Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Test Results And Ranges

Jonoh

Recommended Posts

Jonoh Rookie
Jonoh
Posted

Hi guys,

I was just wondering if anyone could help me out. I recently got an Anti-transglutaminase antibodies test, along with a few other things, and got a phonecall from the Doc today. I have an appointment in a few days for the results, and I was just wondering, when you guys got told your results, was it classed as urgent? Like did you get called in the same day? It's just I do suffer from health anxiety, and waiting for results has to be the worst part for me!! So I'm mainly just posting this to help allay some fears. Hopefully, someone diagnosed can let me know their experiences.

Also, I was wondering how to interpret the results? Like what are the ranges and stuff?

Thanks in advance.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shadowicewolf Proficient
shadowicewolf
Posted

Oh i understand that axiety. :)

No actually, i didn't find out until a week later.

Each lab does it just a bit differently. For example, my ttg IGA was 37 (with 1-19 normal, 20-29 low positive, 30+ high positive).

nvsmom Community Regular
nvsmom
Posted

It was at least a week for me too. Hang in there.

I believe my ttg IgA test had a 0-20 range too, anything above 20 was positive. Did the doctor check your total serum IgA too? That's the test to make sure you have enough IgA so your test could show an elevated ttg IgA (if you have it).

Use this time to eat your favourite "gluteny" snacks and finish off pastas or breads so if you need to make the switch to gluten-free eating, you'll be on your way. Good luck!

Jonoh Rookie
Jonoh
Posted
  • Author

Thanks very much for the replies :D has helped calm me down somewhat, Wednesday can't come fast enough to be honest, lol.

I just realised I think I got the name of the test wrong! I can't remember what the test was now (grr, damn memory), but I remember the Doctor saying that this is a "specific test for Celiac, and there isn't really a full panel," when I inquired about it. I think it was actually endomysial antibodies? Ah well thanks again guys, I guess I'll just have to wait and see :)

guest134 Apprentice
guest134
Posted

Don't worry about the results, I know that is easier said than done but really Celiac is not that bad of a disease. Believe it or not anxiety can be a huge symptom of it and going gluten free often completely diminishes the angst from undiagnosed Celiac patients. What led you to Celiac testing?

frieze Community Regular
frieze
Posted

Thanks very much for the replies :D has helped calm me down somewhat, Wednesday can't come fast enough to be honest, lol.

I just realised I think I got the name of the test wrong! I can't remember what the test was now (grr, damn memory), but I remember the Doctor saying that this is a "specific test for Celiac, and there isn't really a full panel," when I inquired about it. I think it was actually endomysial antibodies? Ah well thanks again guys, I guess I'll just have to wait and see :)

are you in Canada?
Jonoh Rookie
Jonoh
Posted
  • Author

are you in Canada?

Nah, I'm from England :)

Don't worry about the results, I know that is easier said than done but really Celiac is not that bad of a disease. Believe it or not anxiety can be a huge symptom of it and going gluten free often completely diminishes the angst from undiagnosed Celiac patients. What led you to Celiac testing?

Yeah, I can vouch that anxiety surely does cause symptoms. If I do have celiac, I hope the anxiety will go on a gluten free diet. Being a health worrier, I've been spending waay too much time on google, lol. Celiac is the first disease which fits every last one of my symptoms, so I've asked the Doctor for it. I'm aware that it could be something completely different, but I did do a small gluten free break a while back, and I did seem to feel better. I dunno, I guess a part of me kinda wants it to be celiac, 'cause then at least it can be controlled by what I eat *sigh*

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

A good number of us are non celiac gluten intolerant, or came back negative for celiac. Worth sticking around even if tests are negative, especially if you think a gluten-free diet might help. I had rthe whole symptoms match thing, and am doing way better gluten-free, despite negative tests, including genetic. am in the UK too :)

Jonoh Rookie
Jonoh
Posted
  • Author

A good number of us are non celiac gluten intolerant, or came back negative for celiac. Worth sticking around even if tests are negative, especially if you think a gluten-free diet might help. I had rthe whole symptoms match thing, and am doing way better gluten-free, despite negative tests, including genetic. am in the UK too :)

I didn't even take the idea of non-celiac gluten intolerance into account! Thanks for that, I'll definitely look it up. Does it cause the same symptoms of Celiac?

Just an update, I got my results. The celiac was negative, but it was an IGA test, so could have been so 'cause I'm IGA deficient, I dunno. I do have a deficiency in b12 and folic acid, so am on supplements for 2 months, will see if my b12 has gone up at the end of it to see if I'm having problems with absorption. I also got referred to a gastro, so we'll see what they have to say. I have a feeling I'm gonna have to get an endoscopy, never had one, and not looking forward to it :blink: lol.

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

I am still mystified by which tests the nhs do. They are fond of the old biopsy though. It isn't nearly as bad as you probably think it will be. Remember to stay on the gluten until testing is done.

The NCGI symptoms are often very similar, but without the villi damage and antibodies. Still a fairly new area of research, but very interesting. My GI diagnosed me after negative tests including genetic, but strong response to gluten challenge and positive response to gluten-free.

Good luck with the next stage, ask lots of questions :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,951
    • Most Online (within 30 mins)
      7,748
    SY8
    Newest Member
    SY8
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.