Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Starting 4Th Week Gluten-Free . . .


DieWalkure

Recommended Posts

DieWalkure Newbie

Hi, all.

I've just started my 4th week gluten-free. I haven't had any diagnosis, tests run, etc., but gluten-free seems to be working for a lot, if not most, of my health issues: vertigo, migraines, excessive fatigue, severe menstrual issues, severe bloating, etc. I could go on with the list, but I won't.

It wasn't as if I had a plan when I started eating/living gluten-free. I've always wondered if a gluten-free life would make me feel better. After reading an article about someone with decidedly similar health issues who was diagnosed with a severe gluten sensitivity, I made the final decision to do this; and so here I am. Being in the profession I'm in, I've been able to find most of the gluten-free life information I needed to make this change happen.

The kitchen and bathroom have been purged of gluten and scoured. I'm reading labels until I go cross-eyed. Since I was already lactose-intolerance, the dairy elimination has been something of a non-issue for me. I've never been a fan of eating out often, and I like to cook; so food prep is working out fine.

The first three weeks weren't necessarily the easiest I've ever experienced; but they were valuable. When the vertigo disappeared within days of going gluten-free, I knew this had been a good decision. I honestly don't remember the last time I felt so good!

And then . . . this past weekend happened. I went out shopping, touched all sorts of fun things, washed my hands using commercial liquid soap in store restrooms (what was I thinking?); and by Saturday night, I felt like I was dying--awful stomach pain, a return of the vertigo, rounded out with constipation. I didn't eat anything that was prepared outside of my home during the holiday week. So, I'm a bit stumped. Can a glutening happen so quickly, so slyly that you never quite figure out what happened? (The only food that contained gluten on Thanksgiving Day was a pumpkin pie brought to the lunch by a friend. I used a separate pie-cutter for it, and didn't let it touch anything else.)

I'm finally starting to feel a bit more like myself today, except for lingering vertigo and headache.

Anyone have any thoughts, suggestions?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tom Contributor

Sounds like you really can't be more thorough than you already are, so congrats on that.

What a PITA that mystery glutenings can still happen, but rest assured you're not the only one. I've seen plenty of threads started as a "what of these things could've glutened me" question.

Sometimes a likely culprit is found & sometimes not. One that comes to mind that has surprised ppl is handling pet food w/ gluten - surprising since their suspect list naturally starts exclusively w/ human food & the gluten-detective process doesn't always go back to step one - making a suspect list - after it's been done once.

For some, maybe their top suspect ends up being a trip to the country during wheat harvest or they were somewhere that may've had airborne flour exposure where someone had been baking (it's said to last a day or more) or they find their friend's Pam-type spray was the one w/ wheat flour, though they'd dutifully all 'actual' ingredients.

Anyway, to answer your question, yes it can happen so slyly that ppl don't always figure out how. Hope you're feeling much better asap. Omg how I hated the vertigo pre-gluten-free.

  • 2 weeks later...
DieWalkure Newbie

Sounds like you really can't be more thorough than you already are, so congrats on that.

What a PITA that mystery glutenings can still happen, but rest assured you're not the only one. I've seen plenty of threads started as a "what of these things could've glutened me" question.

Sometimes a likely culprit is found & sometimes not. One that comes to mind that has surprised ppl is handling pet food w/ gluten - surprising since their suspect list naturally starts exclusively w/ human food & the gluten-detective process doesn't always go back to step one - making a suspect list - after it's been done once.

For some, maybe their top suspect ends up being a trip to the country during wheat harvest or they were somewhere that may've had airborne flour exposure where someone had been baking (it's said to last a day or more) or they find their friend's Pam-type spray was the one w/ wheat flour, though they'd dutifully all 'actual' ingredients.

Anyway, to answer your question, yes it can happen so slyly that ppl don't always figure out how. Hope you're feeling much better asap. Omg how I hated the vertigo pre-gluten-free.

Thank you very much. It took a couple more days for me to feel like myself again, but since then, all has been well. I had wondered about the cat food, but I've been trying to wash my hands after handling it each time. Pesky cat. :) I may put her on a gluten-free diet, as well.

Yeah, the vertigo was mean. I don't miss it.

Thank you again.

shadowicewolf Proficient

If i remember right, thats not enough. Cat eats the food, cat licks itself, you pet the cat, so on and so forth.

GFinDC Veteran

If i remember right, thats not enough. Cat eats the food, cat licks itself, you pet the cat, so on and so forth.

Right, it's not just that they eat gluten, they end up wearing it on their fur. My cat does much better with gluten-free food too. She eats BG (Before Grain) food. If I switch her to regular cat food with grains in it she gets sick every time.

Celiac Mindwarp Community Regular

My cat has a new lease of life on gluten-free food too :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,019
    • Most Online (within 30 mins)
      7,748

    Wilson1984
    Newest Member
    Wilson1984
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.