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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Sooo Confused About This Rash....
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3 posts in this topic

This fall I had all the testing done -- EMA (Immunoglobulin A anti-endomysium antibodies) AGA (IgA anti-gliadin antibodies) DGP (Deamidated gliadin peptide antibody) tTGA (IgA anti-tissue transglutaminase) as well as upper endoscopy. Everything came back negative. Not even a trace of positive in the bloodwork.

Every time I eat gluten (and I mean EVERY time) I break out in hives, welts, and a fiery looking rash. It is ALWAYS symmetrical -- on both sides of my stomach, both feet, behind both knees, both sides of my bum, both sides of my neck, etc. Not all of those places at the same time but always symmetrical. The rash is never blistery or weeping, but very itchy and painful.

Could this still be dh? Or is it just an eczema reaction to gluten? And either way, how can this be when all the blood results are absolutely normal?

I know I need to listen to my body and I do follow a gluten-free diet. I just wonder how one can be so darn sensitive with not a shred of medical evidence to back it up.

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Have you ever had a biopsy done of the area immediately adjacent to the rash while the rash is in its active phase? That is the way to diagnose dermatitis herpetiformis, and could determine once and for all with medical evidence whether you are celiac or gluten intolerant. If that is important to you... either way, it seems obvious you should avoid gluten.

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    • Pocah, how long have you been gluten-free? i used to get the rash, or the itch at first, on my elbows for the tiniest amount of g. But after 8+ years, it no longer happens! I ate corn flakes twice, as breading, not checking the ingredients. Thought my husband did. He didn't know about malt flavoring, or probably forgot! Anyway, I got c instead. I miss my dh indicator. C is so normal in my life it doesn't stand out.
    • I wonder if this post is referring to me?  I tested high positive with blood tests and was denied an endoscopy as it was seen as unnecessary.  The Dr. said they already knew it was celiac based on the extremely high blood test.  I immediately went gluten free and all further testing including endoscopy which I had to beg and barter and pull strings to get, have been negative.  Might it be Pellagre instead?  My fatigue is much better gluten free but carbohydrates seem to cause almost instant brain fog.  I have at times doubted my diagnosis because it came from a misinformed Dr.
    • For me, the rash is rather handy. It serves as an indicator that I have exposed myself to gluten. With about 1 teaspoon of wheat based product ( bread etc ) I will come out in a rash somewhere within about six hours or so, and it will be itchy for about 24 hours then disappear. It gets worse the more gluten I consume. But looking on the bright side, it lets me know if I have encountered a "hidden source" of gluten, which is good. Rather this rash than the consequences of prolonged exposure from a hidden source.
    • Reality check in the past few weeks, looks like I got glutened at what should be a "safe" restaurant for gluten-free and gone right back to the beginning again recovery-wise Now too scared to eat anywhere and turning down social opportunities because of the food issues, what a miserable way to live this is.
    • Your issues is probably with the carbs then. there is a alternative. best pricing is miracle noodle. For Konjac rice substitute. Konjac flour works with some people others it does not. https://miraclenoodle.com/collections/miracle-noodle-rice-products There is a trick to cooking it but they make no carb noodles, and rice. I use the rice to make all kinds of rice like dishes like my mothers mexican fried rice etc. It does have a tad off texture and flavor but comes close. If your looking for no carb breads Julians Bakery makes some pretty decent breads but you HAVE to toast them to use them. I just found them a month ago....First time eating a bread in 2 year, and first time in as long as I can recall eating one that did not make me feel bloated and fat. No carbs, no sugars, no yeast, no dairy, no soy, and very low sodium...... Been eating french toast, vegan cheesy bread, bread with almond butter and sugar free jam I have honestly been in food heaven since I found it. BTW some celiacs can not tolerate any grains very rare but it happens.    OH and on what I have is really bad Ulcerative Colitis, so I have a bunch of other trigger foods that cause inflammation, bleeding, distention, constipation, gas, bloating etc. Carbs/sugars is a huge one for me fructose, glucose, sucrose.
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