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Shalia

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Everything posted by Shalia

  1. Shalia
    I'm empathizing. *Something* I'm eating is giving me a stuffy nose and making my throat feel tight every time I eat it. But I can't figure out what it is. I *thought* it might be milk, but a glass of milk doesn't do it. I *thought* it might be soy, but I can't handle tofu alone, and everything I eat w/ soy has a billion other ingredients in it. And...
  2. Shalia
    amazon .com will be your FRIEND. Shop online. You can find all the tasty food, and amazon ships free if you buy more than $25 (which is *not* hard to do.) There are tons of online specialty stores. Oh, and the best bread (in my NSHO) is Pamela's Wheat Free. Good luck to you.
  3. Shalia
    Someone else posted this type of response to a gluten challenge thinking, and it *might* help you here. WHERE ELSE in medicine are you going to be told to deliberately damage an internal organ that's healing in order to prove something to your doctor? Would a doctor tell someone who has high cholesterol that they should "start eating high cholesterol...
  4. Shalia
    Ingredients Sorghum Flour, Tapioca Flour, Sweet Rice Flour, Brown Rice Flour, Organic Natural Evaporated Cane Sugar, Chicory Root, White Rice Flour, Millet Flour, Honey & Molasses, Rice Bran, Sea Salt, Xanthan Gum. It's a mix you have to make yourself, but you don't need a bread machine. It works perfectly well with a pan in the oven. I don't even...
  5. Shalia
    That has easily got to be one of the best, most succinct, and most honest explainations of the stupidity of gluten challenges I've ever read. Your friend is smart.
  6. Shalia
    There's also a PF Chang's downtown and a Ruby Chris's Steakhouse downtown. (That Ruby Chris's is in the Triumph Dining book. I haven't gone there (yet!) but it looks like they even have gluten-free dessert!) If you'll be at the Salt Palace or the Delta Center, it's practically around the corner. So is Z'Tejas and Thaifoon if you go there. Shalia
  7. Shalia
    I found a PI sheet with the inactive ingredients online, but I don't know if it's the right manufacturer. Who is the manufacturer? Here's the link I found. Open Original Shared Link
  8. Shalia
    Neither Purell nor Germ-X are listed on Delphi's most recent list. I'm wondering at the status too. I use Purell all the time. (Phone call time!!)
  9. Shalia
    I lost a lot of weight going gluten-free simply because my eating got healthier. Maybe she's doing that? I don't know what she can do to put on weight, but I do know my weight went down too. Good luck to your wife. Shalia
  10. Shalia
    Yikes! Sounds like quite the nightmare. Lots of fun, though. However, since starting Topamax, I haven't had a single migraine. If yours get really bad, it might be worth a call to your doctor... Shalia
  11. Shalia
    Too true. I'm completely sensory defensive, and my son sounds like yours. (He's autistic as well, so I'm sure that's part of the reason he needs so much more stimuli.) He needs tons of stimulus to even handle a day. It's really a problem here because loud sounds have me writhing in pain and crying, and he needs them to survive. Although, I must...
  12. Shalia
    Here's some of the symptoms. Or at least one websites version. Below is a list of other behaviors exibited by children with SID/DSI: -- Loves to spin, swing and jump--this will seem to calm them down after several minutes. -- Complains of how clothing feels, does not like tags left in their clothing and have to have their socks on just so...
  13. Shalia
    If it's only been two weeks, he could still be going through some nasty withdrawls, too, especially coming off ALL those foods. Both gluten and casein can act as opiates on the brain and cause nasty withdrawl symptoms. Good luck to you and your son! Shalia
  14. Shalia
    I'm an adult with SID and ADD. It took a bit of time before I truly realized how the world wasn't quite so bright and loud, but now I'm back to my sensory defensive self in 30 minutes if glutened. I'm taking about 1/8 the amount of Ritalin I used to take (I *am* a college student, so I take it occationally) but in general most of my ADD symptoms have...
  15. Shalia
    The inactive ingredients don't look like they contain gluten on Aleve (I panicked for a second since it's the only pain killer I'm not allergic to!) but there's one I can't even tell what the heck it is! Maybe someone smarter than me will come along. Magnesium Stearate, Microcrystalline Cellulose, Opadry YS-1-4215, Povidone, Talc
  16. Shalia
    Wow, this is an interesting thread. I've wondered why everyone around me gets really sick and I don't. My husband can get incredibly ill, and I might get a sniffle. But I'm like someone else said on here... rarely sick, but when I am, I'm out to the world. Thanks for putting together another piece of the Celiac puzzle for me! It helps so much to...
  17. Shalia
    IMRes, And one thing I don't understand is, do you think people wake up one morning with flattened villi? Or do you think there's a spectrum, that at *some point* the damage has to be starting, but it's not going to come up on the average test yet? Because I think most of life is a spectrum. And maybe the person who's blood is negative but has a great...
  18. Shalia
    I think I've fallen in love with Chili's. They make me feel so welcomed when I go in there, and like I'm not even a bother. It's such a good feeling. I'm so happy you had a good experience, and that the manager was so nice to you. That's wonderful.
  19. Shalia

    ARCHIVED "the Trigger"

    Shalia replied to a topic in Coping with Celiac Disease

    My symptoms started getting bad after my son was diagnosed autistic. That was a really stressful time.
  20. Shalia
    LOL! That's funny Nancy.
  21. Shalia
    Thanks, Andrea. I enjoy reading here, I learn a lot. Shalia
  22. Shalia
    IMRes, Then there are those of us with exactly the opposite problem as your mom. For at least 8 years I haven't slept. I've had a sleep study done where I could prove that... I never reached higher than stage 2 sleep for more than 2-3 hours a night for three nights. I didn't sleep. Even on hard drugs like Dalmane. (And that induced psychosis...
  23. Shalia
    Blood tests should be mandatory in psych units. Maybe then they would have caught me before I figured out the connection and went gluten-free on my own. I'm angry too, Ravenwood. Years of life wasted, and it was all food intolerance. Years of drug trials, months in hospitals, time that I'll never ever have back. And I *had* an endo years ago. He didn...
  24. Shalia
    The doctor who told you not to go gluten free till you have your blood work and biopsy is correct. If you care about being "gold standard" diagnosed, you need to be consuming gluten. If you don't care about the gold standard diagnosis, then start eating gluten free and see how you feel. That will tell you more conclusively than anything whether or not...
  25. Shalia
    I nearly died when I talked to him, honestly. He listened, he said "that makes perfect sense to me, if the stuff is poison to you, don't eat it ever again. If you need a doctor to tell you to make you stay away from poison, fine. Never ever eat gluten again. You are either severely gluten intolerant or celiac. Now, do you feel better?" I about cried...
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