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  1. Past hour
  2. squirmingitch started following How Long does it take for Dapsone to work?

  3. https://www.mayoclinic.org/drugs-supplements/dapsone-oral-route/proper-use/drg-20063327 https://www.mayoclinic.org/drugs-supplements/dapsone-oral-route/side-effects/drg-20063327 within a few days (for dermatitis herpetiformis), or if they become worse, check with your doctor. https://www.mayoclinic.org/drugs-supplements/dapsone-oral-route/precautions/drg-20063327
  4. pikakegirl started following Makeup to cover DH scars on forehead?

  5. I use Gabriel, Zuzu, or Andrea Rose cosmetic concealers, all Gluten Free and Fragrance Free. I have scars from surgery and red marks from hemangiomas. I just dab some on and let dry happy a second coat in those areas. With my age I avoid powders that make skin look more wrinkled.
  6. Today
  7. cyclinglady started following Jello brand jello

  8. It is gluten free. I just had some at Easter. Kraft does not label anything gluten free for legal purposes. Will you get sick? You might react to other ingredients due to food intolerances other than gluten. If you are worried, sick the jello until you feel better. Sometimes piece of mind is priceless!
  9. Ennis_TX started following Jello brand jello

  10. You can use Knoxx Gelatin and Juice or flavor extracts. I do it with extracts and knoxx or use simply delish sugar-free sometimes, it contains a seaweed-derived thickener that bothers some people though. I have read many celiacs eat jello fine, but there was an issue last year with them changing the ingredients on one of their puddings to contain gluten.
  11. Yesterday
  12. captaincrab55 started following Jello brand jello

  13. cweetcat joined the community
  14. Daphne do started following Jello brand jello

  15. I keep reading conflicting advice saying it's safe then I read it's not safe because of contamination I believe that I am severe case of celiacs disease and haven't had jello but was just about to make it when I thought better check again here's one Sugar-free Jell-O is made up primarily of gelatin. The manufacturer adds in food coloring for visual appeal, as well as several flavoring agents. Regular Jell-O has sugar as a sweetener, which gets swapped out with an artificial sweetener -- usually aspartame -- in the sugar-free varieties. None of these ingredients directly contains gluten. But Jell-O's manufacturer, Kraft, doesn't certify that Jell-O products are gluten-free. The company claims that some of its coloring and flavoring ingredients come from suppliers that don't always label every possible gluten contaminant. So while the final Jell-O product is probably gluten-free, it isn't guarantee Cross-Contamination in the Plant Facilities that process these coloring and flavoring ingredients manufacture many types of products. It's likely that at some time during production, the plant processes something that has wheat, rye, barley or other gluten-filled grain. Traces of gluten can be left behind on equipment, can go airborne when a wind picks up or can get transferred to another location when a worker touches several products. These scenarios cause cross-contamination, where foods that would normally be gluten-free, including Jell-O's coloring and flavoring ingredients, become contaminated with gluten. Effects in Your Gut Because sugar-free Jell-O doesn't have any clear grain ingredients, it might have no effect in your gut. If you're very sensitive to gluten, however, avoid all Jell-O products, including the sugar-free varieties. Otherwise, if you eat the gelatin dessert, you could have painful cramps, gas and bloating in your abdomen associated with gluten intolerance. You might even experience diarrhea just by ingesting the minimal amount of gluten. So is this right does any one know I believe that I am really sensitive celiacs disease like tiny crumb will get me sick thanks for your time

  16. Pamjo8089 joined the community
  17. cyclinglady started following Makeup to cover DH scars on forehead?

  18. You might try doing a search on you tube for techniques. There are lots of make up artists on there. Plenty for men too. The goal is to look like you have nothing on. In our family, we use Physician’s Formula green concealer to cover redness. Then lightly apply a mineral foundation (Neutrogena) with a sponge or brush over it and blend. The goal is took look like you do not have on foundation. Less is more. I like Mineral powder over a liquid because it provides very light coverage. You just have to experiment. https://www.livestrong.com/article/283958-how-to-cover-up-a-big-scar-on-the-face/
  19. Scott Adams started following Makeup to cover DH scars on forehead?

  20. I also don't know much about makeup, sorry, but one suggestion I have would be to make sure the makeup is gluten-free, as gluten is used in some makeup products.

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  22. Celiac.com 05/24/2019 (originally published 10/08/2010) - I need to do some studying about the individual recommendations, as I am still not well-versed in many of these alternative therapies. However, I think I can dig most of it out now with what I have picked up from others over the years. It all makes sense to me through my newly-opened eyes. We don’t talk much about the virus(es) involved in canine lymphoma, even though it is known to be viral in most other affected species. The big question is whether pleomorphic bacteria are also involved, as they are now suspected to be by many researchers in human cases of Hodgkin’s lymphoma. This makes sense as viruses and bacteria act as a “tag-team” in both normal adaptation in the day-to-day life of the cell as well as the “over-adaptive” processes we call disease, including “autoimmune disease” and cancer. Bacteria are interacting with the mitochondria, driving the cellular metaplasia (and “precancerous” changes) while viruses are interacting with the nucleus, driving the rapid cellular division that characterizes cancer. The question then becomes: What is the real reason “malignancy” occurs? What is/are the factors in this syndrome that make one tumor become more aggressive than another? Is it an additional virus or pleomorphic bacteria that completes picture…a helper virus as some describe it? To a degree, this is academic because the approach is the same- we need to stop doing what we are doing that has caused this in the first place. Cancer is simply a spectrum disorder and the natural consequence of our not dealing properly with “phase two”—the “autoimmune diseases”, in which the immune system is desperately trying to get this mess under control so that the cells and their adaptive residents (viruses and bacteria) don’t feel compelled to start forming tumors (cocoons) to protect themselves from the toxic environment in which they find themselves. “Disease”, including cancer, is no longer a mystery at all, is it? The only differences between one disease and another is the different viruses and bacteria involved (many of which are lurking in the DNA, passed down through the generations), the various triggers (toxic insults we throw at them), and the cell/organ involved. The age and rapidity of onset is determined by concurrent illnesses (malnutrition/leaky gut, hypothyroidism, adrenal and pituitary dysfunction, gonadal insufficiencies, etc.), most of which can be connected to the same leaky gut, malnutrition, and toxic insults that we believe contributed to the cancer. So…the logical approach is to reestablish wellness as quickly as possible by healing the gut (the removal of gluten, et al), providing a biologically appropriate, eliminating as many environmental toxins as possible (e.g. fluoride, pesticides), identifying and treating the concurrent illnesses (e.g. hypothyroidism), and then addressing the viruses and bacteria that are involved in the process. (Knowing what we now know about pleomorphic bacteria and cancer, could antibiotics help?…or would they do more harm than good by forcing these bacteria into adapting further???) Thankfully, by taking the steps outlined above, we often won’t have to address the viruses and bacteria specifically as they will be satisfied with our efforts and go back to doing what they were doing before we bombarded them with all of the toxic insults, which was helping the cells to adapt to change. But in the case of cancer, we have our work cut out for us. The individual with cancer has had some degree of immune failure, at least at a local level, for cancer to have occurred. In these “end game cases”, we have to do everything right, which brings into question the logic behind the use of carcinogenic chemotherapy. In the cases of overwhelming bacterial infections (which primarily occur because of weakened immunity and toxic insults), we frequently have to pull the afflicted individual from the fire by using powerful antibiotics, killing the “offending” bacteria, which were often normal residents of the body before they were forced into replicating at a pathological rate, due to the toxic environment in which they found themselves, and often in a body that is repeatedly insulted by malnutrition, pollutants (e.g. air pollution, cigarette smoke, dietary insults), and poor lifestyle choices. Whose fault is it that these normally-helpful microorganisms rebelled??? So…once again…in the case of cancer, do we occasionally need to pull out the big guns that bring down the strongholds of these scapegoats we call viruses and bacteria? Do we sometimes need to blast their cocoons with harsh and potentially carcinogenic chemotherapy in order to pull the afflicted from the fire in the same way that antibiotics, anti-fungals and anti-virals are used to rescue the less-afflicted??? I contend that we wouldn’t if…IF…we could correct enough of the underlying causes. But…that’s a big “if”. Can we eliminate enough carcinogens with our patients living in polluted cities? Can we provide them with a perfect diet to reverse the catastrophic malnutrition from which many suffer? Can we give them all purified water, free of the fluoride and other toxins commonly found in the general water supply? Can we convince them to leave a highly polluted city (e.g. NYC, Boston, LA, Atlanta, Phoenix, Mobile) that is assaulting them with more than enough carcinogens and neurotoxins to place them firmly in the predicament in which they find themselves? Can we give them enough antioxidants, nutriceuticals, essential oils, and homeopathic remedies to undo the years of physical abuse and poor lifestyle choices that led to this calamity? Sadly, in most cases, the answer is “no”. But that doesn’t mean we can’t try. That is the main difference between us and the classically-trained, allopathic doctor: We are at least considering our role in this and making use of what we learned in basic Sciences about how the body truly works. Isn’t it amazing how the first years of medical school (the basic Sciences of Anatomy, Histology, Pathology, Physiology, etc.) are almost completely wiped out by the final years of clinical work? Suddenly, we have a pill for everything and are focusing on drug dosages and interactions, having completely forgotten WHY the body does what it does. Is this brain-washing an accident or intentional on some level? One has to wonder. The true role of our residential organisms (viruses, bacteria, fungi and parasites) is one of the most amazing things I have learned in the past ten years. Once we grasp (or re-grasp) the adaptive process—the fact that there are living entities that move in and out of cells reporting on and adapting to the outside environment, the mystique of medicine disappears and “greater things” become possible. But the limitations in the lives of the afflicted individual are both real and saddening. For them, we have to do exactly what we are doing here: Come up with the best compromise. In the case of cancer, is the tumor/process life-threatening enough to warrant further intoxicating the body? Will a solitary tumor or enlarged lymph nodes kill the patient? Is the systemic cancer like lymphoma causing enough organ dysfunction to justify the use of immunosuppressive drugs (e.g. prednisone) and carcinogenic chemicals, both of which are illogical once we know that the true underlying “causes” are viruses and bacteria that have simply (and visibly) rebelled in response to our own wrong-doing, including trashing our immune system so thoroughly that it can’t control the process even without the addition of more immune-suppressing drugs? We are our own worst enemy. But…at least we know that now.
  23. pikakegirl started following Citric Acid

  24. After diagnosis and gluten-free diet I became intolerant of many foods and additives. Citric Acid and Ascorbic Acid cause a sharp kidney stone like pain in my lower right side. It took forever to figure out that is what the pain is from, I never had a problem with citrus or citric acid before. Wonder it is from over exposure in lifetime or how it is processed (what it is made from) My bloodwork for Celiac has never faltered since initial diagnosis. Neither has my CRP. Wonder if this is just me or other Celiacs.

  25. Tone joined the community

  26. Good idea. Lately they just removed that FAQ, likely because they haven't certified it as gluten free, but I'd still assume all distilled liquors should be gluten free.

  27. thank you so much for your quick reply. It was Walmart brand Advil

  28. dc3 joined the community

  29. It is unfortunate that fear of soy has become so popular. Check out the region around Okinawa, where soy is a foundational food and has been for centuries. Note that this area is one of the World's green zones where people on average live the longest of all. This is just one example of an area where soy has been used for a very long time with positive results, or I suppose it is more accurate to say without harmful results. Of course it is different for those who are medically sensitive to soy derived products and must avoid them. As for people with Celiac, one must always be aware of cross reactivity and periodic testing is a very good idea. Celiac is sneaky that way. For the rest of us, organic, unmodified soy is not only safe to eat, but is an excellent and inexpensive source for a multitude of nutrients. Thank you for qualifying your statement about MSG. Personally I tend to avoid additives like MSG that are not actually naturally occurring food, but I reserve any comment beyond my personal preference and will wait for the research to catch up. I am encountering increasing evidence that you may be absolutely right about avoiding it.
  30. Last week
  31. Scott Adams started following Lymphoma

  32. Celiac.com 05/23/2019 - One of the most common questions we see about celiac disease diagnosis is: How long does it take, on average for a person to be diagnosed with celiac disease from the time they first notice symptoms? The answer can vary from person to person, and from doctor to doctor. It can depend on what resources your doctor has to test you for celiac antibodies. It can vary by location and country. One doctors start looking for celiac disease, it doesn't usually take them very long. In theory, a diagnosis of celiac disease is fairly straightforward. The best case would be you notice symptoms, go see a doctor, receive a quick antibody screen, test positive for celiac antibodies, receive a biopsy and get a confirmation. In reality, it almost never works like that. Diagnosis of celiac disease, like many diseases, can depend on numerous factors, including severity of symptoms, the speed with which patients notice the symptoms and seek medical attention, and the process of determining the cause of symptoms to testing for antibodies to biopsy confirmation. Because these factors can vary from person to person, the time from symptom onset to celiac disease diagnosis will likely be different for each person. For far too many people, though, celiac disease diagnosis is slow, and can take years, depending on the above factors. Both Daniel Leffler, MD, MS, at The Celiac Center at Beth Israel Deaconness Medical Center, and the Celiac Disease Foundation say that patients face "an average delay of 6-10 years for an accurate celiac disease diagnosis." So six to ten years is one answer, it's the answer for many people. But it's not the complete answer, it doesn't have to be the answer for everyone. The article goes on to say that "In Italy, where celiac disease is common, all children are screened by age 6...and Italians of any age are tested for the disease as soon as they show symptoms. As a result of this vigilance, the time between when symptoms begin and the disease is diagnosed is usually only 2 to 3 weeks." So, again, the length of time it takes to get a diagnosis is a combination of vigilance and testing practices. It can take years, but it can also take weeks or months. If you think you or a loved one may have celiac disease, do your best to note your symptoms, and to get screened by a physician. It's true that screening won't catch all cases, but it will catch most. Moreover, positive tests for anti-gliadin antibodies is a solid argument for endoscopy and biopsy. There's no reason that people with symptoms and some awareness of celiac testing should. The more people begin to press for screening based on symptoms, the more that 6-10 year number will shrink. Remember, the faster you get screened, the faster you can get diagnosed and begin to heal.

  33. Depends on what kind of Advil. The gel capsules used to contain gluten from what I recall. What does the label say? Here is a list of gluten free pain relievers: https://www.verywellfit.com/gluten-free-pain-relievers-562382

  34. Dianne M. joined the community

  35. I’ve been diagnosed with fibromyalgia and neuropathy I’ve been in so much pain for years I’m 64 !! the dr want to give me injections in my neck for my chronic pain in my hands they !! That the dr already operated on for corporal tunnel!! after he did he said I’m my right hand was the worst nerve damage he had seen in his career!! now after the operation!! My hands hurt even worse!! my fingers are getting deformed and go numb can’t hold things I drop them!! My back And knees are going out and constantly in lots of pain!!!

  36. Theresa Ernst joined the community

  37. https://www.beyondceliac.org/research-news/View-Research-News/1394/postid--114197/?utm_campaign=Research Opt-In&utm_source=hs_email&utm_medium=email&utm_content=72478196&_hsenc=p2ANqtz-8cBCeWpQSG8tjxT3AC5kO9JlVU9sKiGcArKDefDbz0UI0-FrJiSWvmuEAJ7HWszix_3WVyFj1AaK8h8iqwb5bG0LBdew&_hsmi=72478196 A potpourri of issues discussed in this article but here are some things that stood out to me: "Similarly, in Robert’s multinational study reviewing biopsies of patients done initially and at follow up, persistent symptoms were found on the second biopsy in 78 percent of patients with damaged villi and 66 percent of patients who had normal biopsy . . . More than half of 184 patients in the study who had a second biopsy had persistent damage. In addition to the findings related to symptoms and damage, the study was designed to show physicians how to correctly take samples when a patient needs a second biopsy so changes are not missed." Also, it seems persistent diarrhea is the one symptom that correlates well with continuing villi damage: "Diarrhea was the only symptom the predicted intestinal damage found when a biopsy was done . . . The study found symptoms of celiac disease are inconsistent in predicting the results of a blood tests and biopsies. This inconsistency led researchers to conclude symptoms should not be the only thing used to evaluate a patient’s response to a gluten-free diet. However, frequent and severe diarrhea should prompt a reevaluation of the condition of the intestine, they noted." Finally and this is long overdue, researchers are beginning to look at the impact of anxiety on Celiac sufferers: "Peter Green, MD, director of the Celiac Disease Center at Columbia University, asked if the study evaluated whether the gluten transgressions being detected with the urine and stool tests had caused the study participants any real harm. “We are concerned we are driving these people crazy,” he said in a question and answer period following the lecture. Green noted that researchers are increasingly looking at the effect anxiety about the gluten-free diet has on patients." Celiac disease can become bigger than life if we let it.

  38. Is the grandchild a minor? If so, that would be medical neglect and he could lose how child

  39. has anyone had a reaction from taking Advil?

  40. I understand your concern for your son and your grandchild. Your son is an adult. It is his choice whether or not to treat his celiac disease. Some celiacs do not follow treatment. My own PCP has two other celiac patients (out of 2,000+) who refuse to do the diet. It is hard for most of us here to imagine that, but it is true. Like an alcoholic or a drug addict, only the person with the affliction can make that choice. Now, working with kids, I am a mandated child protection reporter by law. You did not disclose your grandchild’s age, but if he is under 18, he deserves protection. You might have a discussion with your own doctor who is also a mandated reporter. He or she can at least can give you some direction based on the laws in your state. I assume your son and wife are giving insulin to their diabetic child. Hard to imagine they are not treating their second child who also has a serious autoimmune disease like his brother. I hope you can figure it out.

  41. jackie hinton joined the community

  42. Ghosts joined the community

  43. Deanne Spataro joined the community

  44. Steve H. joined the community

  45. This disease is like a chameleon always changing, in regards to the above issues, I have my list of NO foods I can not eat anymore, I became allergic to Corn and whey, and ended up with various intolerances/sensitivities from peanuts, lactose, soy, etc. I also got other AI issues like Ulcerative Colitis, which flares to gluten, spices, and sugars/carbs. I ended up with gluten ataxia in which my immune system will also attack my brain and nervous system. It as taken over 6 years gain some feeling back in my hands, I lost the ability to do some more advanced stuff I went to college for (computer programming) because it all jumbles up when I look at it now....like I should know it but I do not. There were secondary effects of it doing something with my pancreas, I can not have any carbs or sugars without spiking my glucose to dangerous levels, and I have to take pig pancreas enzymes and digestive enzymes to eat my food and still can not have anything oily, or greasy. Now on to others issues, we have seen members get ruptured intestines and need a colostomy bag, we have lost members to cancer also. The list goes on. Antibodies can stay raised for months after an exposure constantly dealing damage inside, so cheating every now and then is not just 1-2 days of damage. Everyone is different but if they keep cheating the complications, other foods issues, other AI diseases all become more likely with time.

  46. Hi Trailblazer, No one can say for sure what will happen, but we can make some guesses. Celiac disease can affect people in many different ways, and there is no guarantee how it will affect a person. One of the problems untreated celiac disease can cause is malabsorption of nutrients. This can cause stunted growth and poor development of teeth and bone and brain. Ongoing consumption of gluten by a celiac can result in continual inflammation in the GI system. This can cause additional food intolerances to develop over time. Some of mine are dairy, nightshades, soy, strawberries, celery, oats, etc, etc. Other people have other food intolerances that crop up. These are sometimes lifetime food intolerances. Another biggie is gluten ataxia which can be caused by brain damage. Dermatitis herpetiformis (DH) is a skin condition that can happen and is not very pleasant to experience. There is a low chance of gut cancer also. There's also the potential for ongoing GI distress including pain, bloating, C and D, insomnia, brain fog, hair loss, low hormone levels, mental symptoms like anger, depression etc, joint pain, developing other AI conditions and just plain feeling miserable for years on end. The alternative is to go gluten-free and enjoy better health and live well. And most likely end up eating a healthier diet than most people do. Celiac disease is an AI (auto-immune) condition. It's a lifelong immune condition that doesn't go away. Every time they eat gluten they are damaging their bodies. Eventually that damage won't be repairable and problems will get worse. There is no upside for a celiac to continue eating gluten.

  47. I do not have DH....but from what other members have said, Dapsone works. There are some very serious side effects. Most members try to rely on the gluten-free diet long term. It is your best defense! However, they must be very strict. Most do not eat out and they avoid even processed gluten-free foods. They tend to experiment once the DH resolves. But it can take months to years for the antibodies to work their way out of the skin. Browse through the DH section for valuable tips (like avoiding iodine in your diet or using ice packs). Good luck!

  48. I have Celiac Disease (celiac disease) follow a strict gluten-free diet; however, my concern is for our son and one of his twin sons. Just a little background: one of my twin grandsons was diagnosed Type 1 diabetic at about 2 years old and not too long after, the other twin was diagnosed with celiac disease. A couple of years later, their father (our son) was diagnosed with celiac disease. Next, I was diagnosed with celiac disease a couple of years after that. Not surprisingly, the older first son of our son was diagnosed with celiac disease. That son is a nurse and takes care of himself, as far as we know. Now we find out that our son and his twin son with celiac disease have decided together that they are no longer going to eat gluten-free because they feel they have no symptoms. We also know that the two of them have cheated a lot on their gluten-free diet. Our daughter saw her brother eating a stack of pancakes one time. He has told us he does not mind the diarrhea and we are guessing that his son feels the same way. What is odd to us is that the wife of our son is a pharmacist and does not seem concerned. My question is: what can we expect the future of our son and grandson to be in regards to their health?

  49. Wow! That was a long report. Since my celiac disease diagnosis and becoming a member of celiac.com, I have realized that we are all unique. How we react to gluten varies in terms of symptoms and the amount of gluten we can safely consume before setting off an autoimmune reaction. The 20 ppm cut off set by celiac researchers was a start. Perhaps, newer testing methods in the future may allow manufacturers to eventually get to zero ppm. My hubby was gluten free some 12 years before my diagnosis. He went gluten free based on the advice of my allergist and his GP. The diet worked. He refuses to do a challenge and I can not blame him. Back then, there was pretty much nothing processed that was gluten free except at health food stores and it was awful. Instead, we chose foods that were naturally gluten free and minimally processed. He thrived. After my diagnosis, The switch to gluten-free was easy. I knew the drill. A year after my diagnosis, I started having blood sugar issues. So, I went on a low carb diet (basically ate to my meter). By doing so, I gave up all grains (they spike my blood sugar). Amazingly, I finally felt better. Was it avoiding grains, less junk, or managing my diabetes? Who knows? When I get an exposure to gluten, I get deathly ill. Which is weird because at the time of my diagnosis, I was only anemic. Days of vomiting, pain, diarrhea, bloating, and passing out occurs. Then continued weeks of trying to digest anything. The last time I triggered a bout of autoimmune hives for six months. I was mess. I am so careful now. Super strict. I tend to follow the advice of DH sufferers. I can not imagine having DH! Being careful has paid off. My small intestine has healed based on repeat biopsies. My hubby is often not strict. Oh, he never cheats, but he will consume gluten-free processed foods and eat at some not dedicated restaurants that I will not take a chance on. Nothing is worth the risk of becoming so ill for me. He only gets ill for a week. I have been glutened only at restaurants (vacations) and possibly through one medication that might not have been gluten free. (Funny how food manufacturers must follow the FDA requirements, but not pharmaceutical companies. Call your representative today and get that bill passed this year!) I am super careful about taking risks. Do what works for you and your family. The goal is to heal and live a healthy life.
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