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Uk Not Much About Brain Fog?

wiggle

By wiggle
in Introduce Yourself / Share Stuff

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wiggle Newbie
wiggle
Posted

Hello,

I am waiting for my final confirmation that I have coeliac although it seems pretty sure to myself and the doctors because of the blood test results.

My symptoms are tiredness, anxiety , depression, miscarriages and brain fog, which all seem to be discussed a lot on here, But practically nothing on any uk based sites. This seems a bit odd to me , cant really find a mention of brain fog at all and mentioning it to a doctor they just look at me slightly blankly. I feel a bit like i may be pinning my hopes in coeliac being the cause of my problems when it may turn out that it isn't. Anyone else found this ? Its like the Uk are just not recognising the links? Thanks!

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VeggieGal Contributor
VeggieGal
Posted

Hi Wiggle, I've had most of your symptoms including brain fog. I know what you mean about your family gp not understanding about brain fog. Have you been referred to a specialist yet? because mine is brilliant and totally gets it!

I joined coeliac uk in January (expired now) and attended a local seminar run by Dr Stuart Currie a neuroradiologist working with Professor David Saunders, Dr Hoggard and Dr Hadjivassilou. Dr Currie is currently in research looking at brain aspects and imaging in patients with Coeliac disease/gluten ataxia and he also talked alot about brain fog.

If you google his name, you will find info on brain fog etc.

Good luck with the testing.

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

I am in the UK too, and have struggled to find up to date information here. This site has helped tremendously, especially about the mental side of things. VeggieGal's comments are really helpful.

It is great that good research is happening, my experience is that GPs are very mixed in their level of knowledge.

I am sorry to hear about what a difficult time you have had. I had many miscarriages before my 2 lovelies, sorry you have had to go through that.

I hope you get your diagnosis, but if not, consider whether it might be non celiac gluten intolerance. That is my diagnosis, and my life has transformed gluten-free.

Stick around and ask lots of questions

Welcome to the board :)

wiggle Newbie
wiggle
Posted
  • Author

Thank you both, so fantastic to get replies on here makes me not feel such an odd bod!

On to a bit more googling right now , thanks veggie gal.

So you guys found the gluten free did make a difference to the dreaded fog? anyone join a local group too?

:) x

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

Brain fog, depression, stress, anxiety all gone gluten-free :)

In fact, the first sign I get when I accidentally eat gluten is a feeling of hopelessness and dropping into depression. Even though I now now it will pass in a couple of days I feel I will never cope again.

It is very real, plenty of folks here will agree.

I found celiac UK a bit helpful, I used their helpline a few times. They can give you details of local groups. Their food directory is extensive, covering all the main supermarkets and catering suppliers. They are launching an app for members. They give different advice to here, and I tend to check things out here.

I found I had other intolerances, and don't eat any processed foods now. If you use gluten-free food replacements keep an eye on fat sugar and salt, as they can be higher.

I have used this as my support group, there is good chat on the what's for dinner thread and tickle me elbow as well as the health side of things.

Nice to meet you :)

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      Son's legs shaking

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