Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened...or Paranoid?


granolagal

Recommended Posts

granolagal Apprentice

Hi All,

I've been diagnosed with celiac disease and have been gluten-free for a year now. Last night I went to my Mom's house for dinner (as I do on a regular basis). She normally makes "regular" recipes for everyone, and then my own special gluten-free version for me (e.g. scalloped potatoes with regular flour for everyone else, and a special pot made for me that is gluten-free). Everything I ate last night was TECHNICALLY gluten-free by ingredients. However about 10-15 minutes after I ate I started to feel really sick. I got a bad headache, I was so nauseous and dizzy and just felt awful. I ended up coming home and going straight to bed. I couldn't even see straight. Today I woke up and feel like I'm hung over (even though I don't drink) and am weak and irritable. I've never had noticable digestive symptoms or otherwise before. Even before I went gluten-free, the only symptoms I had were from malnutrition/malabsorption of my food. I wouldn't feel sick after eating a piece of bread, for instance. So this is all new to me. Could this possibly be a reaction to gluten?? Or am I just paranoid?? Also, does this make sense that I would react like this to a, probably, minor cross-contamination when I never reacted to eating full blown wheat/etc before?

Thanks for any replies...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

It could be gluten. Could be a bit of food poisoning or stomach virus.

I used to try to cook gluten-free and regular at the same time. It's very hard to do. You forget and use the same measuring spoon from the gluten flour to the gluten-free flour . You have 2 pots of pasta going and use the spoon from one in the other without thinking, and on and on. She could have drained all the potatoes in her colander she uses for gluteny pasta. It's hard to know.

Mdhriggin Newbie

It doesn't sound unreasonable that you could have been glutened. It sounds like how my daughter reacts to even just a little cross contamination.

granolagal Apprentice

Interesting. Thanks guys. I don't know if it would be food poisoning, since no one else got sick, but I guess there's a chance.

I guess it's hard to say. I worried right away "maybe I've been glutened!!" but I also didn't want to jump to conclusions. The good news is that I'm feeling better today. I just wondered if those were some signs I could look out for in the future. Has anyone ever done anything possibly stupid like take a bit of regular cake or something just to see what your reaction would be?? Or is that just crazy talk?

frieze Community Regular

Interesting. Thanks guys. I don't know if it would be food poisoning, since no one else got sick, but I guess there's a chance.

I guess it's hard to say. I worried right away "maybe I've been glutened!!" but I also didn't want to jump to conclusions. The good news is that I'm feeling better today. I just wondered if those were some signs I could look out for in the future. Has anyone ever done anything possibly stupid like take a bit of regular cake or something just to see what your reaction would be?? Or is that just crazy talk?

Food poisoning can hit anywhere from hours to days after exposure...
Dukebanta Newbie

You were glutened. I have celiac, diagnosed 6months ago. Sounds like you caught yours early because of how you describe your symptoms. I did not have digestive problems for a long time but eventually did. The way you describe what happened describes many months for me until finally diagnosed. I would say don't try to figure it out because you can't. Anytime you eat in a group setting you increase you chance just because there is more people. I tell my family not to make something for me because there is always someone there that is a "picker"...they gotta try everything, and they use the same spoon. I have watched my family accidentally cross contaminate my gluten free meals. Their response is sorry and I am done eating. And these are the ones I saw. So that is a gluten hang over, it is real and I still get it. I also think you can refuse the symptoms with water and electrolytes'

1desperateladysaved Proficient

Well, I had a simalar response last evening to eating somewhere else. I brought my own food. My foods were lamb, kelp noodles, and an almond muffin. All of the foods I have been okay in the past. All foods made at home from scratch. I am having some for lunch, but not the ones I took alongs, but some I left home. I am thinking that rules out a problem with the particular foods.

On the way home I felt a pain in my abdomen and nausea, I also swelled up my abdomen and had general other swelling.

To heat the foods I placed them in a toaster oven. They were in a stainless steel small bowl with a lid. I put foil over the lid to keep it together in trainsit. I also had noodles cooked in a stainless steel pot which we brought from home. I rewashed a stainless fork that I used.

Some possible problems I could conceive of is:

The well used potholder I used dropped bits onto my lid which spilled into my meat as I removed the lid. Or

The stirring spoon touched something in the kitchen and went back into the pot.

Or the paper plate I used may have had gluten flour settle upon it in its history.

I am not saying that everyone has to be this careful, but it sure seems like I better be really careful.

I didn't have all of these symptoms in my glutenful days either. But I think my body is better able to complain. I mean I couldn't hear it complaining when it complained all of the time. Now, I have a peaceful existence contrasted with groanings. Does that make any sense?

Diana


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.