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Type 1 Diabetes


Guest zipy

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Guest zipy

My daughter was just dxed with type 1 diabetes, she's 2 1/2. We've been in the hospital for the last week. The edocrinologist (sp?) suggested there's a genetic predisposition to autoimmune disorders. I have celiac. dxed 2 mos ago...They drew the blood to test her for celiac in the hospital, we should get the results shortly...how much of a chance is it that she has celiac if she has diabetes and a parent with celiac? anybody know? The diabetes page I was looking at said there's a 1:20 chance of someone having type 1 diabetes and celiac, but I didn't know if that's the same if you already have a family member with celiac.

I'd love anybody with any knowledge to fill me in! I'm feeling overwhelmed!

Erin


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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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