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Recently Diagnosed With Celiac

Ezzeryen

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Ezzeryen Newbie
Ezzeryen
Posted

New to the forum

2 days ago I was told I had celiac

I guess learning to change everything about what you should eat and drink is scary

As a question or 5 😄

Can celiac cause night sweats , stop u from sleeping , eating , thinking too much , and no engery

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kareng Grand Master
kareng
Posted

As a question or 5 😄

Not sure what this means?

shadowicewolf Proficient
shadowicewolf
Posted

thinking to much isn't a bad thing, however the rest of it can be celiac based.

1desperateladysaved Proficient
1desperateladysaved
Posted

Yeah, changing everything you eat is scary. However, most people can eat meat, vegetables, and fruit which they have been eating. For almost everything you can find substitutes. Work to make the changes, but give yourself time to adjust.

Sorry, you were surprised by this news, but glad you found out while there was time to heal. Yes,

you might have no energy,

it might be hard to think,

you may be foggy.

or have extreme fatigue,

but the disease is controlable. You can begin to heal.

Oh, I have night sweats, but I don't know if they are celiac related.

I would like to hear more of your story if you have the strength now. Otherwise over time you can heal.

My story in on the blog section of the forum. You can click on more in the upper left and click on blogs. I am desperateladysaved. The post "Back from Nowhere' tells the beginning of my story.

I hope you will be feeling better and better as time goes on.***

rosetapper23 Explorer
rosetapper23
Posted

Yes to all of the above. Whenever I get glutened, I get night sweats, have foggy thinking, no energy, etc. I hope you decide to adopt a very restrictive gluten-free diet. You won't be sorry! Welcome to your new feeling of wellness!

  • 3 weeks later...
Em314 Explorer
Em314
Posted

The night sweats may be due to a Vit D deficiency, which would not be surprising if you have celiac.

Ezzeryen Newbie
Ezzeryen
Posted
  • Author

Was out yesterday kinds was bad and right now I'm paying for it my kids and gluten-free told me off but never thought how bad I'll feel touching gluten again

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sa1937 Community Regular
sa1937
Posted

Was out yesterday kinds was bad and right now I'm paying for it my kids and gluten-free told me off but never thought how bad I'll feel touching gluten again

Welcome to the forum, Ezzeryen. I'm not really sure what you're saying here.

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    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
    • trents
      Am I nuts?

      By trents · Posted

      @GlorietaKaro, your respiratory reactions to gluten make me wonder if there might also be an allergic (anaphylaxis) component at work here.
    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
    • trents
      Am I nuts?

      By trents · Posted

      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
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