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Latest Celiac Disease News & Research:
Everything posted by Tim-n-VA
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I meant that the standard celiac test of blood test and biopsy in combination gets the definitive auto-immune/celiac diagnosis. A traditional allergy test (looking for different anti-bodies) would identify allergies. You'll frequently see posts here where people don't want to be on gluten to have the tests. They are happy knowing that they had a dietary...
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The short, non-technical answer to the original question is that when you have an allergy, intolerance, immune disorder, etc., disease, it is more likely that other diseases of that "system" will occur. This is why some people think it important to get a definitive diagnosis to determine which body "system" is reacting to the gluten. The treatment is the...
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ARCHIVED Best Websites To Order Food And Favorite Brands
Tim-n-VA replied to Dolcenotte's topic in Gluten-Free Foods, Products, Shopping & Medications
I don't think we are allowed to use the name of the online retailer that shares its name with a river in South America but they have significant discounts on gluten-free bread mixes if you buy in bulk (usually a box of six packages). I've not tried but if you subscribe (get the same order at a 1 to 6 month interval) they discount even more. I order enough... -
ARCHIVED Sunbeam 5891 2-pound Programmable Breadmaker
Tim-n-VA replied to Tim-n-VA's topic in Gluten-Free Recipes & Cooking Tips
No replies but I noticed that several people had viewed the thread indicating there might be some interest. As soon as I unpacked it I used a package of Pamela's Wheat-free mix. I followed the package instructions which said to put the liquids in, then the mix then the yeast (consistent with the bread machine's instructions). The mix said to use a basic... -
ARCHIVED Defensive Doctor
Tim-n-VA replied to Wonka's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That one is not clear to me from reading this board for a while. I've seen conflicting posts as to whether the TTG causes villi damage or if villi damage causes high TTG. In either case the correlation between the two would hold but I was under the impression (can't cite anything) that villi damage is the effect not the cause. -
ARCHIVED Sunbeam 5891 2-pound Programmable Breadmaker
Tim-n-VA posted a topic in Gluten-Free Recipes & Cooking Tips
I couldn't bring myself to pay $200 for a bread machines so I ordered the Sunbeam 5891 2-Pound Programmable Breadmaker for about $40. The UPS man should deliver it today. I have on hand one of the Pamela's wheat-free bread mixes. Searching thru this site, I see lots of messsages where people have varying success with machines and/or settings. Does... -
ARCHIVED Gluten-free Dining In Northern Virginia
Tim-n-VA replied to terri's topic in Gluten-Free Restaurants
Last week for my wife's birthday we went to back to Ruth's Chris. They no longer have a printed gluten-free menu. I was assured when I made my reservation that the waiter would be able to tell me which items were safe. The waiter told me I shouldn't have sour cream. When I questioned that one he said it was because they didn't make it on site (a strange... -
ARCHIVED Is Aleve Safe?
Tim-n-VA replied to nikki2008's topic in Gluten-Free Foods, Products, Shopping & Medications
Recent discussion on Aleve here; Open Original Shared Link -
Has anyone ever seen a clinical definition of gluten intolerance? That might be the source of the problem. The definitive (gold standard) test for celiac is the positive biopsy. It seems that people are confusing the concept of the definitive medical test with the condition. It has to do with levels of certainty. An example might help. If someone...
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ARCHIVED Is Anybody Gluten Intolerant With Celiac Disease?
Tim-n-VA replied to Trickytree's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks. I only had time to skim them but it seems they support my point. That is, they use the term sensitivity not intolerance. -
ARCHIVED If Gluten Free Works Why Be Diagnosed?
Tim-n-VA replied to ruthykins's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
There are different underlying conditions that can cause symptoms when gluten is consumed. Many diseases occur in clusters. For example you are more likely to have other allergies if you have one. From this perspective, knowing which of the underlying conditions you have will give you some information about what related conditions to be watching for... -
ARCHIVED Is Anybody Gluten Intolerant With Celiac Disease?
Tim-n-VA replied to Trickytree's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I see one "Allergy vs. Intolerance - What is the Difference?" where is the celiac vs intolerance? I'm probably looking right over it... -
ARCHIVED Williamsburg Virginia
Tim-n-VA replied to ksymonds84's topic in Traveling with Celiac Disease
A lot of the chain restaurants with gluten-free menus are in the area (outback for example). I was in one of the restaurants that were part of the restored part of town about two years ago. When I asked the waiter brought me a menu that listed all of the ingredients. Not as clear cut as a gluten-free menu but I had the information to make a selection... -
ARCHIVED Is Anybody Gluten Intolerant With Celiac Disease?
Tim-n-VA replied to Trickytree's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You are correct that many places use gluten intolerant interchangeably with celiac including many posts on this site. The places where I've seen it specifically different make the distinction of an intolerance being a GI system issue (not being able to digest properly) versus an immune system response. I've only skimmed the Enterolabs site a few... -
I posted a similar message in another thread but last week in Bristol, VA the O'Charley's provided me with a printout that listed all menu items in rows with columns for major allergens including gluten. I had no problems with my meal. As with any restaurant chain, they will have employees who do better or worse than other employees. Piccolo, can...
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Much too late for the original question but I ate at an O'Charlies in Bristol, VA over the weekend. I asked the waiter if they had any special menu's for allergies (easier than explaining auto-immune diseases). He brought me a printout that listed all of their menu items down the side with columns for major allergens including gluten. Not as good as a...
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I eat at Friendly's for breakfast a few times a month. I've never had a reaction but I'm not as sensitive as some on this site. I usually have omlettes, skip the toast. IHOP definitely puts pancake batter in their omlettes but I'd never seen anything that generalizes that to "most" breakfast places. I did ask at the local friendly's and was told...
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ARCHIVED Whole Foods Cutting Down On Gluten Free Bread
Tim-n-VA replied to Kristin N's topic in Gluten-Free Foods, Products, Shopping & Medications
Contacting them is probably a good way to go. Opinions may vary but I would think that someone taking the time to contact a company would have more weight than someone who was willing to sign a petition based on the relative level of effort. Where did you hear that they were cutting back? It would helpful if we could cite a source when we contact them... -
ARCHIVED Can You Have Wheat Allergy And Not Have Celiac Disease?
Tim-n-VA replied to shelland's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
First of all, I'm not advocating use of this product. Pacific Natural Foods has this statement on their website about a beef flavored gravy that is listed as gluten-free but not as wheat-free: "This product is Gluten Free (By definition this means less than 10 ppm gluten. The wheat fiber ingredient has no protein and is supplier verified.)" -
ARCHIVED Glutened By Bob's Mill?
Tim-n-VA replied to elmuyloco5's topic in Gluten-Free Foods, Products, Shopping & Medications
This is always a problem because there are so many unknowns. A big one for me is that a lot of stores seem to think that all specialty flours belong together so the pure wheat gluten goes next to or on the shelf above the gluten-free packages. Good thing those packages never leak isn't it. -
ARCHIVED Family Sues Mcdonald's Over Undisclosed Ingredient
Tim-n-VA replied to Respira's topic in Publications & Publicity
The five comments on that article on the website listed pretty much sums up the varying views on this one. -
ARCHIVED Foudn A Gluten-free Vodka
Tim-n-VA replied to Krysten's topic in Gluten-Free Foods, Products, Shopping & Medications
I didn't interpret their statement that as there being gluten in distilled alcohol. It is more an acknowledgement of the choices we all have to make. It seems to me to be more an analogy to the decision about foods not containing gluten but made in a factory where wheat is used for other products. -
ARCHIVED Foudn A Gluten-free Vodka
Tim-n-VA replied to Krysten's topic in Gluten-Free Foods, Products, Shopping & Medications
I also had heard that all distilled alcohol is gluten free. I don't drink much so I don't have any first hand info. I vaguely remember comments here about flavors and/or colors and to some products post-distillation. -
I couldn't find a gluten free menu on their website. I searched for the word "gluten" and nothng was returned. Do you have a link to where you found it. In general, that is not a restaurant that I would think would do very good at the gluten free due to cross-contamination.
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ARCHIVED Barley Grass And Wheat Grass
Tim-n-VA replied to lonewolf's topic in Gluten-Free Foods, Products, Shopping & Medications
The seed planted contains gluten. If it is allowed to continue to grow, a seed/kernel will form that contains gluten. The stalk never contains gluten. If you are sure the wheatgrass was harvested prior to seeds forming at the top and that it was cut and no roots (the partially used up gluten in the seed alluded to in an earlier post) were pulled up...