Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wanting To Support My Beloved.


Andres Rosales

Recommended Posts

Andres Rosales Explorer

I just joined maybe 2 or 3 minutes ago. I joined because my beloved was diagnosed with Celiac TODAY. When I found out, I was really worried that her life may be in danger and all sorts of other things along those lines. I immediately began trying to find out as much as possible in terms of diet, symptoms, risks, lifestyle choices, and nearly every other aspect of her life that may be effected by this disease.

I'm sure my use of "beloved", in reference to the young woman I am courting, may have confused some people. We've decided to use this word to relate to each other by, because it is so different from the norm of today's society, and that's how we want our relationship to be; our "courtship" is a serious relationship, with the intention of marriage in a little under 2 years. We want the world to not see us for our age or the fact that we're together, but rather that we're two people growing to love each other, and wanting to do it right. That being said, I want to begin learning how to help her with this in any way I can, so that by the time we're married, it'll be second nature and it'll just be our way of life. It will also probably improve my own eating habits/diet, so it's probably in my best interest to begin learning about it right now anyways.

If anyone has information they think would be good for me to have as well, please share! I would be very happy to receive any advice from people who have already been traveling down the path which I've just begun walking towards.

Thank you all and God Bless,

-Andr


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

What a "beloved" you are for making the time and effort to learn how you can support her through this difficult transition in her life. And yes, it is difficult, because you have to change the whole way you think about food. Whereas before you could just grab anything that looked appetizing, now the first question has to be, "Is it gluten free?" And frustratingly, there is no way most often when you are outside the home of answering that question. It is relatively easy to turn the home you are going to make together into a gluten free zone, but while your beloved iis still living with her parents(if she is) it is going to be difficult to get them to understand how to keep her safe.

The first thing you should do is read Newbie 101 on this board, as if it were you who had the condition (I always hesitate to call it a disease because if you don't eat gluten you are normally well) because this way you will understand her reactions and what she is going through. It will help if you don't try to take her to restaurants that don't have gluten free menus (Mom and Pop Diners are out for you), and it will also help if you don't go to restaurants at all until you have both mastered the basics of the gluten free diet. To do this, it always helps if you start off eating whole foods only (with the exception perhaps of some Udi's bread, some Tinkyada pasta, perhaps some frozen gluten free waffles if you are so inclined). Corn tortillas are excellent substitutes for bread and there are brown rice wraps (try Trader Joe's) that are useful for making burrito or pita type foods. But shop the outside of the market, meats, vegetables, fruits of all kinds, maybe try some you haven't even tried before (you can always google, e.g., swiss chard recipe gluten free). Then add in rice, beans, nuts, seeds. Try to avoid the substitute gluten free foods as much as possible at first - it is just too much label reading, as is all the processed food in boxes and cans. Save that for later.

Once you have got that far, come back and ask whatever questions you need, and encourage your beloved to come on here and post too. There is always someone with an answer to a question. :)

Welcome to the board, Andres, and good luck to you both in your future life together.

1desperateladysaved Proficient

First, I would like to thank you for your caring for your beloved. Also, for wanting to do your courtship right. While first on the diet she will be healing and during that time the body could be demanding for a time. It is also an emotionaly hard time. She needs to understand your commitment is 100%. It is difficult, but she is in a good spot having found out fairly young(?) and having you to back her up. Please help shield her from the gluten that can hurt her. That can mean constantly having the mind engaged to possible dangers. Please do read up on everything needed for treatment.

Next, I want to wish you strength and health from the Lord for both of you. I would also like you to have other friends that support and understand celiac.

If you have any more questions feel free to post again.

Diana

GottaSki Mentor

Welcome Andres!

You already have what you need most in order to help. Your desire to learn the ins and outs of her diagnosis is the most important part of tackling this issue.

As Mushroom mentioned start with the Newbie 101 info. Read as much as you can and ask any questions - it will speed the learning curve. If she doesn't already know of this board, make sure your beloved is aware of it so she can find help processing the transition to living gluten-free!

I'll leave you with what melted my heart when I was newly diagnosed. I very much disliked causing a fuss when ordering at restaurants. I was a bit embarrassed, but it was more a matter of growing up with a parent that complained every time we dined out so I really disliked being in a position that seemed like I was acting the same. Anyway...my husband learned the proper way to order safely for me...when I would not speak up, he did it for me. He made it very clear that my health was important to him and that the restaurant needed to use great care with my food. He also helped family and friends understand the need for safe food. Should your "beloved" not want to make a fuss, do it for her.

Best wishes to you both, along with hopes for speedy healing for her :)

Andres Rosales Explorer

Thank you all for your kind messages :). I was very encouraged by your support of my motion to support my love in this. I understand that it will be difficult at first for her and I to both adjust. She is still living with her parents at this point, and I'm sure that they're already learning about the different ways to protect her, as I am. Her mom is a stay-at-home mom who makes herbal remedies and such (the legit kind, not drugs haha), so I'm sure she's already on top of this. We are both still pretty young; herself seventeen and I eighteen, both this year. I'm planning to go gluten-free as well... I can't remember if I put that up in the original post--*checks*--nope guess not lol. This is going to be an even bigger change for me than it is her I believe. She already almost only ate healthy food, whereas I myself am quite a junk food fanatic ^.^; . But I'm praying for strength and diligence. I know it will pay off in the end. I'm thinking this will almost definitely improve my health also so I'm looking forward to that as well :).

Thanks again to all of you who replied to my original post. I look forward to hearing from you and other users in the near future.

-Andrés Rosales

Huggenkiss27 Rookie

You've found a great place for advice! I do not post often but I spend a good bit of time reading through the posts. There is so much information.

I am glad to hear of your support for your Beloved. My boyfriend has been beyond supportive when we found out about my diagnosis 5 months ago. He suggested when we moved to our new house about 2 months post diagnosis that it should be gluten free. He also went through everything in our house and threw it away if it contained gluten. He is gluten free at home and normally gluten free outside of the house as well. Most days I think he copes with it better than I do.

  • 1 month later...
Clintsbride Newbie

I am Lawana, Mom to Mary-Hannah (Andres' beloved). It has taken me a while to get over here and check out the forum. You can all imagine what a sweet surprise it was to read the posts that Andres wrote. I have been immersed in helping my daughter get rest and rein in her life to allow the rest her doctor recommended and revamping my kitchen (with help from Andres' mom) as well as preparing meals with excellent nutrition that taste good enough to tempt her still queasy tummy. Now I am here as well hoping to learn as much as I can from you folks.

Hi Andres. I finally got over here. I am so thankful that you are learning about Celiac. I am even more touched reading your posts. I look forward to learning more together. I am also looking forward to sharing our first gluten free Thanksgiving with you! BTW to Andres and the forum, I think I am seeing some improvements in the way Andres' beloved looks and feels already. It has just been a little over a month with only one accidental glutening. I think M-H is losing the dark circles. She is no longer cold all the time and though she is still sleeping 12 hours per day, she seems to wake up rested!!! I am thanking God for this diagnosis. I feel badly that we didn't figure it out years ago but I am thankful that she seems to be responding so well.

I would love any hints for moms changing over the entire family to gluten free. I also look forward to meeting you all.

BTW Dre' what are your favorite Thanksgiving foods?

Lawana


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 3 weeks later...
Andres Rosales Explorer

haha a bit late for the favorite foods, but I really loved being with you guys on thanksgiving : ) I had a wonderful time with Mary-Hannah and the rest of you guys ^_^ can't wait to see you all again!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748

    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.