Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Vs Wheat Allergy


Melanie

Recommended Posts

Melanie Rookie

Ok,

I have lots of gas and multiple bowl movements/day. I also have low iron, low zinc, and poor night vision. I don't have stomach pains though.

I talked to my doctor about it and he told me just to try the diet and I do feel better on it and have a lot more gas and brain fog when I do eat wheat although I'm not super sensitve to it. I'm really just wondering if I have celiac or a wheat allergy. I can't really find a clear distinction when I search for it.

Mostly I'm wondering this because I'm having a horrible time with the diet mostly because I probably have some form of a syndrome (polycystic cystic ovarian syndrome) that prevents me from eating high glycemic foods like potatoes, rice and corn and I don't know what to eat anymore! Oh, and I'm allergic to soy. I can eat lots of veggies, fruit, meat and dairy, but that doesn't do it for me. I also have a history of eating disorders so I'm having a hard time eating the higher calorie substitutes because I don't want to gain weight. It is kind of a triple whammy for me to since 1. they are higher in calories, 2. I'm more sensitive to the high glycemic index foods they are made from, and 3. now if my villi are all happy they can absorb more.

I think I'm going to try the York lab panal in December when I have some money but right now I'm very poor, in vet school, and have no insurance so I'm just wondering if I really have it. I have something, but how do I know if it is celiac or a wheat allergy?

Thank you and sorry for being so negative. You guys are always so supportive and I'm just a little frustrated with it right now.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

The difference between a wheat allergy and a gluten intolerance is the portion of the immune system reacting to the wheat protein. In the case of a wheat allergy, it's IgE molecules that bind with wheat protein and wreck havoc. In the case of a gluten intolerance, it's the IgG (and IgA) molecultes that do it. Additionally, with a wheat allergy, you can eat oats, and (depending on the severity), barley and rye.

It's tricky to tell the difference without doing any medical tests, given that the symptoms of gluten intolerance overlap with the symptoms of a wheat allergy in some people. You could always give oats or rye a try and see if you react to that the way you react to wheat. The fact that you have nutrient deficientcies, however, points towards poor absorbtion, which is a feature of gluten-intolerance, and not a wheat allergy. If you are gluten intolerant, you must avoid ALL gluten, whether you are super sensitive or not.

I understand that difficulty of dealing with high-glycemic index foods - I'm hypoglycemic myself. The key here is that the sum of your meal needs to have a low glycemic load. That does allow some portion of the meal to include higher glycemic foods, as long as it is balanced with foods that slow the release of sugars into the bloodstream so you don't require a level of insulin output you can't support. Of course, it doesn't make it realistic to eat a lot of high carb meals, but there are a lot of other options out there.

You may find it easier to focus on whole foods, and not substitutes for gluten-filled foods. For instance, you could make a stir fry with vegetables and chicken breast, cooked with some canola oil, and served over brown rice. With plenty of vegetables, and a cup of rice, you're looking at a very filling lunch or dinner for 400-500 calories that is full of nutrition and enough protein and fat to keep you from needing a quick burst of insulin to deal with the blood sugar increase. Or you can make a meaty chili that goes relatively light on the beans (replaced by lower-glycemic vegetables) that has enough protein, fat, and fiber. Of course, you may be more or less sensitive to carbohydrates, but most everyone with issues surrounding their blood sugar and/or insulin merely need to find the proper ratio that their body can handle.

As long as you keep your total calories down, you won't gain weight, but as you noted, you will start absorbing nutrients better and you may find your weight unstable for a few months. Realize that your body is adjusting to being healthy, and a weight gain you see now need in no way be a permanent gain. Keep doing the research you're doing, and you'll find, in a few months, you've gotten a lot of inormation that makes these decisions much easier.

Melanie Rookie

Thanks for the response, Tiffany!

I really appreciate it. I'm kind of lost right now. I think I will get tested during Christmas when brain fog is ok because I'm really wondering if there is something else going on. I think I need tests in order to make me commit because it is really hard! It is ok most of the time but I have crazy cravings or I want to eat for convenence. I am trying to come up with new and easy meal ideas too. Thanks.

taneil Apprentice

Have you been tested for hypothyroidism? Brain fog and polycystis are both symptoms of Hypothyroidism also. You might get checkout for it also.

Melanie Rookie

Yes, I've been tested for hypothyroidism many many times. Thank you for mentioning because it is a real common problem and I think a lot more people need to be tested for it. My TSH is always between 1 and 1.5 which is really good.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

    3. - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    4. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    5. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,470
    • Most Online (within 30 mins)
      7,748

    Elkay008
    Newest Member
    Elkay008
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.