Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free


ChrisMathis

Recommended Posts

ChrisMathis Newbie

I'm curious to know how long it took for you all to start noticing health improvement once you cut gluten from your diet? I won't have my endoscopy for at least a month and am considering cutting gluten for a week just to see if I notice any difference. I have constant muscle aches and have been diagnosed with benign fasiculation syndrome and have read that this could be caused by my low Vit D. As I posted earlier my blood tests came back negative so if I respond positively to cutting the gluten then I can always load up again before I schedule the endoscopy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

You might have trouble going back on gluten after being off it for even a week. Our bodies react more strongly to it when we've been away from it for a while. So yeah, you might notice a positive change in the way you feel in only a week, but I doubt it would be worth the negative change in the way you feel when you start eating it again.

Take this time to enjoy all of the gluteny things you will never be able to eat again. Even though we eat well, there are some things that can't be duplicated. Have some donuts! Have some clamcakes. If you know someone who makes homemade bread like my Mom used to do, have a whole loaf, fresh out of the oven. Put lots of butter on it while you're at it in case you develop an intolerance to dairy.

And then, once you go gluten-free, if you can, learn to cook so you can make your own substitutes instead of having to buy them all like I (the most incompetent cook in the world) do.

Celiac Mindwarp Community Regular

I'd agree it may be hard to back on again. I had a short break gluten-free and then ate it again after the lab lost my results (grr). It was much worse much more quickly when I ate gluten the second time.

shadowicewolf Proficient

You need to stay on the gluten or risk a false reading :/

eh, it was a few weeks i think.

KikiB Explorer

Don't do it. I went off gluten for a week after my blood tests, not realizing I needed to be on it for the endoscopy. I'm much more sensitive now even after that short time. Not feeling well at all.

So don't do it. Just wait until after the endoscopsy.

hubicka Newbie

Don't do it. I went off gluten for a week after my blood tests, not realizing I needed to be on it for the endoscopy. I'm much more sensitive now even after that short time. Not feeling well at all.

So don't do it. Just wait until after the endoscopsy.

I agree, I had stopped eating it for 9 days and then dr told me i had to eat it again for 6 weeks before I could have a blood test/endescopy and when I started eating it again i felt awful, especially the first few days back on it

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,021
    • Most Online (within 30 mins)
      7,748

    maltawildcat
    Newest Member
    maltawildcat
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.