Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Aspects Cause What Symptoms?


Em314

Recommended Posts

Em314 Explorer

I have tried to find info on this and have somehow failed in my endeavor, so I'm hoping someone can link me to something.

My question is this: Which of the symptoms of celiac are caused directly by reaction to gluten, vs. which are caused by secondary factors resulting from long-term gluten damage (ex. having a damaged digestive system, malabsorption/vit deficiencies/etc.).

It seems like some of this is known but some is not, and like there's also overlap (quite a bit, actually), and there are certainly outside factors which are commonly associated that end up confounding the question further, so I know this isn't as simple a question as it seems. I am curious about what the current understanding is, though.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rosetapper23 Explorer

My current (and personal) understanding is that reactions to gluten tend to be suddenly acute (D or C, aching bones and joints, migraines, dizziness, foggy thinking, swelling of the eye tissues, stuffy nose, etc., flu-like symptoms), whereas symptoms caused by malabsorption/nutritional deficiencies are more chronic: iron anemia, B12 deficiency (neuropathy, breathing difficulties, fatigue, etc.), night blindness, infertility, muscle and tendon issues, etc. There can also be further problems caused by auto-immune diseases that have been spawned by celiac, such as diabetes or thyroid problems. You should be tested often for these conditions and for nutritional deficiencies. I take Country Life Natural Vitamin D (which is easily absorbed because it contains Vitamin A and medium-chain triglycerides), a Vitamin B Complex plus a sublingual B12 supplement, chelated manganese, and a magnesium/calcium complex. Each person has individual needs, though, and you should establish what those are in your particular case.

Some symptoms may never resolve. In my case, I still have difficulty clotting due to my inability to absorb Vitamin K and I've been nightblind since the age of 11 due to malabsorption of Vitamin A.

IrishHeart Veteran

In addition to Rosetapper's excellent thoughts, may I suggest reading a copy of

Recognizing Celiac Disease by Cleo J. Libonati.

I think she really wrote it for health practitioners, but it is in layman's terms and I found it incredibly informative.

It helped me understand what had gone so horribly wrong in my own body from long unDXed celiac disease.

(all of the 65+ symptoms/conditions I suffered are in there)

It is a detailed explanation of what happens in the GI tract, the rest of the body and the resulting symptoms that occur from malabsorption. She explains vitamin/mineral deficiencies in plain English and how they can resolve.

Associated AI diseases and other complications are also discussed.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,050
    • Most Online (within 30 mins)
      7,748

    Anna4386
    Newest Member
    Anna4386
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
    • Beverage
      Exactly which blood tests were done? There are a few different ones and some docs don't do them all. Also, your results and reference ranges for each?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.