Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Appropriate Followup?

ldslara

Recommended Posts

ldslara Rookie
ldslara
Posted

My eight year old son received a positive blood (TTG) IgA test of >100 about a month ago after I called his pediatrician and asked he get the test due to our family history and some recent symptoms we had that led me to suspect we might both have the disease. When the results came in the doctor's nurse called me right away, gave me the number of a Pediatric Gastroentonologist, and instructed me to continue him on a gluten diet for now. I did so, and his appointment is tomorrow.

Just last week I also tested positive. My nurse practioner had me make an appt to come in to get the results (mine was 96) and expressed her concern at the high number and it's potentional negative health effects. She gave me a referral for a gastroentronolgist (actually called and made an appt for me next week) and also wanted me to go get a full blood panel and a bone density test (which she also scheduled for me as I sat in her office). She just called and told me that my bloood panel showed my Iron was very low (10!) and prescribed an iron supplement that I'm supposed to start right away. My bone density test will be back in time for my appt next week with the gastroentronologist.

I'm impressed with my nurse practioners response, and now that I've seen it, I am wondering if my sons pediatrician shouldn't have ordered similar testing (blood panel, bone density) for him before his follow up appt with the pediatric gastroentronologist. I am assuming the pediatric gastroentronologist will order the tests now, so I'm waiting to talk with him, but I'm a little annoyed, and wondering if I should be getting my son a new pediatricain. Am I being too harsh? It is more typical for general practioners to order folowup testing prior to the Gastroentronologist appt, as my nurse practioner did, or leave it to the Gastroentronologist as my sons pediatrican did?

On a side note, my son's pediatrican actually has celiac disease! Which to me makes it more strange that she seemed to take the whole thing as seriously as my nurse practiorner has.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,530
    • Most Online (within 30 mins)
      7,748
    MARYKOP
    Newest Member
    MARYKOP
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • cristiana
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By cristiana · Posted

      More great tips, and a good excuse to shop at M&S and also buy more iced buns!   I wish we had an ASDA near us, as the few times we've been to one their gluten-free pasta range seemed very reasonably priced compared to other shops.  Thanks so much, @Russ H.
    • Russ H
      Shingles - Could It Be Related to Gluten/ Celiac

      By Russ H · Posted

      I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles or cold sores is not well understood, but stress, sunburn and radiotherapy treatment are known triggers. Some of the herpes viruses are implicated in triggering autoimmune diseases: Epstein-Barr virus is suspected of triggering multiple sclerosis and lupus, and there is a case where it is suspected of triggering coeliac disease. As to whether coeliac disease can increase the likelihood of viral reactivation, there have been several cohort studies including a large one in Sweden suggesting that coeliac disease is associated with a moderate increase in the likelihood of developing shingles in people over the age of 50. US 2024 - Increased Risk of Herpes Zoster Infection in Patients with Celiac Disease 50 Years Old and Older Sweden 2018 - Increased risk of herpes zoster in patients with coeliac disease - nationwide cohort study
    • Russ H
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Russ H · Posted

      BFree bread is fortified with vitamins and minerals as is ASDA own-brand gluten-free bread. All the M&S bread seems to be fortified also.
    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.