago, and coming back negative for celiac (because I've been off gluten for months before the test was done), I'm wondering what else I should explore with my doctor. I have a follow up appointment in two weeks. She has already said that she considers me gluten intolerant because of the evidence of switching to a gluten-free diet. But should I ask for more tests to see if I'm low on some nutrient levels? Is there a specific test or panel of tests I should ask for?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

Hi Kitty-

These are the tests my Celiac Doc recommended in additional to Full Celiac Panel - at Dx, at 6 months then annually thereafter:

Bs, D, K, Iron, Ferritin, Copper and Zinc

I've seen others suggest adding vitamin A to the list.

Good luck to you!

kittty Contributor

Hi Kitty-

These are the tests my Celiac Doc recommended in additional to Full Celiac Panel - at Dx, at 6 months then annually thereafter:

Bs, D, K, Iron, Ferritin, Copper and Zinc

I've seen others suggest adding vitamin A to the list.

Good luck to you!

Thanks a lot!

I had blood tests done a few years ago that pointed towards possible iron, magnesium, and B6 deficiency. I'm interested to see how different things are now.

heather806 Rookie

Along with the others GottaSki mentioned, have them check calcium and magnesium too. I've had major calcium problems. (hopefully soon to be resolved since I was diagnosed in June and have been gluten-free since then!) Good luck! Let us know how your tests come out.

nvsmom Community Regular

A thyroid check might be a good idea; TSH (thyroid stimulating hormone), T4 and TPOAb (thyroid peroxidase anibodies) will give you an idea if you have Hashimoto's hypothyroidism, which can show up in celiacs and has many of the same symptoms. A hypo result would be high TSH, low/normal T4 and high TPOAb.

Best wishes.

kittty Contributor

A thyroid check might be a good idea; TSH (thyroid stimulating hormone), T4 and TPOAb (thyroid peroxidase anibodies) will give you an idea if you have Hashimoto's hypothyroidism, which can show up in celiacs and has many of the same symptoms. A hypo result would be high TSH, low/normal T4 and high TPOAb.

Best wishes.

My mom had thyroid problems (hyperthyroid) so they check me for thyroid pretty much every time I have bloodwork done, whether I ask for it or not. It always comes back normal, thankfully!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wends replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Inconclusive results

    2. - nanny marley replied to nanny marley's topic in Related Issues & Disorders
      7

      Manitol and mri

    3. - nanny marley replied to nanny marley's topic in Related Issues & Disorders
      7

      Manitol and mri

    4. - Scott Adams replied to nanny marley's topic in Related Issues & Disorders
      7

      Manitol and mri

    5. - nanny marley replied to nanny marley's topic in Related Issues & Disorders
      7

      Manitol and mri


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,790
    • Most Online (within 30 mins)
      7,748

    Lori Jean
    Newest Member
    Lori Jean
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wends
      https://onlinelibrary.wiley.com/doi/10.1111/joim.70025 Very recent (September 2025) Finland study may be of interest. Borderline negative and low positive ant-TTG, with negative and positive EMA tests in patients diagnosed with Celiac Disease.
    • nanny marley
      Thanks for the list too makes me realise why I still get symptoms after cutting gluten , all that reading has just made sense to why I'm still struggling , thankyou Scott Adams very insightful , I've been baking to and there is xanthum gum in the flour , I understand now why I still have issues with that too, and ive had to cut dairy also , i had a terrible flare few months ago and my throat also was very irritable and I had sinuses issues all makes sence 👍
    • nanny marley
      Thankyou yes I read up on it beforehand , because or my trapped nerve when I have a bowel flare up it's impossible to keep still  which I will have to do for the MRI ,and it's so painful , and I know if this is what I'm thinking it to be it will cause me terrible issues , sometimes I get to the point where I just want to diagnose myself and act accordingly, because I've been at this year's , and I clearly have all the symptoms , it's so frustrating when you have all this going in and still feel no further ahead 😳
    • Scott Adams
      It looks like "mannite" is another name for "mannitol": https://en.wikipedia.org/wiki/Mannitol You are correct that it can trigger IBS-like symptoms, as we recently did an article on this: I'm not sure if there is a way around this, as it is likely needed for the test. Perhaps contact your doctor to see if there might be an alternative?
    • nanny marley
      Oral drink: You will be given a solution of mannitol mixed with water to drink over a period of about 30-60 minutes this is what it says it is ,?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.