Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Icds 2013- Anyone Want To Go?


kareng

Recommended Posts

kareng Grand Master

Open Original Shared Link

ICDS 2013 Chicago

September 22-25, 2013

Anyone want to go? I'm thinking about it but don't want to go by myself.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

Open Original Shared Link

ICDS 2013 Chicago

September 22-25, 2013

Anyone want to go? I'm thinking about it but don't want to go by myself.

That is tempting - I have a great-niece expected in the next few weeks in Chicago that will be about six months old by Sept - let me check it out - will let u know.

GottaSki Mentor

Looks like it is only for certain degreed individuals...perhaps a glitch...but I could not create a login

kareng Grand Master

It said one portion was for patients, parents, etc. I didn't try to register.

kareng Grand Master

Just created an account. You use other and patient for the degrees if you don't have or want to use one of the choices.

GottaSki Mentor

will try again...was on my phone and got frustrated -- creating now -- i am interested

GottaSki Mentor

nice...on my phone the only options were the degrees that started with "D" -- i thought it odd.

Got login - will check it out.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

Ok...looks like you can only register as a "clinical deligate" -- but there is "accompanying person" -- I'll email them and see if there is a separate way to register for patients.

We could always submit a poster :D

kareng Grand Master

Ok...looks like you can only register as a "clinical deligate" -- but there is "accompanying person" -- I'll email them and see if there is a separate way to register for patients.

We could always submit a poster :D

I did as patient and other if there isn't a patient option. No delegate. At least to get an account.

GottaSki Mentor

I have an account...was talking about possible registration....we need to decide before April 1. It would cost $349 for the first of us and $149 for extra people -- so 500 divided by 2 or 650 divided by 3....800 divided by 4....etc.

Then a hotel....

kareng Grand Master

I have an account...was talking about possible registration....we need to decide before April 1. It would cost $349 for the first of us and $149 for extra people -- so 500 divided by 2 or 650 divided by 3....800 divided by 4....etc.

Then a hotel....

Not sure if extra people registration counts for us? I suppose I should run it by my hub?

GottaSki Mentor

oh is hubs going...was thinking more like you and I plus possible other...of course still unknown factor if "patients" have a different reg rate from research or clinical professionals.

kareng Grand Master

oh is hubs going...was thinking more like you and I plus possible other...of course still unknown factor if "patients" have a different reg rate from research or clinical professionals.

No! He's not going. Just thought I might tell him I was! :)

GottaSki Mentor

No! He's not going. Just thought I might tell him I was! :)

okee...I'll check with the organizers about "patient" registration and/or confirm whether we register for clinical or research sessions...and/or other options and report back in the next few days.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,807
    • Most Online (within 30 mins)
      7,748

    CeceNV
    Newest Member
    CeceNV
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Russ H
      The anti-endomysial antibody test is an old test that is generally reported as positive or negative - a lab technician looks down a microscope to check for fluorescence of the sample. It is less sensitive but more specific for coeliac disease than IgA tTG2. Hence, it is not "barely positive" - it is positive. People diagnosed in childhood recover much more quickly than adults.  I would look at testing all 1st degree relatives - parents, siblings.
    • xxnonamexx
      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.