Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Should I Be Doing More To Help My Son?

krisb

Recommended Posts

krisb Contributor
krisb
Posted

Since Kevin's colonoscopy and scope the Dr. said to start the gluten free diet. I did that but is there more I should do to help him heal? He is anemic, I'm assuming from his ulcerated intestine's. I wonder if he should have a suppliment or probiotic. I have a multi vitamin w/flouride but they are so brightly colored and I'm not sure if they have gluten. I don't give them to him. I feel like he needs something but the GI didn't say. I go back to her in 3 weeks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nettiebeads Apprentice
nettiebeads
Posted
Since Kevin's colonoscopy and scope the Dr. said to start the gluten free diet. I did that but is there more I should do to help him heal? He is anemic, I'm assuming from his ulcerated intestine's. I wonder if he should have a suppliment or probiotic. I have a multi vitamin w/flouride but they are so brightly colored and I'm not sure if they have gluten. I don't give them to him. I feel like he needs something but the GI didn't say. I go back to her in 3 weeks.

<{POST_SNAPBACK}>

I'm sure you can call your GI and leave a message with her nurse with all of these questions. It does take time to heal, youth is on his side. Just make sure his calories are high protein/high iron to help his anemia, with vita C to help his body absorb the iron. And because of his malabsorption, you may want to ask about a multi vitamin/multi MINERAL supplement. Minerals are often overlooked, but very important too. Is he starting to feel better, I hope?

krisb Contributor
krisb
Posted
  • Author
Is he starting to feel better, I hope?

He says he is feeling better. He hasn't had any belly aches and it looks like he gained 2 pounds already! He hasn't been very gassy either. My younger boys were diagnosed the same time as Kevin. There belly aches are getting better too. They didn't go as long as my oldest with celiac so I believe there damage isn't as bad.

nettiebeads Apprentice
nettiebeads
Posted
He says he is feeling better. He hasn't had any belly aches and it looks like he gained 2 pounds already! He hasn't been very gassy either. My younger boys were diagnosed the same time as Kevin.  There belly aches are getting better too. They didn't go as long as my oldest with celiac so I believe there damage isn't as bad.

<{POST_SNAPBACK}>

Very glad to hear that! But I would try to leave some questions for your GI; if she's a good dr. she would understand your concerns and worries and address them w/o waiting for your next appt by having her nurse call you back or leave a written recommendation with the receiptionist for you to pick up later.

hilaryw Newbie
hilaryw
Posted
Since Kevin's colonoscopy and scope the Dr. said to start the gluten free diet. I did that but is there more I should do to help him heal? He is anemic, I'm assuming from his ulcerated intestine's. I wonder if he should have a suppliment or probiotic. I have a multi vitamin w/flouride but they are so brightly colored and I'm not sure if they have gluten. I don't give them to him. I feel like he needs something but the GI didn't say. I go back to her in 3 weeks.

<{POST_SNAPBACK}>

My daughter (newly diagnosed) is also anemic. We are supposed to be giving her iron. She couldn't tolerate it in liquid form so we give her Solaray cherry chewable multivitamins that have an adequate amount of iron. I called Soloray, they are gluten free. My daughter will have another CBC in 6 weeks, but I think her iron level must be better b/c she looks and feels so much better already. I would definitely want an iron supplement of some form if I were you. Call the doctor, I'm surprised he/she didn't prescribe something. Our doc. was concerned about the anemia (hemoglobin 9.6.)

krisb Contributor
krisb
Posted
  • Author
My daughter (newly diagnosed) is also anemic.  We are supposed to be giving her iron.  She couldn't tolerate it in liquid form so we give her Solaray cherry chewable multivitamins that have an adequate amount of iron.  I called Soloray, they are gluten free.  My daughter will have another CBC in 6 weeks, but I think her iron level must be better b/c she looks and feels so much better already.  I would definitely want an iron supplement of some form if I were you.  Call the doctor, I'm surprised he/she didn't prescribe something.  Our doc. was concerned about the anemia (hemoglobin 9.6.)

<{POST_SNAPBACK}>

He doesn't go back to the GI until the end of October. She is on vacation. Maybe I will bring him to the ped in the meantime. I have a lot of questions that aren't getting answered. I worry about him. I feel like he has so many Dr.'s but they all assume the other is taking care of him.

Kasey'sMom Enthusiast
Kasey'sMom
Posted

My dd Dr. suggested that I give her chlorophyl drops for low iron levels. He said she would probably not like the taste. :P I did however find a company that makes a mint flavored version and they confirmed it is gluten-free and soy free. Here's the company that has the mint chlorophyl.....

Open Original Shared Link

I haven't been able to confirm that Desouza's chlorophyl is gluten-free but the have a wonderful article about chlorophyl.

Open Original Shared Link

Also Probiotics can be very helpful for the intestines. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted
Since Kevin's colonoscopy and scope the Dr. said to start the gluten free diet. I did that but is there more I should do to help him heal? He is anemic, I'm assuming from his ulcerated intestine's. I wonder if he should have a suppliment or probiotic. I have a multi vitamin w/flouride but they are so brightly colored and I'm not sure if they have gluten. I don't give them to him. I feel like he needs something but the GI didn't say. I go back to her in 3 weeks.

<{POST_SNAPBACK}>

If he's iron-deficient anemic, then a multi-vit with iron is a good idea, or making sure he drinks orange juice or something else with vit C with meat or eggs. He shouldn't need flouride in his multi-vit, particularly if you live in an area where your water is flouridated, so I wouldn't worry about that. There are a lot of vitamins (without colors and additives), so you might want to spend a little while browsing a local health food store for something YOU are happy with. (The workers there can help, but they are not the fountain of knowledge that many try to pass themselves off as.)

Guest nini
Guest nini
Posted

When my dd first went gluten-free, we gave her a chewable multi vitamin that I had confirmed was gluten-free... I found it at Dollar Tree of all places... She also drank Pediasure (didn't really like it that much).

I have found a company (Market America) that has a line of supplements (Isotonix) that come in a powder form and you mix them with water in a pre measured cap/cup. They have a childrens "Might A Mins" and I take a digestive enzyme and b-12. Google Market America and you can find a rep through the website. It's kinda like Mary Kay or Avon, you have to find someone who sells it.

Indea88 Newbie
Indea88
Posted

Our Ped GI said Flinestones? There has to be a better multi for kids that is gluten-free. Ive been on the hunt as well. Havent found one yet....

Guest Lucy
Guest Lucy
Posted

don't flinstones contain gluten? I don't have a bottle handy, but I thought they did?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. RMJ
      - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight. My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she...
    2. Colleen H
      - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Stomach burning and neuropathy

      Hello I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet. Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I...
    3. sleuth
      - sleuth replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      Of course my son is on a 100% gluten free diet. I wish his symptoms were not debilitating as there are right now. He cannot work, even when a miniscule of cross contamination occurs. It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc. It's literally neurological inflammation. Not to be taken lightly here. We...
    4. Scott Adams
      - Scott Adams replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-F...
    5. Me,Sue
      - Me,Sue posted a topic in Coping with Celiac Disease
      1

      Nausea

      Hi all I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also]. BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,838
    • Most Online (within 30 mins)
      7,748
    Sarah C37
    Newest Member
    Sarah C37
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      Nausea

      By RMJ · Posted

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Stomach burning and neuropathy

      By Colleen H · Posted

      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Nausea

      By Me,Sue · Posted

      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.