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Athlete's Foot/poison Ivy?...then


mari-lyn

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mari-lyn Rookie

I posted this under another forum before I found this...

About a month ago I had a blistery rash between a couple of my toes on both feet. Not symetrical but close. It spread on to the top of my foot but not too far. I assumed it was Athlete's foot (confirmed by my son and my doctor ) even though I had never had this before. All the Lotramin and foot powder in the grocery store did not get rid of it. When I got a rash on the heels of both hands I figured it was Poison Ivy! Not severe. I have dry scaley skin now. It may be in my head but I have "twitches" of itching/

Discussing celiac disease with people at work I had this light bulb moment - could it be DH? My mother's twin sister was dx 50 years ago with celiac disease (at Mayo) and I have a niece with celiac disease (DM at age 9 and celiac disease at age 15). I suspect my oldest sister had it (she passed away at 42, but always was a picky eater and never felt too good - her daughter is experiencing some GI problems and I encouraged her to go get tested). The Mayo clinic wanted to do a twin study with my mom but she was in Ohio with 4 kids and they were not going to pay for any travel expenses....anyway,...

Anyone have any similar symptoms experiences with the first signs of DH? I remember having rashes on the insides of my arms at the elbows when I was young, and mom telling me I was allergic to wheat, eggs and wool when I was a baby. Of course, I was fed all kinds of things at the age of 2 weeks back in 1954.

I do not know if it is in my head or not but I feel itchy all over sometimes.

Any help appreciated.

Marilyn


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      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
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    • Samanthaeileen1
      Hello there! New to celiac community, although I have lots of family in it.  My two year old was just diagnosed with celiac disease based on symptoms and bloodwork.  symptoms (swollen belly, stomach hurting, gagging all the time, regular small vomit, fatigue, irritability, bum hurting, etc) she got tests at 18 months and her bloodwork was normal. She just got tested again at 2 1/2  because her symptoms were getting worse and these were her results :   Tissue Transglutaminase Ab, IgA 58.8 Unit/mL (High) Endomysial Antibody IgA Titer 1:5 titer (Abnormal)   Gliadin Antibody IgA < 1.0 Unit/mL Gliadin Antibody IgG 8.5 Unit/mL Immunoglobulin A 66 mg/dL Her regular pediatrician diagnosed her with celiac and told us to put her on the strict gluten free diet and that we wouldn’t do an endoscopy since it was so positive and she is so little (26lbs and two years old). I’m honestly happy with this decision, but my family is saying I should push and get an endoscopy for her. It just seems unnecessary and an endoscopy has its own risks that make me nervous. I’m certain she has celiac especially with it running in mine and my husbands family. We are now thinking of testing ourselves and our 5 year old as well.  anyways what would y’all recommend though? Should we ask for an endoscopy and a GI referral? (We are moving soon in 5 months so I think that’s part of why she didn’t refer us to GI)    
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