Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Help Understanding All This!


Karah

Recommended Posts

Karah Newbie

Hi, everyone. This is my first time posting but I could really use some help and support right now. I had never had food allergies until my onion one in 2000. I got really sick overseas and when I came back home I was given two rounds of antibiotics. For 2-3 months after that I had major digestive upset that no one (doctors/tests) could figure out. I was basically told IBS deal with it. I got better, for the most part, when I figured out I couldn't have onion anymore. Then last June I was given the Celiac diagnosis along with a couple of other food allergies. I started feeling a lot better until 2-3 months ago. I just had more food allergy testing done on Tuesday and was given a bigger list...mostly vegetables, tuna, oranges, watermelon, and squash. These are things I eat all the time! Now I can't. I already found I can't have legumes, soy, gluten, bananas, buckwheat, wheat, peanuts, corn, nuts, and dairy. Why am I having all these allergies/intolerances all of a sudden, I feel soon I won't be able to eat anything! Is there a way to fix this? Thanks for any help/suggestions!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



stri8ed Rookie

Hi

 

Many people with celiac disease also have a leaky gut, which can cause you to develop new food allergies. Please refer to my post here.

Lisa Mentor

How were you tested for Celiac Disease? This is the test ( full panel ) that you should have been tested for Celiac:


Anti-Gliadin (AGA) IgA
Anti-Gliadin (AGA) IgG
Anti-Endomysial (EMA) IgA
Anti-Tissue Transglutaminase (tTG) IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG
Total Serum IgA

 

Although other food intolerances are common, often times it's only discovered when gluten is totally removed from your diet.  It does sound like you were allergy tested.  Celiac is not an allergy, rather an autoimmune disease. And it's offen is triggered by an illness, stress, pregnancy, etc...

 

Oh ....and Welcome!

Juliebove Rising Star

What kind of allergies are these?  IgE?  IgG?  What kind of test was done?  What kind of Dr. did this test?

Karah Newbie

@stri8ed thank you for the link to the other post!

@Lisa I had the full blood panel done. My doctor has Celiac and has no gluten symptoms other than the severe damage shown on his biopsy. It looked really bad when he showed me. I do have a wheat allergy but I also have Celiac which is not a food allergy. We are going to start testing for other autoimmune diseases because we don't think Celiac is the only one I have. Thank you for the welcome!

@Juliebove I had an allergist/immunologist administer the allergy tests. I had food and environmental tests done. I know the foods were IgE tests. I had them done twice, once last June and then again on Tuesday. I had way more foods show up this time than last. I am also finding I am intolerant to a lot of foods. The foods that showed up this time are all foods I eat all the time since my first allergy test, and now I can't eat those. I am so overwhelmed and running out of things to eat. Today I am in really bad pain due to consuming soy and corn, but I kind knew that would happen. I also had a pretty bad reaction to some new fish oil pills. I am allergic to tuna, but there was no tuna in them. They caused hives, dizziness, and breathing problems.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    3. - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

    4. - cristiana replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,438
    • Most Online (within 30 mins)
      7,748

    rednecksurfer
    Newest Member
    rednecksurfer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
    • deanna1ynne
      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
    • cristiana
      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott.  Have manufacturers ever said why that should be the case?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.