Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mom Never Told Me I Was A Sick Baby...

beachbirdie

Recommended Posts

beachbirdie Contributor
beachbirdie
Posted

My mom just passed away a couple of weeks ago and I've been at her house going through some of her things. Among them was a little journal in which she was writing about me as a toddler, and a kindergarten report card that were very interesting...

Mom wrote that I used to throw up when I ate, and that I had a lot of intestinal problems that no one could figure out. I had unexplained fevers.

My kindergarten teacher wrote that she was concerned I was missing so much school because of a mysterious "bug" I kept catching.

I put that together with my current blood tests and genetic test, wondering now if gluten has ALWAYS been a problem for me.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Madagascar Rookie
Madagascar
Posted

maybe so. do you also have dental defects?

i was a vomit-y baby as well, although i don't think i was sickly other than that. but i was the child who always had cavities and when i got braces at 15, i had to have something like 13 fillings because i had "pits" in my teeth. now i've seen professional articles about enamel defects that are related to celiac disease. that makes me think i've had this all my life as well.

my condolences on the loss of your mom - that's hard.

nvsmom Community Regular
nvsmom
Posted

((Hugs)) I'm sorry to hear about your mom. Best wishes to you.

I think you may be right. It's a shame celiac disease wasn't well known a few decades ago... I guess there are benefits to having the latest "trendy" disease; it's easier to identify it.

Take care.

1desperateladysaved Proficient
1desperateladysaved
Posted

I keep trying to think back before I had symptoms. I keep remembering concerns way back. Fatigue was my greatest symptom. I remember laying my head on my desk in elementary school. I also remember extremely high white blood counts( without illness) that red flagged possible allergies. I remember anemia and urine tracing blood. I remember the enamel being absent from my teeth. Anyway, I don't know if I had colic or anything. Maybe I better ask Mom if it isn't to late. I do remember I was bloated3 month picture time atleast it looked like it in my pictures. Baby fat, or something else?

I guess we might never know. Sorry, for you loss and I hope you are as well as can be.

Diana

beachbirdie Contributor
beachbirdie
Posted
  • Author

maybe so. do you also have dental defects?

i was a vomit-y baby as well, although i don't think i was sickly other than that. but i was the child who always had cavities and when i got braces at 15, i had to have something like 13 fillings because i had "pits" in my teeth. now i've seen professional articles about enamel defects that are related to celiac disease. that makes me think i've had this all my life as well.

my condolences on the loss of your mom - that's hard.

Yes, funny you should mention the dental defects. I had a lot of decay as a child! ALL my molars got drilled and filled, and also I have some fillings on the sides where little pits formed and brushing should have protected. Thank you for your good thoughts.

beachbirdie Contributor
beachbirdie
Posted
  • Author

I keep trying to think back before I had symptoms. I keep remembering concerns way back. Fatigue was my greatest symptom. I remember laying my head on my desk in elementary school. I also remember extremely high white blood counts( without illness) that red flagged possible allergies. I remember anemia and urine tracing blood. I remember the enamel being absent from my teeth. Anyway, I don't know if I had colic or anything. Maybe I better ask Mom if it isn't to late. I do remember I was bloated3 month picture time atleast it looked like it in my pictures. Baby fat, or something else?

I guess we might never know. Sorry, for you loss and I hope you are as well as can be.

Diana

Thank you for your kind thoughts.Do ask your mom everything you can think of, before it's too late! I have had so many times over the last few weeks when I wanted desperately to ask mom about something, and now I can not. Some things I guess we have to wait until we are on the other side, where all will be revealed and pain and disease will not exist.

beachbirdie Contributor
beachbirdie
Posted
  • Author

((Hugs)) I'm sorry to hear about your mom. Best wishes to you.

I think you may be right. It's a shame celiac disease wasn't well known a few decades ago... I guess there are benefits to having the latest "trendy" disease; it's easier to identify it.

Take care.

Thank you for your thoughts. I also wish the disease had been better known back in the 1950's. Perhaps if we had figured out I had celiac, my whole family could have been looked at...I am waiting for results from a pathologist who just did a limited autopsy on my mom, he thinks she had lymphoma and perhaps an intestinal lymphoma. If that turns out to be the case, we will have a really solid answer to some family health mysteries, and enough information to protect my kids and grandchildren going forward through time.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dilettantesteph Collaborator
dilettantesteph
Posted

My mother told me that I was a terrible baby. It kind of hurt my feelings. Maybe that's why your mother didn't say anything. It isn't really a nice thing to tell your child. She told me that all I did was cry and it drove her crazy. She had my two brothers to care for too. It must have been very hard. I also have dental defects and missed a lot of school. I think I got progressively worse until I finally got diagnosed. I lost my mother in 1981 and I still dream about her sometimes. I am sorry for your loss.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,016
    • Most Online (within 30 mins)
      7,748
    Chloelouise04
    Newest Member
    Chloelouise04
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      Celiac getting dentures

      By trents · Posted

      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
      Chances of being coeliac

      By JoJo0611 · Posted

      Thank you all. 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.