Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Milk


GlutenFreex4

Recommended Posts

GlutenFreex4 Rookie

Can you please tell me if you stopped milk for a period of time to allow healing of the intestine? If so, for how long? Would it take longer for healing to occur on milk or is this a case-by-case situation? Milk and milk products are a big part of my son's diet and I would prefer not to have to take him off this unless absolutely necessary.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

Case by case. I removed it because it was irritating my throat when i would drink it (didn't remove cheese though). Reintroduced with no issues.

kareng Grand Master

I don't really drink milk but I eat cheese and yogurt, etc. I didn't take it out. I reduced it a bit. If I put cheese on my sandwich then none on my salad.

You could try to keep the milk in for a month and see if he is getting better. The reason is that the part of the intestine that gets damaged is the part that digests milk. If he only has a small amount of damage, he could be able to digest it OK. I don't think it effects the healing from Celiac but it could make you think nothing is happening if he has a problem digesting milk.

Google lactose in foods. Some cheeses, yogurts etc have a lot less than milk does. Maybe you could get the OJ with the calcium and he could still have cheddar cheese at one meal. Just reduce a bit.

Adalaide Mentor

A nurse practitioner advised me with no reasoning or solid advice behind it to cut out all dairy with the exception of yogurt which she told me to eat every day. She told me to read on the internet how to be gluten free and sent me home. I've always drank a few gallons of milk a week and while I cut back significantly I found I just couldn't stop. I went through dozens of milk substitutes but when all you want is a tall glass of cold white milk there is no substitute. Milk doesn't make me sick and frankly without a sound medical reason not to be drinking it I find the idea of not having it positively absurd.

SMDBill Apprentice

I've been lactose intolerant since birth. If lactose is the problem, have you tried switching him to Lactaid? I'm not a fan of white milk but to me, Lactaid tastes nearly identical. I use it daily now that I have celiac in order to start the healing. Is he lactose intolerant or can he process smaller amounts of lactose? It really depends on the condition. Milk causes severe D in me so I know when I have it that I'll pay the price. Lactaid has nearly solved that and I have not yet cut out milk in products, such as candy or baked goods. I use lactaid in mashed potatoes and other baked things that I make myself, but I still ingest if something has milk within it. The small amounts seem to not create an issue, but a glass of milk causes major problems.

Can you try cutting him down and substituting where possible? Have him try Lactaid? I drink a glass of milk every day and Lactaid was the answer. Soy was nasty to me and I couldn't adjust. Almond milk was ok. Lactaid was my answer, but others prefer the other varieties so you could experiment until you find his preference.

shadowicewolf Proficient

Lactaid does not taste similar at all >_< Waaaaay too sweet and watery and tastes off.

GlutenFreex4 Rookie

As far as I can tell, he has NO problem with milk whatsoever. He drinks at least a couple of glasses everyday, has it on his cereal (now gluten free) and loves cheese. I would only remove it from his diet if I had to! I am anxious for him to start growing and if this helped him, we definitely would give it a try.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SMDBill Apprentice

Lactaid does not taste similar at all >_< Waaaaay too sweet and watery and tastes off.

I must be a lucky one because I'm guessing my lactose intolerance kept me away from milk long enough to not remember exactly how pure white milk should taste. I gulped some Lactaid down last night and it met my memory of how milk used to be, but that memory is probably skewed from reality from the years of passing up milk. I drank the 2% variety and I'm not sure I could handle the taste of whole or skim.

shadowicewolf Proficient

Yeah thats probably the reason.

Mary5757 Newbie

Hi, I asked my dr a similar question. The milk does not cause further damage or slow down the repair but if they develop temporary lactose intolerance it will just create discomfort and it will be hard to tell if they are getting better. My daughter is currently lactose intolerant, if she consumes dairy she gets really fussy and irritable and uncomfortable. If your son seems to tolerate it fine then there is no need to remove it from his diet. The milk isn't causing the damage, it's just so hard to digest that those with a lot of damage experience pain when drinking it. Once the gut is healed the pain goes away (in some/many cases but not always). Good luck! I wasn't seeing much improvement on my daughter, but once I cut out dairy I noticed a lot of improvement. If you are noticing improvement without cutting dairy I'd keep it. No gluten and no dairy is hard!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,548
    • Most Online (within 30 mins)
      7,748

    Lunaluv
    Newest Member
    Lunaluv
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.