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Celiac-disease Testing

dbuhl79

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dbuhl79 Contributor
dbuhl79
Posted

I'm new here, and unsure of I have celiac disease, but the symptoms seem to be matching up. After 3 months of various digestive issues, and a handful of doctor appointments with no success. After a day of nothing but bagels (thinking plain mundane food) I've gone gluten free for roughly over a week. Although, not strictly as I have been learning after the fact what has gluten and what doesn't by trial and error. However, my symptoms have GREATLY improved and I have felt almost normal again. This leads me to request a celiac testing by my physician. My question is, must I be consuming gluten for this test to be accurate?

These are my following symptoms,

abdominal cramping (more localization on left side)

diarrhea (and or constipation)

naseau

fatigue

cold sensitivity (possibliy anemia)

Does anyone else suffer from this and even after a bowel movement at times feel worse?

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lovegrov Collaborator
lovegrov
Posted

You must go back to eating gluten for the tests to be accurate. You haven't been gluten-free enough for long enough to skew it yet, but you need to start eating it again. Fatigue is THE most common symptom of celiac disease.

richard

tarnalberry Community Regular
tarnalberry
Posted

Yes, you MUST be consuming a fairly decent amount (about the equivalent of three slices of bread a day) of gluten for a while before getting tested.

dbuhl79 Contributor
dbuhl79
Posted
  • Author

Richard,

Thanks so much for the reply! I really hate to skew it if I can convince them to test me. Ahh, nice big wheat bagels, and a nap heading my way!

Thanks,

Dana

Guest barbara3675
Guest barbara3675
Posted

If you get inconclusive results after being on/off gluten and are not sure, you need to think about testing via Enterolab in Texas. I got a negative blood test while eating gluten from the doctor's office and tested positive for gluten and casein intolerance while not on gluten from Enterolab. The test is done in your home by you, sent overnight to them and and I got my results in less than two weeks via email. I am very happy with the professional treatment and trust them completely. I bought the complete kit which included gene testing which was revealing as now we know where my granddaughter who has full blown celiac disease for five years now, got it.

Barbara

celiacfreeman Contributor
celiacfreeman
Posted

If you have private insurance it will go up if your diagnosed. I would use

the unoffical entrolab (spelling) rather than the doctor blood test.

Ps you sound like a classic celiac to me.

dbuhl79 Contributor
dbuhl79
Posted
  • Author

Celiacfreeman, Thanks for the information. Luckily my group health insurance through work is pretty good and paid fully within the company. I'll keep that in mind when I switch insurances in the future.

Now here's an odd question for all those diagnosied "celiacs" out there. Does an odor change in your bowel movements arise? I've noticed now being back on wheat (and mind you that's a joy when it hits my system!). But it tends to smell similar to copper almost. Does anyone else notice this?

Thanks for all of the wonderful information and support, this is a great forum!

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dbuhl79 Contributor
dbuhl79
Posted
  • Author

:huh: Well, to keep everyone posted, I saw my PCP today. She is scheduling me an appointment with a GI specialist, to confirm that I need a sigmoidoscopy(sp). I'm so sick of appointments!! But at least I may finally get some answers. And luckily this hospital has a specialist in Celiac Disease, and I should get to see them for this consult.

Back on gluten, and feeling tired. Not too much cramping or diahrrea, maybe I am wrong?

Well wish me luck everyone, and thanks for the informative posts. :D

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

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    • NanceK
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    • knitty kitty
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      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
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      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
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      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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