Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Where Can I Find A Doctor To Test Me For Celiac?


egarcia5

Recommended Posts

egarcia5 Newbie

I have been seeing a gi doctor for 12 yrs for esophageal strictures, severe acid reflux, abdominal pain and bloating. I have has 11 dilitations of the esophogus done and as far as i know never been tested for celiac. Been taking nexium for 12 years but still have severe bouts of acid reflux. Over past few years i have developed othere severe symptoms which has resulted in me becoming disabled. No doctor seems to know what is going on with me so they ate of course blaming stress and anxiety. Symptoms : severe balance problems, difficulty walking at times, slowed mental status at times, difficulty talking at times, numbness and tingling in hands face legs feet throat, severe headaches, muscle spasms, stomache pains, bloating, loose stools, nausea, thyroid issues, hypoglycemia, sleepy after meals but awake in middle of night, difficulty swallowing, swelling in my throat. The list goes on but those are some of my most severe i believe. I have asked for a test from gi doc He says no just try gluten free diet for 16 days. I am gluten free for 41 days and have felt an improvement in some symptoms. My mother in law thinks it may be gluten ataxia. Hollistic dc thinks its gluten as well. Can anyone direct me in the right direction?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

GI docs and "regular " docs can order the Celiac blood tests. Even OB/GYns can order it if you have one. However, for the blood test or endoscopy ( GI doc only) you need to be eating gluten.

cahill Collaborator

As kareng said any doc can order a celiac panel . The problem is finding a doc that knows what a celiac panel is :rolleyes:( my granddaughters doc had to go look it up and still was not sure so my daughter called me from his office to ask me what it was .) , what test to run and then what to do with the results once they have them..

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,960
    • Most Online (within 30 mins)
      7,748

    Theresa Bush
    Newest Member
    Theresa Bush
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Thanks for the follow-up correction. Yes, so not 10x normal and the biopsy is therefore totally appropriate to rule out a false positive or the unlikely but still possible situation of the elevated lab test number being caused by something besides celiac disease. 
    • Waterdance
      Thanks. I believe I can trace my gluten and milk allergies to specific traumas in my life. I've had some quite severe traumas over my lifetime. Mostly in my history I was so out of sorts surviving that diagnosing gluten sensitivity/allergy/celiac was just not on the table for such a survival mode existence. Vitamin D makes sense too. Now I take very good care of myself, I have a rock solid stability and I do take 1,500 IU of D daily. It's more obvious to me now what's causing problems and so most of the time I only eat protein and vegetables. I cheat sometimes. I end up paying for it though. 
    • Heatherisle
      Thanks everyone for replying. Actually made a mistake when stating the lab range for results, should have been 0.0-7.0 not 0.7 u/ml. She was 19 u/ml. I’m afraid science bamboozles me especially trying to understand all the IgA’s and other bits!!!!Regular blood results like full blood count etc not so much!!!!
    • John767
      DiGiornos gluten free pizza at one point was  made from a dough derived of wheat starch...yet they were able to call it gluten free probably because it came in at under 20ppm for gluten.  Apparently the recipe was changed and the pizza not longer contains a wheat starch derived crust.  As for the Heinz dressing, it could be an issue with cross contamination with wheat barley and or rye somewhere during the production process.  If you read how Frito-Lays (on their website) designates items gluten free, you will understand the variances in the lengths companies go through in deciding when to put on a gluten free label and when not--Frito-Lays is pretty solid.  Also being in Canada, they may follow a common international rule of less than 20ppm of gluten is all that is required to be labeled gluten free regardless of the grains used to manufacture the product (common in Europe, Central, and South America)...it took a couple of really rough mornings after consuming some Dura Damm (labeled as gluten free outside the USA) for me to realize that it was a gluten reduced beer. Same with Mahou Beer which actually says in Spanish "suitable for celiacs", unfortunately it is not suitable for this celiac and of course the following day was really rough as well...really take the time to read the ingredients because had I read the ingredients of  Mahou's "suitable for celiacs" "sin gluten" beer I would have noticed that it was made from cabada (Spanish for barley)...hope this helps...        
    • Wheatwacked
      Here is an article that explains test results and what they mean.  Testing for Celiac Disease is so elusive, any positive, unless a lab error false positive, is evident of Celiac.  It is easier to be in denial, tnan committing to gluten free.  Like not believing a pregnancy test.  Denial will lead to more suffering. Are You Confused About Your Celiac Disease Lab Results?
×
×
  • Create New...