Shalia
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Latest Celiac Disease News & Research:
Everything posted by Shalia
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ARCHIVED Anyone Get Supremely Dizzy When Going gluten-free?
Shalia replied to Shalia's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Iron was *slightly* low, but nothing that would make me think that's the cause. And anemia seems to cause more the "I'm light headed and going to faint" type dizzy to me, not the "what do you know, the world DOES revolve around me" type of dizziness I have right now. Thanks for the suggestion though! -
ARCHIVED Anyone Get Supremely Dizzy When Going gluten-free?
Shalia posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I recently (re)started my gluten-free diet (I know, I'm terrible) and suddenly in the last 2 weeks or so I've had MAJOR dizzy spells, to the point I don't feel safe driving anymore and had to call out of work twice. Has anyone had similar issues? I went to the doctor to complain and got told "sometimes people just get dizzy and we don't know why"... -
ARCHIVED Health Care Reform And "unnecessary" Tests
Shalia replied to knittygirl1014's topic in Doctors
I'm a veteran, and I honestly have to thank God every day for that fact. I'm absolutely thrilled and consider myself lucky to be in the one of the only socialized medicine programs in the nation. The government doesn't decide what tests I need... my doctors do. And when I show up with sound, logical reasons for something, they do it. When the results... -
I'm going to do the A lcat testing. (Take out the space and google it. It changes the words here on this board.) It looks like a really good test.) They'll test for more things than just gluten, which is nice. Of course, you can always Enterolab. Did Enterolab wtih my son and was very satisfied.
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ARCHIVED Popcorn With Cheese Powder
Shalia replied to bonnieboo's topic in Gluten-Free Foods, Products, Shopping & Medications
Symptoms like that was how I discovered my soy allergy. Good luck to you. -
ARCHIVED Tyler's Doctor Is Frutstrating Me...
Shalia replied to Shalia's topic in Parents, Friends and Loved Ones of Celiacs
Yes, I already got the notes from him. I'm terrible. What I'm figuring is there will EVENTUALLY be slip ups. Someone, somewhere, will give him what he's not supposed to eat. I'll call THOSE challenges, and leave his intestines alone when I have control. I feel guilty ignoring the doctor, though, when he's all willing to go on dietary response... -
ARCHIVED Tyler's Doctor Is Frutstrating Me...
Shalia replied to Shalia's topic in Parents, Friends and Loved Ones of Celiacs
No, he wants me to do it once now, and once in the summer when cold and flu season is over. *sigh* And I don't know what he expects in relation to school. Tyler gets so sick he's out of school for a couple of days vomiting. I can't do that to the poor kid. -
ARCHIVED Tyler's Doctor Is Frutstrating Me...
Shalia posted a topic in Parents, Friends and Loved Ones of Celiacs
Well, got Tyler's doctor to listen to complaints, and he even is willing to consider not doing bloodwork and biopsies and go based on dietary response. (Woot!) However... He wants me to put Tyler BACK on gluten not once, but TWICE as a gluten challenge, to make sure it doesn't coincide with a stomach bug, to "prove" that it's Celiac. Even with a positive... -
Ah, I forgot the Lamictal dizzy. It'll do that too, but that *usually* goes away. I'm surprised Seroquel didn't give you weight gain. It's notorious for that. Pretty bad on inducing type 2 diabetes too. It has a black box warning for that now. Seroquel MADE me hallucinate. What good is an antipsychotic if it makes you hallucinate? *grin* I...
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ARCHIVED Mysteriously Sick
Shalia replied to rwygle1's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Did they test you for kidney stones? I ask because *I* have them. I thought I was getting glutened and I couldn't figure out WHERE FROM. It was driving me BONKERS. And my only symptoms were a vague pain in my right side and diahrrea from hell. Finally, a doctor did a CT scan and found out I have multiple kidney stones in my right kidney that... -
If you can swing it, Lamictal. It's weight neutral, won't cause sleeplessness, and is good as an antidepressant if you are having mood swings. It's generally only given to bipolars, though. It's technically an anti-convulsant (aka for epilepsy) but it's FDA approved for bipolar depression and "treatment resistant unipolar depression". It'll also cause...
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ARCHIVED Tyler's Test Results
Shalia replied to Shalia's topic in Parents, Friends and Loved Ones of Celiacs
Well, I'm trying to remind myself she's in mourning like I was when I was first diagnosed. I've expected it for Tyler, so it's not a huge deal to me, and I'm STILL bummed. She's devastated. But I think she'll eventually learn to deal. And if not, we'll go to supervisd visitation, and I'll find a teenager to come over to our house on weekends while... -
ARCHIVED Tyler's Test Results
Shalia replied to Shalia's topic in Parents, Friends and Loved Ones of Celiacs
Wow, thanks! Lots of reading. I love medical info. I appreciate you spending the time. I'm gonna go read now. ETA: Teh problem with my MIL is that she watches Tyler on the weekends. I'm a full time student, and that's when I get my homework done, and Randy works all weekend. Tyler goes over there. We need her cooperation or we need... -
ARCHIVED Tyler's Test Results
Shalia replied to Shalia's topic in Parents, Friends and Loved Ones of Celiacs
Unfortuately, our insurance won't cover them, I called and asked. My MIL isn't talking to me now. She thinks I'm mean. And she's pissed. *sigh* This is goign to be fun. -
Got his test result from Enterolab. We could only afford the IGA one right now, and that came up barely postive. It came up 11, with 10 being postive. *sigh* I'm trying not to feel guilty taking away all his favorite foods, but I'm having a hard time with it. Maybe it's all in my head since I know *I* do so much better off gluten... but it's still...
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ARCHIVED Empiracal Evidence Good Enough For Me.
Shalia replied to Shalia's topic in Parents, Friends and Loved Ones of Celiacs
Thanks for the encouragement, everyone. Now if I can just get everyone to AGREE with me in the household. I was *so thankful* when Randy agreed to go w/ Enterolab because Tyler's chances of coming up with a true positive were so much higher. Fiddle-Faddle, thanks for the book suggestion, I'll have to go look for it. i've heard it suggested before... -
ARCHIVED Empiracal Evidence Good Enough For Me.
Shalia posted a topic in Parents, Friends and Loved Ones of Celiacs
Well, we paid for an Enterolab test for Tyler about 2 weeks ago, and we haven't gotten the results back yet. But since then, I've had him on a gluten-lite diet, since I intend to switch him over regardless of test results. (He's autistic, he *should* at least do a trial of gluten-free/CF.) So we've been switching out one food at a time on him. Well... -
ARCHIVED I've Decided What To Do..
Shalia replied to JerryK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I plan on doing one through Lame Advertisement (remove the spaces and google). I called and talked to both York/Optimum Health and Lame Advertisement and was far more impressed with what A LCAT had to say and their time back and everything. Seemed like a much better test. I'm ordering it next week. -
ARCHIVED Pamela's (amazing) Wheat Free Bread Mix
Shalia replied to Nantzie's topic in Gluten-Free Foods, Products, Shopping & Medications
Seriously, I just got another e-mail yesterday saying it'd be another week minimum. Grr. -
ARCHIVED Pamela's (amazing) Wheat Free Bread Mix
Shalia replied to Nantzie's topic in Gluten-Free Foods, Products, Shopping & Medications
Rez, If it makes you feel better, I HATE Pamela's brownies (inedible) HATE her cake (same), think her baking mix is awesome (makes excellent cookies) and think the bread is the best thing since... well... sliced bread! Also, I don't own a breadmaker. I make it in the oven and it turns out fine. And I'm terrible about temperatures of things. I... -
ARCHIVED Pamela's (amazing) Wheat Free Bread Mix
Shalia replied to Nantzie's topic in Gluten-Free Foods, Products, Shopping & Medications
I'm so in love with it it's pathetic. *grin* I love the fact that I can mess with the recipe and not mess up the bread. I psychologically like brown bread better, so I always add a teaspoon cocoa to it. Makes it brown. I add flaxseed. I add flaxseed meal. I add sesame seeds. I add teff flour sometimes. I add all sorts of stuff and it ALWAYS WORKS... -
ARCHIVED My Enterolab Results -
Shalia replied to Matilda's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Wow... Well YAY and HAPPY DANCE to the healing, and *sniffle* to the getting rid of Yeast and soy. (I'm still mourning the soy myself...) I'm thrilled for you that your intestines appear to be getting better. Now imagine how much better they'll be soy and yeast free. (All I can say is Enjoy Life chocolate chips. Those suckers are... -
ARCHIVED Positive Iga, Negative Ttg
Shalia replied to mikeleanor's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My completely non-scientific guess? I think you caught him early. I think you caught him when he's reacting to gluten, but his intestines haven't turned to mush yet. That's something to be grateful for, I guess... although ignorant GI's seem to think otherwise! I'd still try the diet if I were you, but know he'll have no support medically... -
ARCHIVED Depression/anxiety And Celiac
Shalia replied to rutland's topic in Coping with Celiac Disease
Another natural option, and better studied, is 5-HTP. It's the precursor to Seratonin in the brain, and will help your body make more seratonin if you don't have enough. I can find some info from the studies that have been done, if you'd like. They aren't very high in numbers of people, but at least they EXIST. Most herbs have no studies behind them... -
ARCHIVED I Want To Scream And Have A Meltdown!
Shalia replied to Turtle's topic in Coping with Celiac Disease
Ouch. That really sucks. It sounds like you are being teh best friend you can be, and everyone is being not so understanding. Weddings are really stressful times. I hope she'll be back to her normal, not so stressed out, friendly self when this is all over!! And prayers for a job to land in your lap.