Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Did It Take For Detox Symptoms To Go Away,


CGally81

Recommended Posts

CGally81 Enthusiast

I'm really hoping my detox symptoms, which have gotten pretty nasty in the past week or so (but are also somewhat dying down, thankfully), go away soon. Along with the super hunger, but that actually is noticably (slowly) decreasing too.

Anyway, before I went gluten-free, or figured out what was up with tons of internet searches and self-diagnosis, I had the GI symptoms for like ~5 months. I know for a fact it happened this year, because I remember feeling great during Christmas vacation 2008, so I definitely got the symptoms this year. Just don't remember when, but I'd say I was having GI symptoms for less than 6 months.

Well, since I only had overt symptoms for 6 months at most, I'm hoping my detox period should be short. I'm 28 years old, so if I'd actually been having more covert symptoms for years (i.e. gut damage, which is possible, as I developed fructose malabsorption last year and had to give up apples) and not realized it, then I'm probably in for a longer detox than I'd think before I get back to feeling normal again.

So, how about the rest of you guys? How long did you have your symptoms before you went gluten-free? And how long did it take after going gluten-free to feel normal again?

It would be interesting to see the relationship between the two values.

EDIT: Oops! Wrong board! This belongs on the post-diagnosis board, I think. Could an admin move this there? I'm sorry.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ang1e0251 Contributor

My earliest clue might have been lactose intolerance in high school which took me a few years to figure out. I started having the brain fog, fatigue, insomnia and a much harder time concentrating about 5th grade. I don't know if that's related or no.

I didn't have any trouble with my stomach until my daughter was about 2 YO, I was about 32. After that, things went downhill. I self diagnosed at age 49 so that's long time if it's all related.

GottaSki Mentor

Since being diagnosed just over 5 months ago, I have discovered that I had celiac symptoms most of my life. I'm 44.

Except for a few teen years where I was eating next to nothing I've always been slightly bloated and had periodic unexplained stomach trouble/flu like symptoms which included achy joints etc. When I'd go to the doctor I'd complain of general fatigue, soreness and occasional upset stomach. Episodes got worse, but livable. I continued to tell the docs that I eat a very balanced diet and get A LOT of exercise, yet I have had unexplained weight gain for years...docs could never find anything except anemia - and made it clear they thought it was all in my head.

The past 8 years symptoms increased until in 2008 I was extremely bloated and sick all the time, especially in the warmer months. I kept on my doctor because it was obvious something was going on -- there was a hit on low Vitamin D and finally after 50 blood tests she ran my tTG -- only slightly positive but positive. I was given referral to GI and told to ask for someone that "wants a Celiac Sprue case". Turns out we have one of the best Celiac facilities right here at UCSD, unfortunately it took 26 years of UCSD primary docs to get me pointed in the right direction. My biopsy confirmed moderate to severe damage from Celiac Disease.

I've been gluten-free for 5 months and my digestive system has improved...I hardly bloat anymore. I was really hungry for about the first two months. Unfortunately my fatigue, joint pain and heat intolerance have become much worse. Still looking into other possibilities for some of my symptoms, but remain hopeful that gluten-free time will bring more healing and I'll be able to claim a solid timeline for how long it took to heal.

Each time I read of someone being diagnosed much younger than I it makes me very happy and grateful that some doctors seem to be getting better training to look for Celiac -- although there is a long way to go on that front.

Improved health to you!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    2. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    3. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    4. - Kirita posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Recovery from gluten challenge


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,241
    • Most Online (within 30 mins)
      7,748

    Martha Kaczmarek
    Newest Member
    Martha Kaczmarek
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
    • Kirita
      I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, how long did it take you to feel back to normal? It took about two months before she got “glutened” again but now she’s having difficult coming back from that and has a lot of fatigue. I’m hoping someone has some advice! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.