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  1. Onepercenter

    Onepercenter

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  2. cyclinglady

    cyclinglady

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  3. Jill Harris

    Jill Harris

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Showing content with the highest reputation on 06/16/2020 in all areas

  1. Onepercenter
    I am hoping someone could possibly offer up ideas on several episodes I've had. First off, I am one of those Celiacs that is extremely sensitive. I've been told by my GI doc, 20ppm doesn't apply to you. Also, I have had chronic upper back and upper left quadrant pain intermittently for the last several years. So, with that said, serval months ago I accidentally...
    1 point
  2. Jill Harris
    I am celiac and unable to tolorate even gluten-free oats but still got symptoms after removal of them.i scanned every items ingredients and find the common link is also gluten-free cornflour,anything that is gluten-free with corn as ingredient or whatever causes a reaction.made a mistake with baked beans not realising they had cornflour in.upper left back...
    1 point
  3. cyclinglady
    The fact that so many celiacs are not healing is disheartening. Note that the study said in the conclusion: “Quantitative histology in well‐oriented biopsy sections reveals villus atrophy in the majority of patients with coeliac disease who appear well controlled on gluten‐free diet.” I have been participating on Celiac.com forum for six years. ...
    1 point
  4. Onepercenter
    Hi Plonkers, I appreciate the response. I had forgotten about this post! I still get that pain and cramping occasionally, I think my insides go into a state of spasm if I get dehydrated. Your grain theory is interesting, I think there may be something there too. I've just completed new allergy food testing because of ongoing GI craziness as well as episodes...
    1 point
  5. Onepercenter
    Thank you all for your responses. Thanks Marty for the magnet suggestion, can't hurt to try. Rrmac, Kamke, I will say that I also have mild to moderate daily upper left quadrant pain. It can wake me up at night also. GI doc believes that pain, specifically left abdominal area in front and between my left shoulder blade and spine, may be due to duodenum irritation...
    1 point
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    • trents
      @MegRCxx, it is common for people with celiac disease to have other food intolerances as well. Most common offenders are oats (even gluten free oats) and dairy. Soy, eggs and corn are less common but not rare. So, factor into your consideration.
    • MegRCxx
      Thank you @Scott Adams!! I will definitely have a read through these! If anyone is curious to what i had eaten and am worried about it was the tescos finest frozen bourginoun and creamy mash, only allergen stated was milk but it does contain yeast extract which i am aware can be a bit of an odd one. Once again thank you 🙏🏻 
    • Scott Adams
      The short answer is that it would be good for you to learn more about how to read labels, but sticking to looking for "gluten-free" on packaged foods is a great place to start. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    If you have some time for a good read, here is chapter 1 of a full book published on Celiac.com that deals with the social aspects of celiac disease:  
    • MegRCxx
      I have recently started a gluten free diet (waiting for confirmation via endoscope biopsies) I had started to reduce after the biopsy and then had a McDonald’s which confirmed to me my suspicions so decided to go full gluten whilst on holiday as i wanted to enjoy myself, since being back i have noticed that i have got increasingly more anxious due to feeling sick when i had accidentally eaten some on holiday. And not im reading labels worrying if everything doesnt state is gluten free but the ingredients look like they check out may still have gluten in.  Im panicking myself making myself feel worse and seem to be at a bit of a loss, i dont know anyone else with coeliac disease and am finding it all quite overwhelming. any advice is greatly appreciated:)
    • Scott Adams
      We've done some articles on this over the years: https://www.celiac.com/search/?q=colleges&quick=1&type=cms_records2 You might also check College Confidential or Reddit’s r/Celiac for firsthand student experiences. Some schools, like the University of Arizona and Oregon State, are known for their allergy-friendly dining halls—calling their nutrition services directly can give you specifics. If you’re touring campuses, ask about dedicated prep spaces, ingredient labeling, and student support groups. A guide focused solely on this would be so useful—maybe someone here has found one?
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