Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Got My A.l.c.a.t. Test Results Back And I'm Not Happy


emcmaster

Recommended Posts

emcmaster Collaborator

Hey everyone -

I did the A.L.C.A.T. Comprehensive V test. Here's what came back (I promise, this is going to be LONG)...

Red foods - severe reaction:

broccoli

cane sugar

corn

date

flaxseed

garlic

green pepper

honeydew melon

lemon

lime

lobster

olive

orange foods - moderate reaction:

avocado

basil

beef

buckwheat

cantaloupe

eggplant

fig

herring

hops

lamb

lettuce

mung bean

onion

orange

paprika

salmon

sesame

yellow foods - light reaction:

apricot

asparagus

blackberry

black-eyed pea

blueberry

brussel sprouts

carrot

celery

cherry

chicken

coffee

crab

cucumber

fructose

lentil bean

lima bean

malt

oyster

papaya

pear

pecan

pinto bean

raspberry

red pepper

safflower

string bean

sunflower

tea

vanilla

veal

GOOD GRIEF! I have to say I'm most upset about the corn, cane sugar and garlic. I think this is a leaky gut thing - most of what showed up are things I've been eating a lot of lately (although that just could be coincidence and would then explain why I've felt pretty badly...)

Gluten didn't show up at all, unless you count malt and hops. I had no reaction to wheat, rye, barley or oats... but after talking to the nutritionist, she said that because it's been almost a year since I've consistently eaten them, they might not have shown up but still be a problem. I *know* they are a problem, but I'm questioning it now because they didn't show up...

I guess my big question is... what the heck am I going to eat? I can live very happily on veggies, fruits and proteins... but my veggies and proteins are severely limited.

Also, does anyone know of any good resources for corn-free info? Are people as sensitive to corn, or is there a CC issue with corn?

Thanks for your help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jayhawkmom Enthusiast

It's only my opinion, but I've heard a LOT of negative things about that particular test, LOTS of false positives and test reactions to foods that are not reacted to. I think your best bet is an elimination diet to see if you TRULY react to any of these foods.

Lots of luck to you!

emcmaster Collaborator

Thanks for your thoughts. I am definitely planning on doing an elimination diet. I figure if I cut them all out and actually feel better, I'll know that at least one of them is making me sick and can add things back one at a time. I guess I figure that at least this gives me a place to start from and know what to cut out...

jerseyangel Proficient

Hi Elizabeth,

I'm sorry the test didn't give you more specific, concrete information. :(

I remember my allergist telling me that these tests result in many positives because when we eat a food, our bodies make antibodies to it. People usually end up doing an elinination diet anyway to weed out the false positives.

emcmaster Collaborator

Thanks, Patti. I hope I didn't completely waste $500. :blink:

tiffjake Enthusiast
Thanks for your thoughts. I am definitely planning on doing an elimination diet. I figure if I cut them all out and actually feel better, I'll know that at least one of them is making me sick and can add things back one at a time. I guess I figure that at least this gives me a place to start from and know what to cut out...

I am so sorry that you are frusterated! I do know how you feel though! I eliminated everything they told me to (well, all of the red and orange foods, but not the yellows, just watched out for those), for a month, and then started re-introducing them.

That is actually how I found out about my Celiac Disease, because when I added wheat back in, my intestines shut down and I ended up in the hospital! But I had been eating wheat up to the time of the test, and you have not, so maybe that is why it didn't show up with your test.

I do know that they said that you have to watch what you tend to eat everyday. Like you said about corn, you eat a lot of it. It might do you good to have a more balanced diet, not having the same foods everyday.

I think the elimination diet is pretty much what you will be doing at this point, but at least you have a starting point now! You know what foods to watch when you re-introduce them. I am sorry that you list is so long...do you eat those "red" foods a lot? My list was much shorter. My red foods were only 3 foods. Cantaloupe, caulifour, and sweet potatoes.

PM me if there is anything I can do to help.

emcmaster Collaborator

Yes, almost all of the red, orange and yellow foods are foods I eat all the time, especially in the last few weeks. That makes me think it's a leaky gut thing, so I'm going to do some research on trying to repair that while I cut these foods out. Thanks for the support!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,393
    • Most Online (within 30 mins)
      7,748

    HeckelCrazy
    Newest Member
    HeckelCrazy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
    • Scott Adams
      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
    • Clear2me
      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
    • Mmoc
      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.