Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Brain Fog, Anxiety

seagreen

By seagreen
in Coping with Celiac Disease

Recommended Posts

seagreen Newbie
seagreen
Posted

I've just recently been diagnosed with gluten intolerance. I've experienced social anxiety as far back as I can remember, as well as having some issues with OCD. In the past four months of eliminating gluten, I've noticed that the persistent brain fog has diminished and my anxiety has gone down to manageable levels.

WELL, for some reason I thought China Buffet was a good idea last week. WRONG. I managed to get myself glutened and my old symptoms showed back up. Its like I could feel my brain become inflamed. It's the strangest feeling, I used to call it "brain squeeze", because that's exactly what it feels like. Now I know what it's from. I also have had the same old anxiety where I couldn't look anyone in the eye and paranoia concerning people judging me. I ALSO had mood swings where I just wanted to burst out crying and irritability.

It's been five days and it's like my head comes in and out from this foggy haze. I wake up and think I'll be okay for the day and it comes back again. How long does this last?? I like feeling normal!

I'm never eating out again.

Ha.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Skylark Collaborator
Skylark
Posted

Hi and welcome. I get that feeling from gluten. For me the gluten anxiety reaction goes for 3 or 4 days, sometimes 5. It helps me to take fish oil and extra B12.

seagreen Newbie
seagreen
Posted
  • Author

Thanks so much for your suggestion! I do take some B-12 in a Multi, but what gluten free brand would you suggest as a separate supplement? This brain fog is still making its dreaded appearance and is driving me bonkers. :wacko: I feel like my IQ has plummeted, which is no good for being in school.

Skylark Collaborator
Skylark
Posted

Look for sublingual methylcobalamin. I haven't really seen gluten in single vitamin pills very often so just look at the ingredients. I've been taking the Natural Factors 1000 mcg sublingual. It doesn't have any gluten ingredients but it DOES have lactose in the tablet.

I'm really sorry to hear that you're still not feeling better!

PT2B Newbie
PT2B
Posted

i know the brain fog feeling as well. I find just eating a whole lot of fruits and vegetables. and as much fiber as you can while still eating food bc fiber does grab some of your minerals naturally. Thats why its always better to get your fiber from veggies and such vs what i use sometimes (psyllium husk fiber capsules).

I approach is clean it out. And if you feel the fog the same way as me I would drink some caffeine to be functional and get some exercise bc that will also aid with flow.

Good luck!

  • 4 weeks later...
MegRie Rookie
MegRie
Posted

Oh my gosh! I know the brain fog all too well (something that is so hard to describe to anyone who has never experienced it). First I would say as a general rule of thumb I NEVER EAT AT A BUFFET. And I actually avoid Chinese restaurants all together unless with the excetpion of pei wei and P.F. Changs (which has great Gluten-Free options and they put it on a different colored plate so you know that they heard you).

As far as recovery goes I usually have pretty bad symptoms for about two weeks before I start noticing much improvement. Sorry :( It really sucks! Hope you feel better soon.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Thoughtidjoin's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Dried Chickpeas

      Hello, @Aretaeus Cappadocia, My favorite source of B12 is liver. 😺 I react to nutritional yeast the same way as if I were glutened. Casein, a protein in dairy, and nutritional yeast have protein segments that match certain antigenic protein segments in gluten. The proteins in rice, corn (maize), and chicken meat have them as well. Some pe...
    2. trents
      - trents replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Confused about HLA-DQ Celiac gene test result

      Welcome to the celiac.com community, @ainsleydale1700! First, it is very unlikely, given your genetic results, that you have celiac disease. But it is not a slam dunk. Second, there are some other reasons besides having celiac disease that your blood antibody testing was positive. There are some diseases, some medications and even (for some people...
    3. ainsleydale1700
      - ainsleydale1700 replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Confused about HLA-DQ Celiac gene test result

      Thank you, that is helpful!
    4. Scott Adams
      - Scott Adams replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Confused about HLA-DQ Celiac gene test result

      HLA testing can definitely be confusing. Classic celiac disease risk is most strongly associated with having the full HLA-DQ2 or HLA-DQ8 heterodimer, which requires specific DQA1 and DQB1 genes working together. Your report shows you are negative for the common DQ2 and DQ8 combinations, but positive for DQB102, which is one component of the DQ2 pair. On its...
    5. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to Thoughtidjoin's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Dried Chickpeas

      I agree with your post and have had similar experiences. I'm commenting to add the suggestion of also using nutritional yeast as a supplement. It's a rich source of B vitamins and other nutrients, and some brands are further supplemented with additional B12. I sprinkle a modest amount in a variety of savory recipes.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,437
    • Most Online (within 30 mins)
      7,748
    vahid
    Newest Member
    vahid
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Dried Chickpeas

      By knitty kitty · Posted

      Hello, @Aretaeus Cappadocia, My favorite source of B12 is liver.  😺 I react to nutritional yeast the same way as if I were glutened.  Casein, a protein in dairy, and nutritional yeast have protein segments that match certain antigenic protein segments in gluten.  The proteins in rice, corn (maize), and chicken meat have them as well.   Some people with Celiac might tolerate them without a problem, but I need to avoid them.  For those still having symptoms, cutting these out of our diet may improve symptoms. 
    • trents
      Confused about HLA-DQ Celiac gene test result

      By trents · Posted

      Welcome to the celiac.com community, @ainsleydale1700! First, it is very unlikely, given your genetic results, that you have celiac disease. But it is not a slam dunk. Second, there are some other reasons besides having celiac disease that your blood antibody testing was positive. There are some diseases, some medications and even (for some people) some foods (dairy, the protein "casein") that can cause elevated celiac blood antibody test scores. Usually, the other causes don't produce marginally high test scores and not super high ones. Having said that, by far, the most common reason for elevated tTG-IGA celiac antibody test scores (this is the most common test ordered by doctors when checking for celiac disease) is celiac disease itself. Please post back and list all celiac blood antibody tests that were done with their scores and with their reference ranges. Without the reference ranges for negative vs. positive we can't tell much because they vary from lab to lab. Third, and this is an terrible bum steer by your doc, for the biopsy results to be valid, you need to have been eating generous amounts of gluten up to the day of the procedure for several weeks.  Having said all that, it sounds most likely that you have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. The two share many common symptoms but NCGS is not autoimmune in nature and doesn't damage the lining of the small bowel. What symptoms do you have? Do you have any blood work that is out of norm like iron deficiency that would suggest celiac disease?
    • ainsleydale1700
      Confused about HLA-DQ Celiac gene test result

      By ainsleydale1700 · Posted

      Thank you, that is helpful! 
    • Scott Adams
      Confused about HLA-DQ Celiac gene test result

      By Scott Adams · Posted

      HLA testing can definitely be confusing. Classic celiac disease risk is most strongly associated with having the full HLA-DQ2 or HLA-DQ8 heterodimer, which requires specific DQA1 and DQB1 genes working together. Your report shows you are negative for the common DQ2 and DQ8 combinations, but positive for DQB102, which is one component of the DQ2 pair. On its own, DQB102 does not usually form the full DQ2 molecule most strongly linked to celiac disease, which is likely why your doctor said you do not carry the typical “celiac genes.” However, genetics are only part of the picture. A negative gene test makes celiac disease much less likely, but not absolutely impossible in rare cases. More importantly, both antibody testing and biopsy are only reliable when someone is actively eating gluten; being gluten-free for four years before testing can cause both bloodwork and intestinal biopsy to appear falsely negative. Given your positive antibodies and ongoing symptoms, it may be reasonable to seek clarification from a gastroenterologist experienced in celiac disease about whether proper gluten exposure was done before testing and whether additional evaluation is needed.
    • Aretaeus Cappadocia
      Dried Chickpeas

      By Aretaeus Cappadocia · Posted

      I agree with your post and have had similar experiences. I'm commenting to add the suggestion of also using nutritional yeast as a supplement. It's a rich source of B vitamins and other nutrients, and some brands are further supplemented with additional B12. I sprinkle a modest amount in a variety of savory recipes.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.