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Warm Fuzzies

mamaupupup

By mamaupupup
in Coping with Celiac Disease

Recommended Posts

mamaupupup Contributor
mamaupupup
Posted

Hi everyone,

Just a quick note to say that I appreciate you all very much. I had a rough night out at a great restaurant--the food and service were perfect, but one of my girlfriends questioned whether or not Celiac is an actual disease...oh boy!

I'm thinking of all of you--each one of us has far too many similar stories to this. Someday Celiac will be widely understood and accepted.

Until then, thank you all for being so supportive, helpful, and just plain wonderful!

Have a great night!

xoxoxoxoxox

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ravenwoodglass Mentor
ravenwoodglass
Posted

Got that freinds email address? If you do maybe send her some links from the NIH or other reputable sites about the disease. Hopefully you didn't let that person ruin the event for you. At least the food and service were good and you know you can safely go back and have a good meal but perhaps without that 'freind'.

shadowicewolf Proficient
shadowicewolf
Posted

Ignorance is bliss as they say.

SMDBill Apprentice
SMDBill
Posted

That's like the argument that 'surely a little bit won't hurt you once in a while'. Ugggggg.

mamaupupup Contributor
mamaupupup
Posted
  • Author

Thanks so much! I have to say I was a bit passive-aggressive on facebook today (I know she's on it constantly...). Here is my post:

I've been asked lots of Celiac questions recently and my actions to protect myself and my family have been called in to question as well. I am lucky enough to have the excellent care of Dr. Gregory Harmon and Nancee Jaffe from UCLA, my kids see Dr. Michelle Pietzak at Children's Hospital Los Angeles. These individuals are on the forefront of Celiac care and research. I wish everyone had access to such excellent healthcare, advice, and compassion.

I should have added: and the constant guidance and support from the wonderful people on the Celiac.com forum.

xoxox

GottaSki Mentor
GottaSki
Posted

You are fortunate indeed to have Dr. Harmon - he diagnosed me at UCSD and I miss him very much!

Glad you found a safe restaurant - don't let the ignorant get you down.

I love your fb post - I hope your friend sees it and spends a little time educating herself - one person at a time - we will change the tide.

mamaupupup Contributor
mamaupupup
Posted
  • Author

Thank you!

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      how much gluten do I need to eat before blood tests?

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