Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dh As An Indicator Of Gluten Ingestion?

zamm0

By zamm0
in Dermatitis Herpetiformis

Recommended Posts

zamm0 Apprentice
zamm0
Posted

Same as the title really....can DH flare-ups be a signal that the body has recently taken in gluten, however small? As per here: Open Original Shared Link

FWIW - I've had DH for a couple of years now and found that elocon seems to dampen it down quite well. I tend to use it very sparingly. Lately I'm experimenting with not using the elocon to see if it goes on it's own.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


texas flood Newbie
texas flood
Posted

I don't know. From what I've read here, Iodine can trigger it. So that could be it as well.

squirmingitch Veteran
squirmingitch
Posted

zamm0, Yes, it can be a sign of having recently taken in gluten. I would say especially if you have been gluten-free for a couple of years & have not had any dh outbreaks in at least several months. If you are under the 2 year mark then it's possible that it's just a "spontaneous outbreak" which can also happen any time until all the antibodies are out of our skin.

  • 1 month later...
sharese28 Apprentice
sharese28
Posted

I'm going through that right now recently diagnosed and i've developed these skin rashes on my face back neck etc :angry: after going gluten free don't know if i've ingested gluten unintentionally or if it's my body trying to get everything out of my system.

squirmingitch Veteran
squirmingitch
Posted

I'm going through that right now recently diagnosed and i've developed these skin rashes on my face back neck etc :angry: after going gluten free don't know if i've ingested gluten unintentionally or if it's my body trying to get everything out of my system.

That's almost impossible to say for sure. Only you would be able to tell.......maybe......  And that's also why it's soooooooo important to make absolute, for sure, no doubt about it positive, that you are not getting the slightest amount of gluten.

pricklypear1971 Community Regular
pricklypear1971
Posted

Same as the title really....can DH flare-ups be a signal that the body has recently taken in gluten, however small? As per here: Open Original Shared Link

FWIW - I've had DH for a couple of years now and found that elocon seems to dampen it down quite well. I tend to use it very sparingly. Lately I'm experimenting with not using the elocon to see if it goes on it's own.

Elocon is a topical steroid.

 

My experience was even after weaning off of my topical, and using barely enough to dampen the tip of a qtip, when I finally went cold turkey for a few days....whammo. Outbreak.

 

So, I wouldn't assume you've ingested gluten if you're weaning off. I'd assume you're going through that typical steroid withdrawal bounce-back.

  • 2 weeks later...
koalbish Newbie
koalbish
Posted

Every time I get contaminated with gluten I flare up and it takes weeks to go away. It mostly happens when I eat out and I think the food is safe.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

That's why I refuse to eat out no matter how safe one might think it may be. The only way to be sure is to be in total control of all your own food. With the outbreaks I get there is NO WAY I'm taking any chances until all the antibodies have gotten out of my skin.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,118
    • Most Online (within 30 mins)
      7,748
    Cwbtex
    Newest Member
    Cwbtex
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      I did ... But aren't we going to be vitamin deficienct if we are not eating due to being sick ?? If the food we eat is gluten free and we have other sensitivities , how do we get out of the cycle??  Thank you 
    • Colleen H
      Heat intolerant... Yikes

      By Colleen H · Posted

      Anyone else get pins and needles. ??? Burning feeling ? Heat makes it so much worse 😔  Winter is here.  I had to lower my thermostat because I couldn't take that hot air feeling 😔  Hopefully it goes away soon     
    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      I assume that you already know that genetic testing for celiac disease cannot be used to confirm a celiac diagnosis. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. It can be used to rule out celiac disease with a high degree of confidence, however, in the case where the genetic testing is negative for the genes. Until and unless you are actually diagnosed with celiac disease I would not raise this as an issue with family. However, if you are diagnosed with celiac disease through blood antibody testing and/or endoscopy with positive biopsy I would suggest you encourage first degree relatives to also purse testing because there is a significant chance (somewhere betwee 10% and almost 50%, depending on which studies you reference) that they will also have or will develop active celiac disease. Often, there are symptoms are absent or very minor until damage to the small bowel lining or other body systems becomes significant so be prepared that they may blow you off. We call this "silent celiac disease". 
    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      If you were off gluten for two months that would have been long enough to invalidate the celiac blood antibody testing. Many people make the same mistake. They experiment with the gluten free diet before seeking formal testing. Once you remove gluten from the diet the antibodies stop being produced and those that are already in circulation begin to be removed and often drop below detectable levels. To pursue valid testing for celiac disease you would need to resume gluten consumption equivalent to the amount found in 4-6 slices of wheat bread daily for at least two weeks, preferably longer. These are the most recent guidelines for the "gluten challenge". Without formal testing there is no way to distinguish between celiac disease and gluten sensitivity since their symptoms overlap. However, celiac disease is an autoimmune disorder that damages the small bowel lining, not true of gluten sensitivity. There is no test available for gluten sensitivity so celiac disease must first be ruled out. By the way, elevated liver enzymes was what led to my celiac diagnosis almost 25 years ago.
    • trents
      High DGP-A with normal IGA

      By trents · Posted

      Then it does not seem to me that a gluten-related disorder is at the heart of your problems, unless that is, you have refractory celiac disease. But you did not answer my question about how long you had been eating gluten free before you had the blood antibody test for celiac disease done.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.