• Ads by Google:

    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:

       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
Stubborn red head

Im Newbie And A Oldy

Rate this topic

Recommended Posts

My mother diagnosed me and herself ten years ago. I didn't believe it. I had been sick for so long, and didn't know what to believe anymore. I was 16 years old but I was exhausted of doctors and tests and being poked and prodded.

As far as I know I am not celiac, I am Intolerant to the Gluten grain. I can have it but at times I am unable to process, over the years I have found that my system does better with small amounts of complex carbs (bread, pasta etc..) Here lately I have been having really bad stomach issues. So I have now been on the diet for two weeks and I am feeling better physically, mentally my whole system is better, My temper is calmed down, my head is more clear. It has made such a difference to my body in the last week.

I know that I am gonna have to stay on this diet for a while but I am having issues following the diet, helping my husband understand why I am doing this, figuring out what is safe and not safe.

Do I got 100% gluten free or do I just avoid the complex carbs like breads, pastas, cakes, cookies, anything that has wheat flour in it.

Share this post

Link to post
Share on other sites
Ads by Google:
Ads by Google:


The effects you are describing are consistent with celiac disease. It has many symptoms, which vary from individual case to case. Have you actually been tested for celiac disease? Your mother "diagnosed" you--how?

If indeed you do have celiac disease, you must completely avoid wheat, rye and barley. You will not heal and recover on "gluten light."

You will find help and support here. At first, it seems overwhelming, but it is not. There are so many things that you CAN eat safely. Focus on them.

Fresh from the butcher meats; plain fruits and vegetables; eggs; many foods by Kraft, ConAgra, General Mills and Unilever (they will clearly disclose gluten grains in their ingredient lists).

Come here with your questions. Someone here will know the answer.

Share this post

Link to post
Share on other sites

Peter has given you the best advice and I agree totally.

You can check out my thread "Newbie Info 101" in the coping section for some tips on avoiding gluten, etc.including safe foods, cross contamination issues, etc.

See if anything there helps? :)

Best wishes and welcome!

Share this post

Link to post
Share on other sites

I found out today that I really need to be fully Gluten free I had a wonder teriyaki tilapia dish that was wonderful. But within 10 minutes I felt like I had to go to the bath room and now, with no end in site for two hours. My Stomach was in real bad shape.

My mother Decided that I had Celiac was 16 by taking my health history, and all of my symptoms, talked to the team of doctors that was over seeing my care in the hospital about the possibility it could be celiac (she found it online). They said that there was a real possibility that I am. They did a few tests all coming back negative. They informed us that this was the first real lead to what was causing me to be as sick as I was.

** Back history Kidney failure, Gallbladder removed at 15 and on 3 different antacids to help with Acid Reflux and a brain deformity, week tendons, and joints, just to skim the surface.

Even with the test being negative the doctors said that it was a good idea to put her and I on the diet to see if it improved our health. I got better but I didn't quite get it and rebelled against it for years. She has been gluten-free for 10 years and at the peak of health.

Share this post

Link to post
Share on other sites

Sounds like if you want to feel better you are going to have to be a stubbornly gluten-free redhead :) Drink plenty of water and I hope you feel better soon.

Share this post

Link to post
Share on other sites
Ads by Google:

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now


  • Forum Statistics

    • Total Topics
    • Total Posts
  • Member Statistics

    • Total Members
    • Most Online

    Newest Member
    Tracy McGuinness
  • Popular Now

  • Topics

  • Posts

    • If you don't follow a gluten-free diet -- you'll probably start first noticing problems because of vitamin deficiencies -- your body can't absorb nutrients from your damaged small intestine; you will be more likely to get stomach cancer (the figure I remember seeing was 800x more likely), more likely to get colon cancer and other cancers; because it is an autoimmune disease it can trigger other autoimmune diseases (that cannot be fixed by dietary changes) like lupus and ms and certain types of arthritis.  WAY more likely to get hard to control diabetes.  There are now doctors that test for celiac when people come in with diabetes. Looking back I had symptoms in my teens, but wasn't diagnosed until I was in my 40's. Already had some bone loss (couldn't absorb calcium), had anemia for about 15 years that they couldn't fix, had lived with suicidal depression for decades that went away the 3rd day I was on a gluten-free diet, and had cancer.   You might not think so now, looking at all the things you feel you'll miss out on, but you are so very lucky to have been diagnosed at 19. Any problems you currently have will be reversible. gluten-free Pizza is great -- you just have to find the places that make it the best. The first couple months are the worst, because gluten seems like it is in everything, but once you figure out your new "go to's" for snacks and meals, it gets easier. Good luck!
    • Hello, has anybody any suggestions for gluten free options at LAX airport, specifically terminals 2 and Tom Bradley International?   I saw there's a Built Burger.  Has anyone been there?  Thank you!  
    • A mistake that many of, myself included, made! Don't feel bad about it, feel good that you've at least identified a possible cause. I was faced with a similar choice a few years ago and opted to go back onto gluten for a 'challenge' to see if I had celiac. I kept a food diary during this time and tracked the reappearance of symptoms, some gastro intestinal but primarily neurological. I tested negative for celiac much to my surprise, but the challenge confirmed gluten as an issue, so NCGS is best diagnosis I'm likely to get for now at least.  Your question re fructans is a good one and not easy to answer. The fact you've asked it suggests you've done some research and are aware of the unclear science once celiac is excluded. For what its worth I think that what may happen is that some people who get IBS relief from a gluten free diet are indeed correct to avoid the foods, but incorrect in identifying gluten as the cause.  They may actually be reacting to fructans, polyols, or other parts of the wheat,carbs rather than proteins.  However there are also well documented cases where gluten itself is the culprit, some more info on this here and I believe this is where I sit.   You need to decide what level of uncertainty you can live with. Medical assistance will depend on reintroducing gluten. If you do it with a food diary you may learn more about your reactions, maybe even be able to customise your diet to your own body. Most importantly, you would properly exclude celiac as a cause, which is important because its a serious condition and if you do have it, far better to know for both you and your family who may also want to be tested.  Finally, I collected some links and info here some time ago, it may be useful.  Best of luck Matt
    • I wish I had been diagnosed at 19. In retrospect, I was having symptoms as a 16 year old, and didn't get diagnosed until I was almost 30. That delay created a lot of havoc, and other problems that are now permanent (an aggressive case of rheumatoid arthritis and violent reactions to contamination). You want to be non-compliant? Your choice... but the symptoms will most likely get worse... and you could end up like several other non-compliant celiacs I knew... none of the ones who decided to be non-compliant (as opposed to those of us who occasionally get poisoned) lived more than 10 years past diagnosis, and their deaths were ugly (cancer was bad, pernicious anemia and complete malabsorption were even worse).
  • Upcoming Events