Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fatigue?


applesandoranges

Recommended Posts

applesandoranges Newbie

I was diagnosed with celiac six months ago, and have been on the gluten free diet ever since. It’s definitely been a bumpy ride, and for the most part, I’m feeling much better-- with the exception that I am often tired. I thought going gluten free was supposed to give you more energy?

I eat well, not many processed foods, lots of protein, and have ruled out other intolerances. My vitamins are all good.

In addition to being tired, my metabolism has changed a lot and I have to eat a lot more than I used to to stay full, and I get hungry much more often. When I exercise, if I burn too many calories, I get exhausted and have to spend the whole next day eating to make up for it.

Does anyone have any experience with fatigue/changes in metabolism after being diagnosed? Doctor says I look fine, but I’m not sure if this is part of the recovery process or not.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

My fatigue was not helped when I went gluten-free, but I found out I had hypothyroidism and that kept my energy lower than most. Could that be affecting you too?

1desperateladysaved Proficient

You seem to have ruled out all of my steps to a clear mind free of fatigue. I get fatigued when I am constipated. Are you beyond any withdrawl? Do you have a gluten free house?

funkflex Rookie

When I exercise, if I burn too many calories, I get exhausted and have to spend the whole next day eating to make up for it.

Does anyone have any experience with fatigue/changes in metabolism after being diagnosed? Doctor says I look fine, but I’m not sure if this is part of the recovery process or not.

Do you eat carbs? If you eat only proteins you'll have less energy. That said, I'm 3,5 months on GFD and I also feel fatigued the day after exercise. Maybe you're just not 100 percent recovered yet?

pricklypear1971 Community Regular

I know what you're talking about. The need for more calories after working out is normal; however, it's either exaggerated for AI people or a part of the adrenals being off...

I know I have adrenal problems, not just because I'm AI (celiac, Hashimotos, endometriosis) but because I had very sudden onset of problems after undergoing steroid treatment for DH.

My doctor discussed exercise with me. Yes, I need it. Yes, it helps me feel 100% better. But I walk a fine line between enough/too much. She told me no more than every other day, or not to exceed what made me "not tired the next day". And it is a fine line.

The hungriness for me is part of the adrenal issue. And sadly enough, to support adrenals you need to eat often enough not to get really hungry. Talk about catch 22.

Anyway, after the first few months, the exhaustion and constant need for food abated; however, I also had to learn how much workout was too much. In the beginning, I really did overdo it.

It is very frustrating to feel so limited. But your stamina will improve.

Just eat on a regular schedule. Lots of veggies with protein. Minimal sugar. Workout and rest, find your fine line.

Exhaustion immediately after going gluten-free is normal, too. No one knows why, really. Just a part of healing? Sometimes it's a type of withdrawal. Personally, I think of it as a body taking a big sigh and resting. It passes.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,561
    • Most Online (within 30 mins)
      7,748

    lamps
    Newest Member
    lamps
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.