Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamin Supplement Suggestions


cinderellad

Recommended Posts

cinderellad Newbie

I have been symptomatic for 2 1/2 years but only recently diagnosed. I had negative blood work and positive biopsy. My biopsy actually read "treated celiacs disease. This may be because my rhuematologist mentioned that he felt I had celiacs or Crohns disease and I somewhat altered my diet (breads, pasta, bakery items). A few years ago I had lost about 10 pounds, my hair starting falling out and I had horrible knee pain. The weight and hair loss were attributed to "stress" and the knee pain was thought to be arthritis due to years of running and cartilage damage. After being seen by two orthopedist, having Hylagan injections and no relief I was sent to a rhuematologist that evaluated me and referred me on to a gastroenterologist. I also had 9 months of stomach pain, and woke most nights in a sweat so sleep deprivation became an issue also. I started to see a therapist in the middle of all of this because every time I mentioned my symptoms to friends/family they informed me that it was "stress" and I was doing this to myself. I began to think I must be really nuts if I could inflict all of this on myself and not be able to get it under control. After being on the diet for the past 3 weeks, my pain is mostly gone, the night sweats are gone, my hands are not swelling , I can almost bend my toes painlessly and I am sleeping better. However, my hair is still falling out, I am very tired, and my gums have started bleeding when I brush. If anyone can recommend any vitamins/dosage I would appreciate your help. I currently take a multivitamin specifically for hair/skin/nails and glucosamine.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ianm Apprentice

Welcome. I find liquid minerals to be the best thing for me. I get the New Vision brand. www.newvision.com. Liquid vitamins didn't seem to make much difference for me but some people here swear by them. I take vitamin pills that are gluten-free. I used to get night sweats by the bucket full but those are gone now. 3 weeks is not enough time. It seems to take about an average of 3 months for things to really improve and a good year to become healthy. Keep at it because it is worth it.

celiac3270 Collaborator

Centrum is gluten-free and I'd recommend that.

I'd also recommend that you start taking a folic acid supplement

Lesliean Apprentice

Isn't it like a wonderful miracle to feel all around better? Celiac can lower bone density so while the intestines heal it can help to be careful to get enough calcium. Anemia also is common as is B vitamin complex deficency, especially B12. Some people take sublingual B12. I like Centrum Silver because it is cheap and gluten-free. Some people like to add fish oil but I forget what they are adding back-just that they said it helped a lot. I love glucosamine. My knees don't crack anymore. Maybe it would help your joints. I know someone with arthritis (a common side effect of Celiac disease!) who found great relief in glucosamine (1500mg a day). If your stomach gives you trouble, some people like DGL licorice which is sold in health food stores and helps with the gassiness or burping. I drink a lot of green tea and medicinal teas like ginger and licorice.

My running was getting so difficult I thought maybe I was just getting old, but it was really just Celiac disease and I feel better than I have felt in 10 years.

Leslie

KaitiUSA Enthusiast

I like the liquid vitamins especially while intestines are healing because of the way it absorbs in your body. I use Liquid Vitamins Plus by Utrition.

It is probably good to take sublingual B12 vitamins too.

Other things that help are probiotics and enzymes...with the combo of what I took while I was healing it really gave me a boost.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Colleen H's topic in Coping with Celiac Disease
      2

      Barilla gluten free pasta

    2. - knitty kitty replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      13

      Pain in the right side of abdomen

    3. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      31

      Insomnia help

    4. - Scott Adams replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      13

      Pain in the right side of abdomen

    5. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      13

      Related issues

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,467
    • Most Online (within 30 mins)
      7,748

    denisediane072
    Newest Member
    denisediane072
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      I just want to mention that corn and wheat do both contain storage proteins (corn has zein, wheat has gliadin and other gluten proteins), and there are some small similarities in certain amino acid sequences. However, those similarities are not considered medically equivalent, and corn proteins do not trigger the autoimmune response of celiac disease in the vast majority of people with celiac. Celiac disease specifically involves an immune reaction to gluten peptides found in wheat, barley, and rye. Corn is classified as gluten-free because its proteins do not activate that same immune pathway in most individuals. Although corn intolerance is very real, the explanation about the proteins being the same is oversimplified to the point where it's not accurate.
    • knitty kitty
      @Heatherisle, Newly diagnosed people often suffer from nutritional deficiencies.  Thiamine B1 stores can be depleted within a few weeks.  Thiamine deficiency can be localized in the gastrointestinal tract causing Gastrointestinal Beriberi.  It is under diagnosed by doctors!  Dysfunction of the gallbladder can be seen in Gastrointestinal Beriberi.   Have your daughter mention the possibility of Gastrointestinal Beriberi to her dietician!  Gastrointestinal Beriberi will be improved with high dose Thiamine administration, orally or by IV.  It's important to have thiamine deficiency corrected as quickly as possible to prevent life threatening health problems and risk permanent damage.   I had Gastrointestinal Beriberi but my doctors did not recognize it.  My thiamine deficiency progressed to Wernickes Encephalopathy.  My doctors diagnosed me as "depressed".   I corrected the thiamine deficiency at home with over the counter Thiamine Hydrochloride tablets.  I'm very thankful I studied Nutrition.   See if the symptoms match:  Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Gastrointestinal Beriberi Presenting With Chronic Diarrhea: A Case Report https://pmc.ncbi.nlm.nih.gov/articles/PMC12794365/
    • knitty kitty
      Thiamine and other B vitamins are available without a prescription, but it's always best to discuss supplementing with your doctor and dietician.   I take Thiamine Hydrochloride, Benfotiamine, and Thiamine TTFD.  (Avoid Thiamine Mononitrate because it's not well absorbed or used by brain f bodies.)  Benfotiamine especially helps heal the gastrointestinal tract.  Thiamine TTFD is great for improving brain function and mood.  They all work to improve everything, but Thiamine TTFD through the blood brain barrier the easiest, so the brain starts working to control everything better. Every form of Thiamine needs magnesium to make enzymes.  I like Magnesium Threonate which enters the brain more easily than other forms.  Low magnesium contributes to anxiety and depression.  The eight B vitamins all work together, so a B Complex is a good idea.  Don't worry if it already has thiamine in it.  The B vitamins are water soluble and easily excreted.   I get mine online.
    • Scott Adams
      So far, current research does not show that celiac disease directly “destroys” the gallbladder or routinely causes it to need removal. What we do know is that undiagnosed or untreated celiac disease can affect digestion in several ways, including changes in bile flow and fat absorption, which may increase the risk of gallstones in some people. That said, gallbladder disease is also very common in the general population, particularly among women, and many people have their gallbladders removed for reasons unrelated to celiac disease. In some cases, digestive symptoms from undiagnosed celiac may be mistaken for gallbladder problems, which can complicate the picture. So while there may be overlap, it is not accurate to say that celiac disease routinely destroys the gallbladder or that most people with celiac will need it removed.
    • Jmartes71
      Currently having to stop because of mri imaging and past medical stuff that was told to stop with vitamins that would interfere. I keep asking if im diabetic because of the Ketones and when I looked up it mirrors my issues but im negative supposedly. Its all because Im not eating gluten because formerly diagnosed celiac back then just food consumption. Issues is in Cali they aren't addressing the autoimmune part which im currently battling as " just the flu they call it" not its my controlled by mouth celiac but not controlled autoimmune part which last employment damn near killed me as a bus driver and thats the celiac malpractice issue. No care of the patient, as im in this situation. Celiac should follow FOREVER in medical records no matter marriage change name, insurance change, change of anything.It is a battle that is not fair to the patients at all.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.