Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feel Like I'm Just Starting gluten-free

pricklypear1971

By pricklypear1971
in Coping with Celiac Disease

Recommended Posts

pricklypear1971 Community Regular
pricklypear1971
Posted

Okay, I'm having a hard time recovering from that bug we had last week. And yes, I'm sure it was a bug because my son and I got sick together.

The bug itself was mild - cramping, d, nausea. But it will NOT go away.

To make matters worse at my doctors visit I found out my iron and d are still in the toilet. Technically in the "normal" range but still low, especially iron stores and d. So low they are making me produce excess reverse t3, so I am stuck in hypothyroid hell...

Sigh.

So, I started taking my iron and d again. She wants me to do 2 weeks of 20k d, and right now I am sick over doubling my iron to 50 and taking 4k of d.

She also wants me to take 2 digestive enzymes and 1 probiotic per meal...which I think is excessive.

I have spent the day wanting to vomit and rushing to the bathroom. No d but horrid gas/bm issues (sorry, tmi).

My stomach wasn't this upset when I STARTED gluten-free. This is terrible!!!

I think I'm quitting the d and iron for a few days. I sent my doctor a message about d and iron injections. I mean, why keep taking them if they barely work??? I'm ready for a shot of d. I know iron isn't as easy....

Help!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Newbee Contributor
Newbee
Posted

I'm sorry to hear this pricklypear. That sounds awful! I wish we could all just get better and stop suffering. Unfortunately, I don't have any words of wisdom. But, I feel for you. Hang in there!

shadowicewolf Proficient
shadowicewolf
Posted

You know what? I'm still tired from last week but my d and stomach issues finally stopped. I still vote virus. I noticed that in previous years when i would get one it would take a few days but never this long.

pricklypear1971 Community Regular
pricklypear1971
Posted
  • Author

You know what? I'm still tired from last week but my d and stomach issues finally stopped. I still vote virus. I noticed that in previous years when i would get one it would take a few days but never this long.

How long did yours go, overall? My son's seemed to disappear by Saturday - 6 days. I think mine started last Monday, so I'm a week and a half??? Ugh.

shadowicewolf Proficient
shadowicewolf
Posted

about 8 days :( Not fun, not fun.

pricklypear1971 Community Regular
pricklypear1971
Posted
  • Author

Maybe I'm just old and weak.

I don't feel the same as I did last week, but I do feel like my gi system has been gutted.

shadowicewolf Proficient
shadowicewolf
Posted

I'm thinking its a more potent bug :( They do change and, dare i say it?, evolve as time goes on.

On a side note, i saw my grandparents today and they said that everyone seems to be getting it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted
  • Author

I'm thinking its a more potent bug :( They do change and, dare i say it?, evolve as time goes on.

On a side note, i saw my grandparents today and they said that everyone seems to be getting it.

Yeah, I get the mutant stomach bug. Figures.

I hope "everyone" stays away so I don't get it again.

pricklypear1971 Community Regular
pricklypear1971
Posted
  • Author

So, today is better.

Last dose of d and iron and digestive enzyme and probiotic was yesterday around 11 am. Not doing that today.

This morning lots of bathroom visits but no gas like before. No nausea. Seems to be calming down.

So....I wait.

bartfull Rising Star
bartfull
Posted

I had that bug. I never had nausea with it but plenty of D and lots of bloating and gas. That was several weeks ago and I am still having some bloating and gas that comes on later in the day. I was thinking it was food related, but now I'm thinking it's lingering effects of the bug. I haven't been eating anything that should cause it. Maybe this thing likes to stick around in the guts of celiacs.

pricklypear1971 Community Regular
pricklypear1971
Posted
  • Author

I think the nausea was from the pills - primarily iron.

I must admit I think my digestive enzymes were giving me problems, though, which is weird since I've been on them for years and they are definitely gluten-free.

squirmingitch Veteran
squirmingitch
Posted

I'm so sorry Prickly. UGH! A bug!

My iron is okay so I can't speak for those but my D is low so the doc wanted me to take mega doses. I can't do it. Not at that high of a dose. Gives me indigestion like you've never heard of so i had to cut back on it. I am taking a gluten-free liquid & I've experimented & am sure that's what was doing it. So I imagine the combo of iron & D for you is overwhelming.

Thankfully I seem to have missed the bug.

pricklypear1971 Community Regular
pricklypear1971
Posted
  • Author

So I looked it up and I've diagnosed myself with bacterial IBS.

Yeah, that's where I'm at at 10:30 pm in Friday night...

I lead an exciting life.

pricklypear1971 Community Regular
pricklypear1971
Posted
  • Author

So, improving.

Yesterday only 1 bathroom visit after meals.

Today, no visit after breakfast!

I have hope.

squirmingitch Veteran
squirmingitch
Posted

YAY! Hope is good. Sounds like you're on the mend.

pricklypear1971 Community Regular
pricklypear1971
Posted
  • Author

I spoke too soon. Had a bout of it and nausea this afternoon.

One is better than three, I guess.

squirmingitch Veteran
squirmingitch
Posted

Ohhhhhhhhhhhh, I'm so sorry to hear that.sad.gif 1 is better than 3 but none is better than 1. Hoping tomorrow brings better news.

pricklypear1971 Community Regular
pricklypear1971
Posted
  • Author

Well, more progress. No nausea and had a day if something resembling "normal" potty habits. Managed to clean house a bit and run myself ragged trying to do 100 things I haven't done for two weeks.

Tomorrow is the true test - appointment with the personal trainer. Here's to hoping I don't have to rush to the ladies room.

I so wish I knew if this was all the virus or if I now react this badly to taking supplaments. I literally hurt when I think if trying to start them up again.

squirmingitch Veteran
squirmingitch
Posted

Hoping you have good news now. I know, the guessing is a PITA! You don't know if it's this or that or the other or none at all. Makes one nuts!mad.gif

pricklypear1971 Community Regular
pricklypear1971
Posted
  • Author

Yes, getting better. Monday was pretty normal, yesterday better, today I worked out with my trainer and didn't die.

So far no nausea or d.

Still waiting to start back my supplaments.

Big chicken.

squirmingitch Veteran
squirmingitch
Posted

I understand that! When this last big dh outbreak started I had also just begun taking digestive enzymes - gluten-free of course. And I stopped everything when this outbreak happened. I thought I was beginning to heal & no new lesions then I began back on the enzymes yesterday. Last night the back of my upper thigh broke out in about a 6" x 5" area. Soooooo now I wonder & am a big chicken about taking the enzymes again. Or is it all coincidence? That's the trouble --- this stuff screws with your mind so bad.mad.gif

shadowicewolf Proficient
shadowicewolf
Posted

I understand that! When this last big dh outbreak started I had also just begun taking digestive enzymes - gluten-free of course. And I stopped everything when this outbreak happened. I thought I was beginning to heal & no new lesions then I began back on the enzymes yesterday. Last night the back of my upper thigh broke out in about a 6" x 5" area. Soooooo now I wonder & am a big chicken about taking the enzymes again. Or is it all coincidence? That's the trouble --- this stuff screws with your mind so bad.mad.gif

No kidding. I have a hard time taking anything without thinking "OMGWHATISTHISGONNADOTOME?!?!?". Then my stress goes up, etc....

bad cycle is bad.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748
    ZENken
    Newest Member
    ZENken
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Wheatwacked
      Outgrow celiac?

      By Wheatwacked · Posted

      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      New Celiac Mama in My 30s

      By Scott Adams · Posted

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      New Celiac Mama in My 30s

      By knitty kitty · Posted

      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.