Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Chronic Sinusitis


Trtnop

Recommended Posts

Trtnop Newbie

Has anyone had chronic sinusitis? I have had two sinus surgeries in four months. My ENT mentioned he thought I might have an autoimmune disease. I had some blood work done and I had low IgG. They are doing some more testing. I have done some research, I have several of the celiac symptoms. Just wondering. Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SMDBill Apprentice

I do not have chronic sinusitis, although I have had a few bouts in the last few years. However, I had constant drainage that made me clear my throat constantly. I developed a few throat and sinus infections that were only killed by strong antibiotics. All my life I've been susceptible to strep throat, but not sure if that mattered back then that I now have celiac.

After about 4 days being gluten free I noticed I hardly had to clear my throat at all and the morning sinus drainage/blockage has minimized. When I got glutened a week ago my sinuses started to act up again and I was clearning my throat a lot. Those symptoms have since settled back down and the drainage is minimal. I'm guessing if you are gluten intolerant or have celiac, the sinus issue will change or disappear once you know and go gluten-free.

Are you gluten-free right now? If not it may be a good idea to see your gastro and get tested for celiac before going gluten-free. Going gluten-free will give you answers but it'd be best to find those answers after knowing the root cause.

Trtnop Newbie

I went on a gluten free diet for about two weeks. I noticed I did much better...no headaches, joint pain, less drainage, prickly skin, fatigue, etc. I am back to eating gluten....symptoms have returned. I don't want to go gluten free until all of my testing is complete....which should be mid November. I think my physician thinks I am crazy....but, something has to be going on....I have been feeling not like myself this past year!

SMDBill Apprentice

I had the rough skin and now I believe I had DH showing signs on my feet. I had these light brown "blisters" that I called them, but they were deep in the skin rather than surface blisters. They itched and were red around them. I also had daily headaches and occasional (monthly) migraines. Fatigue, drainage, muscle weakness/soreness. gluten-free solved each and every symptom I had in relatively short time....2 days when I felt like a new person and the skin and muscle issues stopped just a few days later. It was like a miracle for me to find out.

If your doc thinks you are crazy, find another. Elimination of gluten is confirmation of the problem if the symptoms resolve. If he/she does not accept that as proof even after negative test results, get another opinion. Find a specialist and make sure they agree with the testing you believe should be done. THeir gut doesn't hurt with gluten....yours does! You have a right to a proper diagnosis, even if it is a lot of work for them.

amahones Rookie

I've had chronic sinusitis due to seasonal, food, and environmental allergies. I've also had two sinus surgeries (but they were five years apart). I've heard of people whose sinuses and allergies improve on the gluten free diet, but so far I've noticed no difference. I've i've been gluten free for a little over two months though, and this time of year is the worst for me, when it comes to seasonal allergies.

GottaSki Mentor

One of my sons has battled sinus issues for about ten years. He has had improvement gluten-free - for him the improvement was very slow. He has been gluten-free for 3 years and still has minor problems, but he has improved a lot!

I hope your improvement is speedy, but do give it time.

megsybeth Enthusiast

I did and was lucky to have this clear up to some degree almost immediately after I went off gluten. My son, who also has celiac, also has terrible sinus/tonsil issues and has had two surgeries. He's still in the middle of testing but I had taken him off for almost a week and noticed him breathing through his nose better and he went back to putting his face in the water when swimming, which he'd stopped doing (he's just four).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,914
    • Most Online (within 30 mins)
      7,748

    ChrisMary
    Newest Member
    ChrisMary
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.