Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Brain Fog, Anxiety

seagreen

By seagreen
in Coping with Celiac Disease

Recommended Posts

seagreen Newbie
seagreen
Posted

I've just recently been diagnosed with gluten intolerance. I've experienced social anxiety as far back as I can remember, as well as having some issues with OCD. In the past four months of eliminating gluten, I've noticed that the persistent brain fog has diminished and my anxiety has gone down to manageable levels.

WELL, for some reason I thought China Buffet was a good idea last week. WRONG. I managed to get myself glutened and my old symptoms showed back up. Its like I could feel my brain become inflamed. It's the strangest feeling, I used to call it "brain squeeze", because that's exactly what it feels like. Now I know what it's from. I also have had the same old anxiety where I couldn't look anyone in the eye and paranoia concerning people judging me. I ALSO had mood swings where I just wanted to burst out crying and irritability.

It's been five days and it's like my head comes in and out from this foggy haze. I wake up and think I'll be okay for the day and it comes back again. How long does this last?? I like feeling normal!

I'm never eating out again.

Ha.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Skylark Collaborator
Skylark
Posted

Hi and welcome. I get that feeling from gluten. For me the gluten anxiety reaction goes for 3 or 4 days, sometimes 5. It helps me to take fish oil and extra B12.

seagreen Newbie
seagreen
Posted
  • Author

Thanks so much for your suggestion! I do take some B-12 in a Multi, but what gluten free brand would you suggest as a separate supplement? This brain fog is still making its dreaded appearance and is driving me bonkers. :wacko: I feel like my IQ has plummeted, which is no good for being in school.

Skylark Collaborator
Skylark
Posted

Look for sublingual methylcobalamin. I haven't really seen gluten in single vitamin pills very often so just look at the ingredients. I've been taking the Natural Factors 1000 mcg sublingual. It doesn't have any gluten ingredients but it DOES have lactose in the tablet.

I'm really sorry to hear that you're still not feeling better!

PT2B Newbie
PT2B
Posted

i know the brain fog feeling as well. I find just eating a whole lot of fruits and vegetables. and as much fiber as you can while still eating food bc fiber does grab some of your minerals naturally. Thats why its always better to get your fiber from veggies and such vs what i use sometimes (psyllium husk fiber capsules).

I approach is clean it out. And if you feel the fog the same way as me I would drink some caffeine to be functional and get some exercise bc that will also aid with flow.

Good luck!

  • 4 weeks later...
MegRie Rookie
MegRie
Posted

Oh my gosh! I know the brain fog all too well (something that is so hard to describe to anyone who has never experienced it). First I would say as a general rule of thumb I NEVER EAT AT A BUFFET. And I actually avoid Chinese restaurants all together unless with the excetpion of pei wei and P.F. Changs (which has great Gluten-Free options and they put it on a different colored plate so you know that they heard you).

As far as recovery goes I usually have pretty bad symptoms for about two weeks before I start noticing much improvement. Sorry :( It really sucks! Hope you feel better soon.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Healthierbody2026's topic in Related Issues & Disorders
      15

      New at gluten sensitivity

      @Healthierbody2026, so you say here that you were diagnosed a few years back but in your first post you say you were recently diagnosed. I am totally confused!
    2. Dr. Gunn
      - Dr. Gunn replied to anya22's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Test interpretations

      As has been pointed out previously, it is not unusual to have mixed tTG and EMA results with active celiac disease. While awaiting your biopsy appointment you could request celiac genetic risk testing. If you don't carry the HLA-DQ2 and/or DQ8 genes, your lifetime risk for celiac disease is < 1%. The celiac risk genes are present in close to 100% of celiac...
    3. Lotte18
      - Lotte18 posted a topic in Publications & Publicity
      0

      Prospective CRISPR research

      Hi all, I'm just wondering if anyone knows whether Theresa Flores of Stanford University has been able to fund her research proposal to use CRISPR technology to directly alter our celiac genetic DNA coding? I know there's been a lot published on using CRISPR to alter wheat so it's "less" aggravating. But no one seems to indicate that wheat would then...
    4. knitty kitty
      - knitty kitty replied to Healthierbody2026's topic in Related Issues & Disorders
      15

      New at gluten sensitivity

      @Healthierbody2026, Welcome to the forum. We would like some clarification as to whether you have been diagnosed with NCGS or Celiac disease. Many people who have gastrointestinal symptoms are diagnosed with IBD or NCGS without proper investigation into Celiac disease. This can delay a correct diagnosis for as long as ten years or longer. During...
    5. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to Healthierbody2026's topic in Related Issues & Disorders
      15

      New at gluten sensitivity

      A few starter suggestions for gluten-free living: - one of the other responses to you mentioned the Forums. On any page of this website, there is a blue banner near the top of the page with some menu choices. The menu choice "Forums" drops down and gives a selection. One Forum topic is "Gluten-Free Foods, Products, Shopping & Medications", another...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,702
    • Most Online (within 30 mins)
      7,748
    AMJ59
    Newest Member
    AMJ59
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      New at gluten sensitivity

      By trents · Posted

      @Healthierbody2026, so you say here that you were diagnosed a few years back but in your first post you say you were recently diagnosed. I am totally confused!
    • Dr. Gunn
      Test interpretations

      By Dr. Gunn · Posted

      As has been pointed out previously, it is not unusual to have mixed tTG and EMA results with active celiac disease. While awaiting your biopsy appointment you could request celiac genetic risk testing. If you don't carry the HLA-DQ2 and/or DQ8 genes, your lifetime risk for celiac disease is < 1%. The celiac risk genes are present in close to 100% of celiac disease cases. If you do carry the genes, biopsy confirmation is essential given your history of symptoms and tTG antibody results.
    • Lotte18
      Prospective CRISPR research

      By Lotte18 · Posted

      Hi all,  I'm just wondering if anyone knows whether Theresa Flores of Stanford University has been able to fund her research proposal to use CRISPR technology to directly alter our celiac genetic DNA coding?  I know there's been a lot published on using CRISPR to alter wheat so it's "less" aggravating.  But no one seems to indicate that wheat would then have to be grown in a vacuum.  My understanding is that wheat can self cross pollinate/contaminate if it's grown downwind from other strains of wheat.  Go ahead and correct me if I'm wrong.   Anyway, what I'd really like to know is, what's up with research to directly alter celiac DNA coding?  Is Flores the only person out there proposing this?  Has the NIH funded a CRISPR study for us?   Many thanks, Charlotte
    • knitty kitty
      New at gluten sensitivity

      By knitty kitty · Posted

      @Healthierbody2026, Welcome to the forum.  We would like some clarification as to whether you have been diagnosed with NCGS or Celiac disease.  Many people who have gastrointestinal symptoms are diagnosed with IBD or NCGS without proper investigation into Celiac disease.  This can delay a correct diagnosis for as long as ten years or longer.  During that time, health problems related to Celiac disease that occur outside of the gastrointestinal system can show up.  One of those health problems is Diabetes.   I got misdiagnosed with IBD because there was no such thing as NCGS at that time.  I was told I was prediabetic for several years.  I became diabetic and had a cascade of health problems for more than ten years after until I was properly diagnosed with Celiac disease.   Did you have a DNA test to see if you carry any of the genes necessary to develop Celiac disease?  Did you have blood tests for anti-gluten antibodies?  Did you have an endoscopy?  Did biopsy samples show intestinal damage consistent with Celiac disease?  If not... I suggest you have a discussion with your doctor about proper testing for Celiac disease and whether you've had them done.  To diagnose NCGS, the doctor has to first rule out Celiac disease.   @trents could you link that article on antibody tests for Celiac?  Thanks!
    • Aretaeus Cappadocia
      New at gluten sensitivity

      By Aretaeus Cappadocia · Posted

      A few starter suggestions for gluten-free living: - one of the other responses to you mentioned the Forums. On any page of this website, there is a blue banner near the top of the page with some menu choices. The menu choice "Forums" drops down and gives a selection. One Forum topic is "Gluten-Free Foods, Products, Shopping & Medications", another is "Gluten-Free Recipes & Cooking Tips". Others relate to Restaurants, Traveling, and so on. Spend some time surfing through them. - Arguably, the single best food in a gluten-free diet is quinoa. Costco sells a house brand that appears to be gluten-free at a pretty good price. Costco can be a source of some other gluten-free foods. Another resource I found after going gluten-free is AzureStandard.com. I buy a lot of gluten-free foods there. I checked just now and it looks like they have some service to parts of Alabama. - Learn to read food labels carefully and learn what to look for. Don't be shy about calling customer service. - If you can, dedicate your home to be gluten-free. Sort the foodstuffs (any thing that could end up in your mouth) you currently own into "safe" and "not safe". Give away the "not safe". Go through your kitchen systematically and clean everything once. It's like moving into a new apartment of questionable cleanliness. Once it's clean, though, you don't have to worry so much about it. - If you live in a "mixed" household (like mine), start calling gluten-containing foods "poop". Keep as much separate as you reasonably can. While we were transitioning to a safer kitchen overall, we would designate one set of dishes to be safe (and the other for poop). Our kitchen is mostly safe now and we don't segregate dishes anymore. However, when the coprophages want to eat some poop they eat it on the porch and rinse their dishes immediately afterwards. - I don't know the gluten limit for NCGS, but for celiac it is quite low: 20 ppm (parts per million) is the official standard, but some people seem to be sensitive even at that level. One, or maybe a few, breadcrumbs are supposedly enough to trigger symptoms. I haven't tried the experiment myself though. - My transition to gluten-free living has had some silver linings. My health is better. But it has also been a period of personal growth as I've taken up cooking in a serious way. I hope this helps to address your question
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.