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Tim-n-VA

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Everything posted by Tim-n-VA

  1. Tim-n-VA
    What the charts tell us is that there is no reason to accept as absolute fact that 98.6 is some special value. We don't know the status of every person's thyroid in any of the studies to include the ones years ago that lead to the establishment of 98.6 as normal. That is why it is the average temperature. Average is a statistical measure of the central...
  2. Tim-n-VA
    As usual with these anecdotes, we have only a short summary of the discussion but if your assessment of the doctor as a bad one is based only on his not worrying about a body temperature not being 98.6 than he is probably the well informed one. An interesting article on this is at: Open Original Shared Link
  3. Tim-n-VA
    The Jun 8 issue of the washington post has an article about the growing market for food products for people with allergies or celiac. The link to the story is below but you might have to go thru the free registration process: Open Original Shared Link
  4. Tim-n-VA
    I had no significant symptoms when I ate gluten. However, routine liver function tests that my doctor ordered showed a lot of fluctuation. That lead to a GI doctor ordering a series of screening tests to eliminate things that could cause the symptoms. Net effect was positive blood test and positive biopsy. That is what I thought was meant by silent...
  5. Tim-n-VA
    That is correct. There are non-Celiac reactions to gluten. To add to the confusion Celiac and non-Celiac reactions to gluten can happend at the same time. Specifically people can have Celiac and be allergic to a gluten-conatining grain.
  6. Tim-n-VA
    One thing I've been told is supposed to be a chain-wide standard is a differnt dish for gluten free (a ring around the edge) versus the plain white dish for other items. The condiments on the table I'd always been told were not gluten free but on my last visit the server said the vinegar and pepper sauce (not pepper oil) were gluten-free.
  7. Tim-n-VA
    I asked a related question here a few months ago. Bottom line is that we are all different and there are different systemic reactions to gluten. Despited being a fully diagnosed (blood and biopsy) Celiac, I have not had a noticable reaction the few times I've slipped and had a food with barley malt. Who knew table syrup would have that? I do have a noticable...
  8. Tim-n-VA
    This is one of a group of related questions that come up a lot where the answer depends on how important a definitive medical diasnosis is to you. Some people have family issues where a self diagnosis isn't sufficient. IF you need that definitive biopsy-based diagnois, you are much better off staying on gluten until August because different people heal...
  9. Tim-n-VA
    I had the sedation. I told them that I had a very sensitive gag reflex and asked if the sedation would over-ride that. They said in most people it did but also used a spray when patients are concerned. I didn't remember anything and had no discomfort afterwards. For my second one I didn't mention the gag reflex and they didn't spray prior to sedation...
  10. Tim-n-VA
    I purchased the Sunbeam 5891 2-Pound Programmable Breadmaker. It doesn't have a programmable function but it has 10 pre-set programs. The basic setting does a great job using the Pamela's Wheat-free bread mix. I've had less success with the gluten-free pantry mixes but suspect that I could get those by using the feature to add or reduce cycle time. ...
  11. Tim-n-VA
    This is the internet so you can get conflicting information and surprise, not all of it is correct. Any medical test can have both false positives and false negatives. The the last paragraph on the link below directly contradicts the statement I've quoted. Open Original Shared Link
  12. Tim-n-VA
    "Intolerant" is one of those words that is used with different meanings. Some people use it in the context of an umbrella term for "something bad happens when I eat..." On some other sites, I've seen intolerant as specifically a digestive system issue such as in lactose intolerant where the digestive system doesn't have the ability to digest lactose....
  13. Tim-n-VA
    It really depends on the context as to how much detail to try to give. One middle-of-the-road explanation is allergy based since most people have a vague idea what an allergy is: "It is like an allergy because your body incorrectly responds to something and attacks. With an allergy the body attacks the item and surrounding tissue get residual damage...
  14. Tim-n-VA
    I was at a family reunion yesterday. One of my brothers is almost 60 and has had digestive issues - IBS - as long as I can remember. I told him that since I was diagnosed that his odds of having celiac had changed from the 1 in 133 that seems accepted to closer to 1 in 20. I asked if he'd even talked to his doctor about it and was told no. His logic is...
  15. Tim-n-VA
    Better yet, why even go to the doctor? If you don't tell them all of your symptoms and factors that are affecting your health how can you expect quality care? Yes, some doctors will discount or dismiss what you tell them but then it is their error not one you made.
  16. Tim-n-VA
    All medical tests have false positives and false negatives so there is always some reason to be skeptical of any result. You said you suspected celiac, had you modified your diet prior to the test? Most medical tests for celiac are testing for a reaction to gluten or damage caused by gluten. If you were off gluten prior to your test you have even more...
  17. Tim-n-VA
    My understanding is that in the US there is no standard for calling something gluten free. There are regulations pending but none implemented yet. If that is still the case (I don't follow that issue closely), the labeling makes sense to me. Label something gluten-free, explain what you mean by that. That will allow me to make a decision.
  18. Tim-n-VA
    Gluten is only in the grain of those items. Any other part of that plant could potentially be gluten free. The risk of cross-contamination is high and I'd not recommend any celiac try those products. However, you can make a case for wheat leaves being gluten free.
  19. Tim-n-VA
    I did a google search for "blunted villi", looked at a few of the hits and found this: Combining that with the comment on your report it sounds as if the doctor did not find anything to allow a definitive conclusion about what damaged your villi. The "Intraepithelial Lymphocytes" were what the lab test was looking for that would have been the definitive...
  20. Tim-n-VA
    I only go to Wegmans about once a month. The last two times that I was there they didn't have the gluten-free corn flakes with strawberries. The most recent time I ask an employee and she couldn't find them. Anyone know if that is a local store things (I went to the one in Fairfax, Va) or a chain-wide issue?
  21. Tim-n-VA
    Just for balance, I'll give the opposite opinion. Celiac disease is an auto-immune reaction to gluten. It is true that many doctors won't diagnosis Celiac until the auto-immune reaction has damaged villi in the intestines. That means that there are some early stage Celiac patients who won't get a formal diagnosis. While it is easy to dismissed this...
  22. Tim-n-VA
    Since most of the recognized medical testing is looking for your body's response to gluten, it is important that you get the level of medical certainty that you are comfortable with before starting any gluten removal. For some people that is just a self-test if they feel better without gluten. For others they want the fully recognized biopsy-based diagnosis...
  23. Tim-n-VA
    That still leaves open for debate the option that people might have a right to eat unhealthy and die early because of it. That leads to issues about who pays for their health and end-of-life expenses. "Would be better off", perhaps. "Should", who are you to tell me.
  24. Tim-n-VA
    Well, I corrected and/or admitted I was wrong on taking offense at the word ignorant. Now "stupid" has appeared. I'll go back to my original point that the people on this site have a reason to be aware of the ingredients in their food and that is why they know. The general public that has no significant food sensitivities really has no need to think...
  25. Tim-n-VA
    Right after I was diagnosed, my wife and I were in the grocery store just picking up items to see if I could have them. Being in the mode of just grabbing the next thing on the shelf, my wife read the ingredients in "cream of wheat". Apparently they add something to that that celiacs can't have.
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