• Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


Advanced Members
  • Content count

  • Joined

  • Last visited

Community Reputation

1 Neutral

About jaten

  • Rank
    Advanced Community Member

Contact Methods

  • Website URL

Profile Information

  • Gender
    Not Telling
  • Location
  1. I'll be doing BRAG 2013 - Bike Ride Across Georgia for the first time this year. Is anyone else riding this year or have experience with this event? I'm trying to find out what to expect in the way of REALLY gluten free offerings. Any help is appreciated!
  2. This thread appears to be a few months old, but I'm going to respond anyway for future readers. Yes, I have eaten Nut Thins a few times, and I have had a reaction to them every time. The pecan and almond "flavors" are the only ones I tried. It took me about 3 times to narrow it down to the Nut Thins, but without doubt, any time and every time I ate them I felt really sick for a few days. Then I read the fine print and discovered the warning. Puzzle solved. For many but not all Celiacs a "gluten free" label does not necessarily mean the product is gluten free enough.
  3. Williamsburg Co., Sc

    Friday (the day after Thanksgiving) I fly into Charleston, SC. I'll be there until sometime Sunday, when I'll drive to Williamsburg County (Kingstree). Please if any of you have experience or suggestions for the Kingstree area, I will be forever grateful :-) I'll be there Sun afternoon through Wed afternoon for business. I'll have a rental car, but as I said, this is a business trip, and I'm working with a team of others; our schedule is very tight.
  4. I'm traveling to Charleston and on to Williamsburg Co the end of this week (will create a related thread), so I've been searching for Charleston-area gluten free, too! Please share here what you've learned so far. I leave this Friday! Here are two sites that may be helpful as you begin your research for Celiac-safe options in Charleston: Charleston Gluten Free Registry and Urbanspoon: Charleston's Best Gluten Free Friendly Restaurants
  5. I was diagnosed with Celiac in 2005. Even now when I am glutened I sleep for days.
  6. Completely gluten-free Resturaunts?

    Another vote for New Day Gluten Free outside of St. Louis. Used to be / still is Beck's Bakery. Yum. In Nashville, Aunt April's Bakery. This one is more a dedicated gluten-free bakery than restaurant, but she does have a few tables and ONLY gluten free sandwiches, etc. Highly recommend.
  7. I haven't been around this forum in several years, but another vote for Against the Grain baguettes!!! The most delicious and versatile gluten free product I've found. Period.
  8. Hi Salax & welcome! How odd that your dr. didn't give you a name for the "slow emptying" malady Does it cause you much discomfort? I'm guessing maybe not, since it's not something you've needed to follow up on. Please ask questions (not that I have the answers, but perhaps someone here will), and share what you learn.
  9. Long story, short, I was diagnosed with Celiac in 2005 (biopsy), and went very strictly gluten free. I had grown pretty comfortable with the gluten free diet and life was good. Then gastroparesis struck. Almost a year ago I was diagnosed with idiopathic gastroparesis, and was prescribed domperidone and cisapride for the gastroparesis itself and zofran for the associated nausea. At first I could only eat one small meal a day. After awhile I was only able to eat a meal every 2-3 days. Now, it's liquids with a small meal about once a week. Ensure, fruit juices, and recipes on the link below are my mainstays. My gastroenterologist and a gastroparesis specialist (after further testing) are both recommending a GES device trial. I'm thinking about that. The most helpful dietary information I've found so far is found here: Diet Intervention for Gastroparesis Particularly helpful to me were the smoothie recipes beginning on pg 10. They are working very well for me. I'm looking for ways to incorporate protein into my diet. I see Ensure makes one that is a protein enhanced, but so far I haven't found it around here.
  10. I know that there are a number of us diagnosed with Celiac and also with gastroparesis because I've seen a few threads scattered around here and there. This thread is developed so that those of us diagnosed with both can ask questions, share suggestions, whatever is relevant to someone struggling with celiac and gastroparesis. I haven't found any reputable research associating gastroparesis and celiac, so I'm not sure "Related Disorders" is the forum for this thread. (I'm not saying there isn't reputable research tying the 2 together; I just haven't found it.) Browsing the forum topics, however, Related Disorders seems the most logical fit. I'll start us off. Other C & G sufferers please join and let's build a healthy discussion thread!
  11. Thanks, GFresh, I'll do that! Meanwhile, does anyone know of any glutenfree protein enriched drinks?
  12. Between the title and the topic, I've just about asked my question. Because of severe gastroparesis most of my nutrition now has to come in the liquid form. I drink Ensure, & fruit juices, and make smoothies with yogurt and fresh fruit for nutrition, but protein is my concern. I saw Kellogg's Special K Protein Shakes and Protein Water today. Does anyone KNOW whether they are gluten free? The ingredients LOOK ok, but that's never been enough for me. Those of you who have been around for awhile know that I was a VERY sick Celiac prior to diagnosis. I still had villous atrophy on biopsy 2 1/2 years after diagnosis and becoming strictly gluten free, even though at the 2 1/2 years the antibodies were negative. All of that is to say, I can't & won't take chances. Anybody KNOW?
  13. Nobody Gets It!

    youLOVEamelia, I think you're on the road now You're right, so many people (friends & family) don't understand, but I don't think it's willful disregard, it's just a concept that's not easy to understand. I mean, come on, everybody can eat bread and pizza, right?? What? No soy sauce, either?? Think about it from their perspective, if we're not careful we can begin to sound like neurotic hypochondriacs very quickly. Celiac is getting more publicity than when I was diagnosed late in '05, but it's still largely unknown to much of the general public. Unfortunately, for us, many (most?) social events revolve around food. I have had to adjust my perspective so that the social event is about the socializing; I don't have to have a fork in my hand to join the fun! What works for me, when new friends ask me out to eat, etc. is to smile genuinely and say something like, "I have a specific kind of food intolerance that makes it very difficult for me to eat out. I would hate to miss out on the fun, though, so yes, I'd very much like to come. I just want you to know beforehand that I'm completely happy tordering a coke, or something and enjoying the conversation and good company. The only reason I'm even mentioning it now is so that you'll understand later at (??)" That acknowledges the elephant in the living room, but doesn't make the evening about the elephant. I eat either before or later and get to enjoy the socializing. Friends quickly begin to understand and in a non-threatening way opens the door later to more conversation about my "food intolerance" aka Celiac. Sometimes we go where I can order safely, but the trade-off is that sometimes we go to a friend's favorite restaurant, etc. I don't want to miss any of it When others sense that you are truly relaxed and comfortable socializing without eating, then true friends will soon completely relax with you (and with Celiac), too! You'll have a great time in social situations if Celiac is something you have, not who you are. Hang in there! Take care!