Anyone Else Experience Temple Pain And Chemical Sensitivity?

[RyanD]

Hi all. New to the forum here and I was really curious if any of you experience throbbing temple pain if you ingest foods that are offending to a celiac diet.

I also have a problem with scented products, cigarette smoke etc. The same sort of throbbing temple pain on both sides occurs.

I had an endoscopy done and the doctor told me I had stomach lesions that look like ulcers. I had been consuming food that was not good for someone with celiac.

I was fine for 27 years of my life until one day I woke up with excruciating temple stabbing pain on both sides. It's been 3 years later and it still happens. I'm getting very tired of it as its a daily thing and nothing but avoidance of foods and chemicals relieves it.

[VeggieGal]

Hi Ryan, I too am sensitive to cigarette smoke and especially certain scented and cleaning / bug spray type products. ..I get sharp temple pains, can't breathe and go into a sort of panic attack mode.

Not sure its anything to do with celiac for me as I didn't seem to get it when I digested gluten.

[GFinDC]

Hi Ryan,

I don't get those symptoms myself, but posters on the forum have talked about getting migraines before. Some have said they get migraines after accidentally consuming gluten or being cc'd. I know you didn't mention migraines but it seemed like it might be related. We have also had discussions about allergies in the past. Usually it seems like there is a mixture. Some people say their allergies became less of a problem after going gluten-free, and some say their allergies got worse. But it seems like often their is s change of some kind when going gluten-free. In my case my allergies became much less of an issue after being gluten-free for a while.

[RyanD]

  On 1/8/2013 at 8:32 PM, VeggieGal said:

Hi Ryan, I too am sensitive to cigarette smoke and especially certain scented and cleaning / bug spray type products. ..I get sharp temple pains, can't breathe and go into a sort of panic attack mode.

Not sure its anything to do with celiac for me as I didn't seem to get it when I digested gluten.

Hi VeggieGal,

Did your temple pain and chem sensitivity start one day out of the blue or did you always sort of have it? I'm trying to figure out why mine started at 27.

  On 1/8/2013 at 9:33 PM, GFinDC said:

Hi Ryan,

I don't get those symptoms myself, but posters on the forum have talked about getting migraines before. Some have said they get migraines after accidentally consuming gluten or being cc'd. I know you didn't mention migraines but it seemed like it might be related. We have also had discussions about allergies in the past. Usually it seems like there is a mixture. Some people say their allergies became less of a problem after going gluten-free, and some say their allergies got worse. But it seems like often their is s change of some kind when going gluten-free. In my case my allergies became much less of an issue after being gluten-free for a while.

Hi GFinDC,

I did meet with a neurologist who told me "welcome to the world of migraines" I'm just not sure how at age 27 it started and most of my life I had no such pain or chemical sensitivity. Maybe my body had enough after a while and snapped or I built up too much toxicity not knowing I had celiac.

[VeggieGal]

  On 1/8/2013 at 11:53 PM, RyanD said:

Hi VeggieGal,

Did your temple pain and chem sensitivity start one day out of the blue or did you always sort of have it? I'm trying to figure out why mine started at 27.

Never really thought about it but I'm pretty sure they did just start out of the blue in my early 20s . Never really considered them as migraines because when I get migraines which is usually caused by a reaction to red cheese and I get zig zag flashes or vision blackouts followed by an headache but could be.

[RyanD]

  On 1/9/2013 at 12:23 AM, VeggieGal said:

Never really thought about it but I'm pretty sure they did just start out of the blue in my early 20s . Never really considered them as migraines because when I get migraines which is usually caused by a reaction to red cheese and I get zig zag flashes or vision blackouts followed by an headache but could be.

I feel your pain there I wonder if my stomach ulcers just had enough over time and brought on some kind of inflammation. Have you ever had an endoscopy or just blood diagnosis? Since our symptoms are sort of similar. I've also read up that our immune system might not be the greatest and sometimes exposure to mold can affect the body in this way. It may just be purely celiac too though. The disease is complex!

[VeggieGal]

  On 1/9/2013 at 1:13 AM, RyanD said:

I feel your pain there I wonder if my stomach ulcers just had enough over time and brought on some kind of inflammation. Have you ever had an endoscopy or just blood diagnosis? Since our symptoms are sort of similar. I've also read up

that our immune system might not be the greatest and sometimes exposure to mold can affect the body in this way. It may just be purely celiac too though. The disease is complex!

I really don't know much about it but slightest bit of mould or damp and I react. I also seem to have a radar for gas leaks too where I sense them and others dont lol. I'm just a sensitive and strange person!! I've been for two biopsys (the last on 3rd Jan) unfortunately I grabbed the tube on both occassions so the procedure was stopped. They had supposed to have given me sedation but it seemed to have the opposite effect (I said I was strange!). So consultant has dx me on symptoms of eating gluten, blood tests and reactions to a gluten-free diet.

Hope you start to heal soon...yes its all very complex.

[1desperateladysaved]

I have problems with perfume, cigarette smell, and mold. I get a painful feeling in my neck glands, sometimes dizzy and abdominal bloating.. This began about the same time as I began to notice celiac symptoms many years ago. Back then my lungs would hurt too when exposed to the noted smells.

Diana

[GFinDC]

  On 1/8/2013 at 11:53 PM, RyanD said:

Hi VeggieGal,

Did your temple pain and chem sensitivity start one day out of the blue or did you always sort of have it? I'm trying to figure out why mine started at 27.

Hi GFinDC,

I did meet with a neurologist who told me "welcome to the world of migraines" I'm just not sure how at age 27 it started and most of my life I had no such pain or chemical sensitivity. Maybe my body had enough after a while and snapped or I built up too much toxicity not knowing I had celiac.

Hi Ryan,

Well, that was nice of the nuerologist to give you a welcome! There is another member who avoids cheese for some condition that I don't recall the name of. Adelaide. She might have some info for you. Some people also react to food colorings, especially reds. Maybe that is related to the red cheese, not sure. Hard cheese are mostly casein protein, and some of us react to that. I do, but it is a gut issue for me. I seldom get headaches. That doesn't mean other people don't get headaches from eating casein though, some do.

If you can stick to the gluten-free diet 100%, your body should stop attacking itself after a while. That auto-immune attack can do a lot of damage, and it can affect any part of the body. The damage in celiac is usually in the gut, but some people have gluten ataxia which is a brain attack by the immune system. Inflammation can cause a lot of bad effects throughout the body. Staying away from gluten is the only way to stop the auto-immune reaction. Often people report their symptoms in other parts of the body improve, but not always.

[VeggieGal]

GFinDC, interesting..its the first time ive heard of gluten ataxia so I googled it Open Original Shared Link

and it describes me to a t! and my 11 yr old son for that matter (hes been dx with dyspraxia but looking at gluten ataxia, im thinking it maybe that). I best get him tested but do you know if there is specific tests for gluten ataxia?

I have a definite problem with cheese and milk but not worked out if its casein or lactose or both. Thanks for that info

[GFinDC]

  On 1/9/2013 at 8:33 PM, VeggieGal said:

GFinDC, interesting..its the first time ive heard of gluten ataxia so I googled it Open Original Shared Link

and it describes me to a t! and my 11 yr old son for that matter (hes been dx with dyspraxia but looking at gluten ataxia, im thinking it maybe that). I best get him tested but do you know if there is specific tests for gluten ataxia?

I have a definite problem with cheese and milk but not worked out if its casein or lactose or both. Thanks for that info

Hi VeggieGal,

I don't know of specific tests for gluten ataxia, but they do find something called UBO's (unidentified bright objects) in brain scans of people with gluten ataxia sometimes. There are some members on the forum who have had it. The 2nd link below has an overview of gluten related nuerological affects.

Open Original Shared Link

Open Original Shared Link

https://www.celiac.com/articles/22040/1/The-Correlation-Between-Gluten-Intolerance-and-Neurological-Disease/Page1.html

I had problem with lactose at first and eliminated that. But later found I was reacting to casein also. I like Daiya brand cheese like shreds.

If you search the forum for ataxia there quite a few threads about it with more info. It can affect children as well as adults. You can also search on Purkinje cells and gluten to find info.

And you are welcome!

[VeggieGal]

Hiya GFinDC

Ooooo good, thanks for some more info, thats great, I'll have a read

[shadowicewolf]

I'm sensative to all chemicals, perfumes, scented items that are not all natural, etc. My temples throb, my throat gets all scratchy, and then it moves to behind my eyes.

[RyanD]

  On 1/10/2013 at 1:17 AM, shadowicewolf said:

I'm sensative to all chemicals, perfumes, scented items that are not all natural, etc. My temples throb, my throat gets all scratchy, and then it moves to behind my eyes.

Thanks for sharing. I get the temple pain with scented stuff, but before it happens my nose throbs and it moves behind my eyes too! Same thing happens if I eat something with gluten or dairy. Did you have this all your life or did it just start one day? For me it started 3 years ago and has not let up since.