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GF Diet


kabowman

OK, How many have had positive dietary changes with inconclusive CD tests? How many have been formally diagnosed with CD?  

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kabowman Explorer

I just received my test results back after 2 1/2 months of being gluten-free and the GI did not find any evidence of Celiac Disease so I don't know if I have healed so they couldn't see any damage or if I am actually just intollerant of:

Lactose/Casien

Gluten

Peanut

Corn

Soy Bean

Vinegar (but not wine)

and was curious about everyone elses' diagnoses.

Thanks in advance...Kate


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tarnalberry Community Regular

I was gluten-free for two weeks before testing, never had severe symptoms, and don't have many of the complicating factors that would suggest malabsorption (hence, there's likely not as much intestinal damage for me as others may have). My test results were negative aside from the anti-reticulin IgA. The gluten-free diet made me feel better, and I did a dietary challenge after 1 month gluten-free (and may do another one, since that one included dairy), which had positive results.

burdee Enthusiast

I did Enterolab stool tests 2 months after going gluten-free and STILL showed both gluten and casein antibodies/intolerances. When I tried to subsitute soy for dairy, my BODY told me (with symptoms similar to my 'dairy' symptoms) that I also don't tolerate soy products. I also limit acidic stuff (tomatoes, citrus, acidic condiments) now, because I just feel better (less reflux, gas, bloating, cramping). My initial symptoms were EXCRUCIATING abdominal pain, bloating, gas, constipation, steatorrhea, fatigue and other less obvious ones. Eliminating gluten relieved the excruciating pain and some of the bloating and gas. Eliminating dairy relieved the constipation, steatorrhea, menstrual like pains, bloating and gas. Avoiding soy prevented the last 3 symptoms. So avoiding gluten/dairy/soy DEFINITELY relieved my symptoms.

BURDEE

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    • Mari
    • trents
      Sorry, I think I got you mixed up with another poster.
    • rei.b
      I hadn't been eating gluten free before having the antibody test done. I started eating gluten free after having the test done because the gastro PA told me to eat gluten-free for 6 months. I'm now 3 months in.
    • trents
      I tend to agree with RMJ. Your doc took the reasonable and practical approach to diagnosis. All things considered, it was the right way to go. However, if you have first degree relatives that show signs of possible celiac disease, urge them to get formally tested before they start the gluten free diet.
    • RMJ
      It sounds like you have a very reasonable GI doctor, who diagnosed you based on family history and symptoms after eating gluten. I would consider you lucky! The other option would be to make yourself very sick by doing weeks of a gluten challenge prior to an endoscopy.
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