Yenni

Two brands I know of which are very good about putting a list of "free from" stuff on the label are Source Naturals and NOW Foods. Another which labels their stuff at least some times is Nature's Way.

Here are some places to get these and other brands at decent prices:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

I have a long list of bookmarks for these things, so if you need more just ask!

I would love to get that list. I have a feeling this is gonna take some work to find something that might possibly work for me.

I am having surgery next week and I need to come with some suggestions for my doctor on what pain killers I can take.

I do not do well on strong ones...but I need something stronger than Tylenol I am told. I hate medication.

Anyways, does anyone know of any pain killers that are free from Gluten, casein and everything else bad? I am like intolerant to everything starchy..

Oh and I can't take Ibuprofen (shortness of breath).

I know there are lists of gluten free drugs, but haven't been able to find one that also lists milk and such. Does anyone know of one? Then I can take a look for myself.

I am trying to find vitamins, again, that I can eat. I need hypoallergenic ones that is free from everything "intolerance" you can think of: milk, corn, gluten, soy, legumes, yeast, potato, egg..

I have tried Kirkman labs and they didn't work. Haven't been able to find any vitamins locally that are free from any or all of the above. I am super sensitive for cross contamination I should add.

I tried to look for my old post where I have asked this before, but couldn't find it. Might be too old...

I want high quality ones that doesn't have tons of stuff in it (over kill).

Maybe someone has some suggestions I can look into. It is hard to just search online. They all sound great the way they put it.

Thanks.

I have had lots of troubles with things down there too. Last 3-4 years has been the worst. Looong periods, spotting in between, had a cyst last fall that went away on its own and persistent pelvic pain. I have always had painful periods too. Nasty PMS the last 4 years... The lady thing has taken over way too much of my life...

So finally I was told I most likely have Endometriosis and I am having surgery next week to confirm and remove tissue. (ugh)

I also have a few small fibroids that might get removed, but it depends.

I have also read that Endo can have to do with the immune system as mentioned here earlier.

...It is good that you go back and have it checked properly. Hope it goes well.

I have had that since I was little. I am not sure if it has gotten better since I have gone gluten-free. It might have. My skin is read on my upper arms and face, but it isn't as bumpy at all, so I guess it has gotten better.

My half brother has it too. No one in my family wants to have anything to do with Celiac Disease (even if I carry 2 pairs of genes-one pair from each parent) and many in my family has stomach problems. Denial is bliss I guess, at least if your symptoms aren't bad enough.

Anyways, I tried that creme and it made my skin hurt after a couple of days. It has BHA in it and that can make the skin sensitive and one should not be in the sun at all (so protect that area). It did seem to work some though. Mine isn't so bad so I don't do anything with it. It isn't mostly just red. The creme never changed that either. I think it just prevents the pores to plug with that kerotis stuff.

I used to get vaginal yeast infections all the time before and had them for yeeaaarrs. Since I went gluten free (and everything else I am intolerant to) I haven't had one single one.

I am born and raised in Sweden. I have done some family tree research and have found nothing but Swedish people so far.

I am probably having endometriosis too. I am having surgery done in February for it.

I actually got less PMS from a gluten free diet, but I have had more pelvic pain. The pain might have been worse eating wheat though, who knows.

I am curious, did the surgery help you enough to make a difference and has it been enough with just one surgery? I have heard it can come back.

Not an answer, just more questions...

I would be very interested in this too.

Do you get coconut milk from the store or do you actually buy the coconut and use that in your coffee?

I tried Kirkman Labs vitamins and they did not work for me. Maybe a nutritionist would be a good idea.

Did you guys hear about the woman in Ukraine (I think it was) that had a HUGE baby this year? One of the biggest ever seen I guess and she had eaten tomatoes, pasta and potatoes her whole pregnancy. Nothing else (no Vitamins) what I heard.

I had a low grade fever when I was the sickest before I found out what was wrong. I have heard other have had this happen too.

Yeah, I got sick from my shampoo (got it in my mouth while showering) once before I realized I needed to get a gluten-free one.

I use Open Original Shared Link products now. Have been for over a year and I LOVE this stuff.

Brain fog is terrible. I feel a bit better, or much better, from it now this far along on the diet.

"Teflon brain" is another thing I notice I get. Things just doesn't stick.

Jenny--that's great!

I'm so happy for you! Sounds like a keeper.

Yes, it is a BIG DEAL isn't it?!?! I was like saying to myself all evening "I ate in a restaurant!". Told everyone. hehehe

That's cool. Where did you eat?

It is a local restaurant named CampoBello Bistro. I am going to go back there for sure. I even went out into the kitchen (was invited) to thank the chef.

The bars I eat have stuff added to them. I know I get the daily intake of Thiamin/B1, Riboflavin/B2, Niacin/B3, Vitamin B6 and Folate/B9.

I eat several of those bars a day and have been for probably over a year, so I should be good on those things.

I also take Calcium with Vitamin D.

I should ask the ob-gyn what else I need. I was thinking that I would do better if I just take a pill with just one thing or two in it.

Thanks for your replies!

Oh, and the bars have ground flaxseed in them, so I should get Omega-3 from them too. Not sure how much though.

I should ask about that panel. I have heard they are spendy though. We do not have much money.

(I did a search on Folic acid and it looks like it is just another name for Folate. (Vitamin B9)

I know I get more than what I need of that. Good to know.)

I thought eating in a restaurant would be impossible for me, being so sensitive to cc..but I was brave on Friday and took a chance. My husband called a head and they said they deal with this often and it should be fine. (It was a real nice restaurant, dunno if that makes any difference.)

We were told to ask for the woman we talked to on the phone and she was super nice when we got there. Asked what oils she could use and spices. She ended up making me grilled Halibut with garlic and olive oil and then I got steamed asparagus with it. It was soooo good. I felt like a normal person almost.

I am thrilled!!!

:D :D

Just wanted to share.

(and I noticed I can't spell.. I meant " I ate in a...")

My husband and I are talking about trying to get pregnant here. I have not been able to find a vitamin that I don't react badly to. I am gonna ask my ob-gyn about not eating one, but does anyone have any idea if it is fine to skip that or if I could possible find a pill that contain folic acid only (I get folate from a bar I am eating)? Would it be safe not to eat a vitamin at all?

Well, I brought some Jojoba oil with me last time and didn't feel a thing.

I forgot to mention for the soup, I put in a cube of bouillon (either chicken or vegetable, depending on what mood I'm in). It's an organic brand that I bought at Whole Foods and brought back here to France (where every single brand of bouillon cube is made with wheat flour - go figure!). My thing is to also boil everything in the pot for awhile, then the veggies get really soft and I find it easier to digest.

I would definitely invest in a steamer - I found the same model here in France that I had in the U.S. I can't remember the name of the brand in the U.S. - I think it might be Moulinex. It's a two-tiered steamer and it was not expensive (something like $35 - $40). You could get one for yourself and it would be YOURS COMPLETELY and make sure no one else in the family touches your steamer - that way it is sure to remain completely gluten and crumb free. The only problem with this steamer model is that it can be a pain in the ass to clean, but at least it would be totally yours and you wouldn't have to worry. Plus, I find steamed food tastes so much better, and it's much healthier too.

Oh, and I totally understand re: the crumbs and the big family and lots of cooking. It's all been a shock for me because I am an only child, so it's a different planet when I go visit the in-laws. My biggest problem is that my husband's 18 yr old sister lives with us and she tends to be very unaware of things - like she rarely helps out around the house and for some reason, she eats bread and cheese without a plate. (I don't know, I've always been taught to use a plate when I eat anything, but for some reason, she puts her bread on the table - totally weird). Anyway, I've started to pretty much cook ONLY for myself, and eat whenever I want to - I just can't deal with getting glutened every evening, and I don't like to eat at 10 - 11 pm like the other two. My husband and his sister have been quite irritated about it all ("What do you mean, we have to cook for ourselves? What do you mean, you ate already?") but I don't really care - they just don't understand (and I suspect that they don't really want to) and it's so much less stress and hassle to deal with on my end.

I know that for the past month, I've been so depressed about it all - and a huge part of it was that I have been/am still not feeling that great - I've got terrible stomach pains, and my face is breaking out like crazy - I would literally cry hysterically ALL DAY for weeks on end. I just couldn't/can't take it anymore. My advice would be to avoid the in-laws as much as possible without alienating them, and try to maybe not eat with everyone all the time.

It can be very hard dealing with this disease. The hardest thing for me has been the social part. I feel I get punished for not being like everyone else. Food is such a social thing..emotional thing. People seem to always eat when they get together. It alienates you lots not being able to take part.

Some are lucky having a smart and caring family around them, others do not and it makes things so much harder. I really feel this thing put me on my knees.

Hugs to you from someone who knows how hard it can be.

Thank you everyone for your replies. Means a lot.

I think egg problems can build over time. As a kid and a young adult I could, and did, eat them all the time. But problems grew and I became more and more sensitive. If I have the slightest bit of egg now my digestive system stops working for several days. I tested as sensitive to egg and I can only think of twice I had any in the previous year (cake on my birthday and Thanksgiving -- not like I hauled off and had some omelets or something).

Millet? I've discovered an easy millet/winter squash/cranberry casserole if anyone is interested. I'm not much on the flavor of this kind of squash (however nutritious), but put the cranberries in there and the flavors play off very nicely. It does require a veggie broth, though, I don't know how that would work with your allergies. I suppose you could make your own cooking a bunch of veggies you can have, but this seems to defeat the purpose of having something easy.

Buckwheat? I've found 100% buckwheat soba noodles and they go nicely with a Thai sort of curry. I will cook up an assortment of veggies, then add a can of light coconut milk, some Thai curry paste, and thicken with some arrowroot.

Nutiva makes some nice bars with assorted seeds that I like. I especially like the one with chocolate. Perhaps if you have just a little it wouldn't bother you? Anyway, here is a link:

Open Original Shared Link

They say that they might contain a trace of peanut. A problem?

I haven't noticed a reaction to the seeds I buy at Whole Foods. You must be more sensitive than I am.

Yes, there is hemp milk. This is what I usually use. I like Living Harvest brand, which is carried by Whole Foods. I've tried Hemp Bliss which I've found elsewhere and found it rather nasty. One nice thing about this kind of milk is that it doesn't have any additives like carrageenan and it has omega3's.

If I get another idea, I'll post again.

I am gonna look for that Hemp milk. Give it a try a day when I feel brave.

Thank you for all the suggestions.

One good thing happened the other day: I was doing ok eating a "klementin" (those little "oranges" that they sell a lot around Christmas-I don't know the American name for them). That was great. The small things that can make you happy.

OMG I just returned to this forum after a few months away, and I had an incident just like that when I first went gluten free! I woke up shakey, sweaty and nauseous. I stumbled to the fridge and drank some milk and immediately felt better. I too, am familar with low blood sugar episodes, but this was much more severe and extremely frightening. If you look back to my posts, you'll see it.

I was doing phase 2 of the South Beach Diet at that time because I wasn't sure about things, and it was easy to follow and naturally gluten free. After that, I made a point to eat more white rice and potatos to prevent the shakes during the day, and to a eat a good meal of carbs and protein before bed. I never had an episode like it again.

I don't eat any carbs really and I have noticed that if I don't eat the Very berry Bars (that has carbs) I can get BS drops that are nasty.

Some people need them more than others.

Oh dear....

If it makes you feel better, my in-laws are just as bad - if not worse than yours!

I understand 100% how you feel (re: the in-laws). Mine also have a hard time understanding things that they themselves have never experienced firsthand and they cannot imagine what it is like for me. Not to mention that they don't really believe me when I say I'm gluten intolerant - they are under the impression that I'm randomly making stuff up just to be dramatic, or just to be annoying.

Sigh.

I got pretty sick the last time I ate at the in-laws and I have (silently) declared that I will never go back there and eat - though I just realized that I already committed to spending New Years Eve with them this year. I would cook my own food, but the biggest problem I have is that the in-laws' kitchen is like, The House Of Gluten - crumbs EVERYWHERE (they're a big family, so mom-in-law spends lots of time cooking for everyone). Plus mom-in-law would never give me a separate area where I could store my own pots and pans, so...

As for your strict diet - do you have a steamer? I tend to eat a lot of steamed fish or chicken, and vegetables. I don't really mind it plain, though sometimes I will use some herbs, or just some salt and pepper. I've also been REALLY into soups these last few weeks - it's the only thing I've been eating for 2 weeks straight. I just put in turnips, an onion, a little bit of garlic, carrots, leeks, and some chicken, then some salt and pepper. Sometimes I will add some rice noodles too.

Good luck with everything...

I am in to soups too. I'll try yours but with out the carrots.

We actually live with my husbands folks. And I have no kitchen really. I use theirs but can't store anything there. I keep it upstairs where we live and we got a little fridge here for my stuff. There are crumbs everywhere here too, big family and a lot of cooking and baking.

We hope to be able to move out next year/summer. Money is the reason we haven't been able to.

No, no steamer. I think I am gonna look into a steamer and a mixer. Try the smoothie thing and stuff. Some more options.

They used to be skeptic about this but not any more.

There was actually a big fight in this house 1

I started on the Paleo diet (meats, veggies and fruits only / low glycemic) in addition to the hypoglycemia diet (eating something every 2 - 3 hours) on November 1st, because of this. And it seems to be helping. I don't feel this way at night anymore and I keep forgetting to eat every 2 - 3 hours during the day. I just don't feel hungry / jittery as often. Those carbs were having a field day with my glucose levels.

I have a friend who has this too and she eats a piece of tuna late at night. This might help help you until your body adjusts.

I agree with Nancy on this. And I'm wondering if insulin resistance explains the muscle fatigue many of us experience too. If our muscles can't absorb glucose, they don't have an energy source. Just thinking out loud here ...

Marcia

I pretty much eat like you do.

I am wondering if the body requires extra when it heals too and one drops in BS if one already have had tendensies to do that from before.

Also just thinking out loud...

I was looking at your signature Marcia and I had the same thing happen with medications as you. Nothing helped. Now I eat mostly veggies and I am much better. I still eat Protonix, but I rarely have heartburn "burning through" the Protonix. I had that 24/7 before on double doses and I tried all the meds there is. I used to get sores in my throat very often and it always ran up my ears when I slept. I had to sit up and it still burnt like nothing else.. Now I sleep flat and I have nothing.

She did say she couldn't do casein, so that cuts out dairy, at least from cows. With a casein intolerance, some can handle milk products from other animals, particularly goats. Some can't. For me and some others, it is variable. I've had some and not reacted, but the last time I tried, I got sick.

I don't remember what was said about eggs. I get so sick from eggs, sicker than with anything else, I guess I just blanked out on that possibility ...

Silk, I'm glad you like the recipe. I tried it this morning made with a little less liquid and I liked it even more. I was throwing bits of all sorts of leftover grains in there; it is a nice way to clean out one's cupboard I added a little risotto rice -- I think this is one reason it turned out so creamy. I left out the salt. I don't know why the recipe would need it and it didn't seem to make a difference.

Yep, can't do dairy.

I haven't tried goats milk actually. I get real sick from dairy so I have been a coward with the goats milk.

I'll have to force myself to try it one day here.

Egg is a mystery to me. According to Enterolab I am supposedly not intolerant to it and I can eat them sometimes, but then suddenly get ill the next. I have gone back to eating egg many times and always with the same results.