Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cd Blood Testing For My Baby

jesslee23

Recommended Posts

jesslee23 Newbie
jesslee23
Posted

Hi,

We think that my 21 month old son has celiac disease and I'm confused as to what blood tests to ask to be run. He did have his immune system tested last May (for other reasons) and there were abnormalities there. His IgA was 46 (normal range 87-474) as was his IgG which was 434 (normal range 681-1648). I live in an area that is notoriously difficult for diagnosis for anything outside mainstream. My son has not grown since October, in either weight or length and I'm so tired of him being sick all the time! I'm almost hoping that he does have celiac disease because at least it's fixable! The other options are too scary to think about.

Can you please tell me what the Immune tests would show with a positive celiac disease?

TIA

Jessie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gf4life Enthusiast
gf4life
Posted
His IgA was 46 (normal range 87-474) as was his IgG which was 434 (normal range 681-1648)

I was just wondering if this is his total serum IgA? If it is, then he is very low and the regular blood tests for Celiac would not be accurate. If you can not get a doctor in your area to find the right tests to do on your son, you may want to conscider Open Original Shared Link . They offer a stool test and a gene test for Celiac Disease that can be done at home, and sent back to them through the mail. It is not easy to get a diagnosis, but if you can find a doctor who knows what he is doing...

Your best bet would be to try and get him a referral to a children's hospital. Do you have one in your area? I have to travel about 1 1/2 hours (one way) to get to my children's doctor, but it is worth it, and I know of some people who travel out of state to get to a doctor who knows about celiac disease.

It is very important to get him seen as soon as possible, since he is so sick and he is not growing properly. Take a copy of those Immune systen tests with you where ever you end up going. And if you can get the tests done through Prometheus labs, they are the best for testing for celiac disease, and they include the total serum IgA in their Celiac Panel to check for deficiency and if the blood test comes back negative, they automatically run a gene test on the blood to see if the person carries any of the genes responsible for celiac disease.

God bless,

Mariann

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,462
    • Most Online (within 30 mins)
      7,748
    jjwejackso
    Newest Member
    jjwejackso
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Sugar intolerance 10 years into gluten-free diet

      By trents · Posted

      Welcome to the celiac.com community, @science enthusiast Christi! I don't have a problem with disaccharides but I do with polysaccharides and complex carbohydrates which are so common in many gluten free processed foods. Gar gum, xanthan gum, pea fiber, chicory root, inulin etc. All those "prebiotics". 
    • science enthusiast Christi
      Sugar intolerance 10 years into gluten-free diet

      By science enthusiast Christi · Posted

      Hey Celiac friends,  I'm wondering how weird I am. About a year ago, I started getting bloated all the time and having extremely smelly gas. Lots of it. I had to avoid people, keep windows open, etc. It really upended my life in a somewhat horrifying way. I figured out that if I didn't eat any sugar, the symptoms mostly resolved. With more experimentation, I found out that I'm intolerant to any disaccharides (things with sucrose, maltose) and some starches. I've since figured my small intestine stopped making some digestive enzymes. Since Celiac causes the immune system to attack the small intestine, I wonder if I was getting low-level gluten contamination from my environment. (My family eats gluten in our home, and I have to use a shared kitchen at work for lunch.)  I am apparently among the 2% of Celiacs who also have a similar reaction to soy. I've been avoiding both gluten and soy for over a decade now, but sometimes you just get poisoned. For example, I love my houseplants and bought an insect-preventing spray online. After spraying it on all my houseplants, I found out it has soybean oil. Sure enough, two days later I was sick. Soy is such a big ingredient used in everything, I doubt it's possible for me to avoid it completely. Everyone uses lotions with soy on their hands, so every doorknob and switch and item I touch is risky for me.  I was just wondering, has anyone else had carbohydrate intolerance after or related to Celiac? My doctor doesn't know anything about it, especially since I can still digest lactose. Wondering if there are other people out there with similar stories. If eating was complicated before, now it's a bit crazy to be honest.  Thanks, Community! 
    • trents
      New at gluten sensitivity

      By trents · Posted

      Welcome to the celiac.com community, @Healthierbody2026! Just let me check something with you because there is still much confusion in the general population regarding the terminology associated with gluten disorders. You say you have recently been diagnosed with gluten sensitivity. Do you mean NCGS (Non Celiac Gluten Sensitivity) or Celiac disease (aka, "gluten intolerance")? The symptoms of these two conditions overlap. Celiac disease has an autoimmune base and so, there are tests that can be run to detect antibodies in the blood that are produced. Celiac disease does damage to the small bowel lining because of the inflammation present from the autoimmune attack. This is not the case with NCGS for which there are no tests. Celiac disease must first be ruled out in order to arrive at a diagnosis of "gluten sensitivity". 
    • Heatherisle
      Blood results

      By Heatherisle · Posted

    • Healthierbody2026
      New at gluten sensitivity

      By Healthierbody2026 · Posted

      Hi I was recently diagnosed with gluten sensitivity I’m very new at this and trying learn everything I can about everything dealing with this any advice suggestions would be appreciated 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.