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Vitamin D

designerstubble

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designerstubble Enthusiast
designerstubble
Posted

Just a quicky!

My doctor has recently prescribed me vitamin d. The dose he's given me is 20,000 i.u.

This 10,000% the daily amount. Isn't this too high?!!

I've been taking them for over a week (hesitantly I must add), though I've stopped as the skin on my face has gone flaky and sore, and I've had gi ache (no idea if its related)

What's the normal dosage for vit d?

My bloods were at 44 (normal range 75- something!)

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1desperateladysaved Proficient
1desperateladysaved
Posted

I am on 3000 IU and was measured as borderline. My bottle says 1000 IU per day. I was given more since my absorption is poor.

Diana

Kamma Explorer
Kamma
Posted

Well, Wiki says, "Vitamin D3 (cholecalciferol) is produced photochemically in the Open Original Shared Link from Open Original Shared Link. 7-Dehydrocholesterol is produced in relatively large quantities, 10,000 to 20,000 IU of vitamin D are produced in 30 minutes of whole-body exposure,Open Original Shared Link in the skin of most vertebrate animals, including humans..."

Open Original Shared Link

But I like for For Dummy's explanation of how the different types of skin colour affect vitamin D synthesis. For the most white types of skin, it only takes four minutes in the sun in the summer to synthesize 1000 IU of vitamin D. At the other end, dark skin requires 19 minutes to synthesize 1000 IU.

Open Original Shared Link

So, going by that, if you spent a couple hours in the sun and I'm sure you have, it would be the same as taking 20,000IU.

I think the danger would be if you were spending great amounts of time in the sun while taking 20,000 IU.

designerstubble Enthusiast
designerstubble
Posted
  • Author

Thanks Kamma, very interesting! Perhaps my ailments are not related to the vit d then! It's just I saw that on the threads here most were on 2,000 or 3,000... And when I saw mine at 20,000! I wish I could grab my vit d naturally, I'd much prefer to sit in the sun. Fat chance in the UK though!

Thanks again for all your help :)

designerstubble Enthusiast
designerstubble
Posted
  • Author

Thanks Diana, that's what I thought most here were on... And that's why I thought mine was particularly high!

GottaSki Mentor
GottaSki
Posted

Hi DS-

I was on the extra powerful Ds just before I was diagnosed -- I remember them being 50,000 for just one week -- may be mistaken -- perhaps they were only 20K. How long does your doc have you on them? Since you've removed gluten, I would think that soon you'll be able to drop down to a regular D supplement -- perhaps have your D checked by blood after some time on the supplement to see if it has brought your vitamin D back up?

mushroom Proficient
mushroom
Posted

I was taking 50,000 once a week to begin with, with some daily 1,000's in between. My doctor said my tank was so empty that taking a regular dose would barely give me enough gas to get to the next gas station. So you have to fill the tank first, and you will not be absorbing all of that 50,000, but keep getting your level checked and when you are mid-range you can cut back. I am sure she did not intend for you to keep taking this dose forever. I now take 50,000 once a month.

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designerstubble Enthusiast
designerstubble
Posted
  • Author

Hello friends! Sorry for delayed response I've been cleaning kitchen cupboards for my new (almost) gluten-free kitchen!

My doc has me on these vit d supplements for z month. Must admit I have stopped taking them. I may just take one every other day and take a normal lower dose one on the missing day?

designerstubble Enthusiast
designerstubble
Posted
  • Author

That should've said 1 month not z month!

Seifer Rookie
Seifer
Posted

That's a really high dose and not so smart of you doctor not to give you any directives. From what I heard 5000 IU a day should be enough for an adult and probably not necessary with more than 10000IU/day

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      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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