Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Booyah!


Razzle Dazzle Brazell

Recommended Posts

Razzle Dazzle Brazell Enthusiast

Went to the doctor today and despite skepticism, she tested me for yeast overgrowth. Guess what. I was right. I have to take fluconazole and nystatin, a very aggressive course of treatment. Back on a low carb/sugar diet. I am really hoping that this, in conjunction with my Gluten-free Casein-free diet will put me on the path to healing.

Isnt it great when, for once, tests prove what you know? Thanks to this forum, I am moving toward healing and a hopeful future. A lot of my reactions and chemical sensitivities may stem from this overgrowth that was caused by prednisone, followed up with strong antibiotics and then a gluten challenged immune system. Amazing like a dominoe. Yep thats how I feel, like my immune system is just a line of dominoes, waiting for someone to tip that first one over. Anybody else feel that way?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

Yep, with my gallbladder. Months of heck with ultrasounds from every which way (even this was painful then) and the blood tests came back normal. Even went to the ER once because the pain got so bad (and i was nauseous). Go to new GP and she says to get the HIDA scan done, and lo and behold there is my side pain problem. Another few weeks or so later it came out (longest time of my life).

JNBunnie1 Community Regular

Don't forget your probiotics!!!

GFinDC Veteran

Prednizone knocks down the immune system, so yeah it can be a problem. It would be a good idea to make sure you are getting some Betaine HCL in your diet if you are on prednizone. That may help your stomach acid defeat incoming pathogens. Your stomach acid is your front line defense when your immune system is shut down.

Razzle Dazzle Brazell Enthusiast

@ Shadow: I can't imagine having to deal with gallbladder issues and celiac. I have no idea what a HIDA scan is lol hafta look it up.

@JNBunnie: I tried a acidophilus but it gave me severe heartburn bo matter how much water I drank after taking it. If I can find a gluten and corn free probiotic, it would be great.

@GFinDC: I never heard of that. I tend to have low stomach acid in the mornings that causes nausea but I get heartburn if I take something like acidophilus so I need a happy medium.

ncdave Apprentice

You are aware that both fluconazole and nystatin cotain corn.

JNBunnie1 Community Regular

@ Shadow: I can't imagine having to deal with gallbladder issues and celiac. I have no idea what a HIDA scan is lol hafta look it up.

@JNBunnie: I tried a acidophilus but it gave me severe heartburn bo matter how much water I drank after taking it. If I can find a gluten and corn free probiotic, it would be great.

@GFinDC: I never heard of that. I tend to have low stomach acid in the mornings that causes nausea but I get heartburn if I take something like acidophilus so I need a happy medium.

Razzle, I take PB8, which is a combo probiotic, it comes in capsules, and the one I get has a blue

label, and the ingredients are the probiotic organisms, inulin from chicory root, cellulose, and gelatin.

I am not a corn expert so I do not know if it's corn safe, corn is not listed on the 'free from' list on the

bottle.

I can tell you that you would probably be better off taking a probiotic before food, before the biggest

meal of your day. That way it will mix with the food and pass through before it causes heartburn. In

my opinion the more the merrier, a probiotic with eight different strains will serve you better than just

plain acidophilus.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Razzle Dazzle Brazell Enthusiast

@ ncdave: yup. it has citric acid in it. it is definitely causing swelling but it is hella expensive so im trying to just live with it; there is no way I cann afford some custom medicine :(

. I am not having the neurological symptoms to it thank God, no brain fog, just abd. swelling but what can ya do?

@ JNBunnie: I think I will call my doctor up and ask for her help. I definitely cannot take anymore corn b/c I am so swollen right now but i also recently got glutened so I am hoping lots of water and some of this will subside in a day or two. At least now I can prove that I react to all gluten and it is not just wheat. Some barley malt got me :unsure:. So I can tell the doc I was right about something else ;)

ncdave Apprentice

If there"s anything else in your diet that contains corn you can remove till you finish the meds, maby that would help. I doubt it would be enough to compensate for the amount thats in the pills, but it may make things a little easyier. water, salt, meats? Other than that wear some lose fitting clothing, and look forward to the last pill being gone, so you can start to feel better again. Wishing you mild symptoms, an a speedy recovery.

Razzle Dazzle Brazell Enthusiast

If there"s anything else in your diet that contains corn you can remove till you finish the meds, maby that would help. I doubt it would be enough to compensate for the amount thats in the pills, but it may make things a little easyier. water, salt, meats? Other than that wear some lose fitting clothing, and look forward to the last pill being gone, so you can start to feel better again. Wishing you mild symptoms, an a speedy recovery.

Thx I am using only kosher salt but I will definitely be checking up on whether I can eliminate the meat washes by going to local farmers. I am so excited to make it through the first few days of treatment. I am already feeling so much better. Die off is pretty brutal.

ndw3363 Contributor

How did your dr. test for yeast overgrowth? Was it your GP that did it? I need to find a new GP because getting my current one to give me anything besides antacids (which would be awful since I have LOW stomach acid...she doesn't believe me) and antidepressants (because clearly I need that to tackle my stress...has nothing to do with food). :angry:

I try to stay very low carb/low sugar anyway because I feel better when I do. But every time I've taken some type of antifungal, whether it be natural or Rx, nothing happens. I take probiotics everyday which definitely helps the digestive system, but I can't figure the rest out!! Luckily (knock on all wood), I haven't had a YI in awhile, but I think being off the bc pill is helping that. But I'm still having skin trouble, fatigue and brain fog. If I eat carbs (gluten-free of course), my skin gets bright red and burns a bit on either side of my nose. Then I get terrible seborrhea on my scalp and I'm dizzy for a day or so. Feels like classic Candida reaction, but each time I've tried the diet and the antifungals, nothing happens (i.e. I've never experienced die off). Would like to get a doctor's help with all of this instead of just trying to figure it out on my own, but can't find one that will listen to me.

Razzle Dazzle Brazell Enthusiast

Keep looking! Do not give up. When I got this new doctor, I told her up front that I got tired of

misdiagnosis all my life and described my indisputable symptoms. I did my research. I told her why I did not feel like something else because I had recurrent infections down below and she was skeptical but finally believed me when she checked. Some doctors are different but most do not want to think we can figure things out on our own by doing research and understanding our own bodies. They want to think that a decade in school is the only way to know what they know. Besides that, a lot of doctors, IMO do not want you to know what is wrong because they want to keep making money off you. They would rather say you have irritable bowel than for you to know you just have to eat gluten free. Where is the money in that? I say do not act desperate. Act matter of fact and as if you can always get another doctor if she/he is not doing what you want. Act content no matter what because it makes you not look like a hypochondriac or depressed and effectively says, "It is my way or the highway, Some money or no money is entirely up to you."

As far as testing, you can get a blood test done or you can even send stool samples to enterolab, or similar labs. Some of us may not have a bowel infection but just do not tolerate any grains so you will have to just test and see.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,018
    • Most Online (within 30 mins)
      7,748

    Laney71
    Newest Member
    Laney71
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.